oral cancer survivor now one year NED. OCF is an incredible resource for gathering real first hand experiences of those who are under treatment and those who have completed treatment. Other resources are invaluable to get up to speed on this cancer and educating those preparing for the difficult journey ahead.
Forum is filled with great amount of real first hand cancer experience. Best place to ask and get direct and honest answers and guidance thorough diagnosis, treatment, and post-treatment issues.
I think I speak for many people when I say that without OCF and the hard work of Brian Hill, Christine Brader, and Eric Statler there are a lot of us who wouldn't even be here, myself one of them.
This site is an invaluable educational and supportive tool for those newly diagnosed, treating and surviving all types and stages of Oral Cancer. This site not only provides information, it helps spread awareness and brings to the public just what a disfiguring and life altering cancer this is.
It also helps with those in a supportive role caring for victims of this cruel disease.
The OCF is a vital connection for people who find themselves with the numbing news of having oral cancer. It is a lifeline to offer hope, advice, empathy, friends, and to answer the infinite questions, repeatedly, to those diagnosed. There have been invaluable friendships formed among people who have lived through the treatments together and have shared their experience with newcomers. There are truly some "angels" in the forum who have guided the members for years, putting in more time than a full time job, to assist folks through the process of getting to "the new normal". OCF is a Godsend.
If you want a forum which offers personal experience, empathy, advice, Care (with a capital C), kindness, and even the BEST recipes for recovering O.C. patients, The Oral Cancer Foundation is the place to be. These folks truly become family (sometimes even MORE understanding than family). We work together to combat this disease. Thank you Brian and Gary!
I cannot say enough about the Oral Cancer Foundation and what it has meant to me as a survivor. I check into the survivor/patient forum every day. The medical information is easy to understand and the people who participate are some of the most amazing people I have ever met. It has helped me to realize that I am not alone. There are no support groups for oral cancer in my area, and this is one way for me to share my feelings and find out that others are going through the same thing. My only regret is that I did not discover this site until after I had completed my treatments.
As my wife goes through her struggle with tongue cancer, the OCF website and the community of people on their forums were of great help preparing us to what was ahead in our quest to become cancer free. Unlike other websites & forums, the information presented was always top quality with the administrators and founders of the organisation going above and beyond to ensure that the views expressed were not skewed but based on scientific evidence.
This has to be the best site on the web for information and support for oral cancer sufferers and survivors alike. Members here share everything from recipes and soft food lists to uncommon symptoms your dr. Never told you about. Experienced members give advice and kudos, and support where needed.
I was diagnosed with stage IV tongue cancer in May of 2009. Unfotunately I didn't know about OCF at that time. However, during my recovery, I log on to OCF at least once a day. I always learn something. Oral cancer is one cancer where the side effects of radiation, especially don't stop. I find it so helpful to know that I'm not alone. I also participate in a Facebook page for head and neck cancer survivors, which is fine, too, but it can't compare to OCF. They screen comments and are careful not to have anything posted that isn't medically sound. I am so grateful for the support and knowledge that I have received from OCF.
My name is Eian Evans. I'm 28 years old and I found out I had salivary gland May.2012. I really didnt understand where to begin to look for information about my rare cancer. I have been through 2 major surgeries on my left side and one round of radiation. This website has helped me in many ways, it gave me a place to vent when nobody could relate to me. It gave me a place of comfort as well. I just had surgery on November.5th,2012. I pray and wish everyone the best in their journey of life. We are strong individuals, we are fighters.
This helped my friend a great deal. Her husband was greatly helped by this organization. I highly recommend it to anybody.
My brother-in-law and a great-niece both had cancer in thier mouths. They have both passed away, but while they were alive, the OCF helped, and has been a great comfort to my niece.
I work in biological research and have always viewed cancer or any other disease a problem to be solved objectively. Frankly, for that very reason I have never really cared for the toll it takes on people affected or their friends and families. I believed that there was not much I could contribute unless I was part of the solution. Until of course one of your own falls prey. My friend had oral cancer 2 years ago. He has done well since then. But I was privy to empathy that I wasn't sure I had before. The OCF was a huge factor in his successful fight. I am grateful and would like to contribute in other ways than I previously thought possible. Thank you.
This is a great website that has helped many people spread the word about oral cancer, its causes and treatment. My friend has oral cancer and this disease has irrevocably changed her life. Her doctor told her it used to be known as the "alcoholics cancer" seeing as big risk factors include smoking and drinking, but she tell me that there are so many young, non smokers posting on the forum that it gets very difficult to watch. The well established connection of this cancer to a certain strain of HPV is finally getting known in the health care community.
My friend Donna from Canada had tongue cancer. She looks good today but she has been through hell and back. Sometimes she gets very close to the people she meets there and then it is very hard for her when their cancer comes back. I help her through those times. We have been good friends for years. Although we are separated by miles we are together in friendship.
I am in the medical field, and I have professionally, and personally dealt with this cancer. I lost a friend Minnie Ashworth leaving behind children, and grandchildren who loved who deeply, and dearly!!!! She fought a courageous fight, but lost her battle. But with this foundation, I believe that she had a great chance with their help, and support. I also had a patient with tongue cancer that is alive, and well. So this Foundation is not in vain!!!!
my mom had oral cancer and i know that her being able to talk to some of the people on here helped her get through a lot of it .
I am a caregiver. My wife Donna is a two time oral cancer survivor. She first had cancer in 2004 and then again in 2007. This has been a very rough time for us, but I know she spends alot of time on the Oral Cancer board and I know there are times when she has been helped alot by other people who have the same disease. So far I have not needed to go there to find out what other helpers are doing because our medical system provides alot of support.
This organization really helped out my friends in their time of need and I am thankful for that. They are also very thankful and have only good things to say about it.
My niece, a non-smoker, developed oral cancer in 2005. No one in our family ever had this disease so we could not offer her much advice or guidance. Fortunately she found the OCF website and forum to help her get outstanding advice and guidance. This really helped her deal with her disease and ask informed questions of her doctors.
OCF was such a great help to my daughter. She would set for hours talking to friends she had made thru this org. I know that this was a great help to her
My co-worker's brother died of oral cancer. When my son-in-law was diagnosed with base of tongue cancer, my daughter was a wreck. I wanted to shield her from the gruesome details my co-worker went through. My daughter then found OCF and learned a great deal. She was still on edge but became stronger as she learned more and more. My son-in-law did well and is cancer free now.