I found the ocf site soon after I was diagnosed I learned more in the next couple days than my doctors told me over the following weeks I had answers to my own questions and doctors agreed when asked remarkable site with incredible angels waiting to help you with your struggles even when they are going through there own, I still visit ( lurk) to learn new treatments and keep informed thank you ocf
When my mom was diagnosed this site really helped me too become a patient advocate. Members here encouraged me to push for further treatment options for my mom. I am thankful for this wonderful group!!
When I was diagnosed with oral cancer in February 2013 this site provided valuable support and advice. It is a place you can turn to with any question knowing that you will not be judged or your fears belittled. People are friendly and kind and will do there utmost to help and encourage you. Although the site is based in the USA people from all over the world can access the resources and help provided by the site.
This forum is packed with an amazing amount of information and most importantly an incredible group of support members, who have all lived through it or been a caregiver. I found it at a very scary time, and it helped me get through it.
When my sister was diagnosed with oral cancer she found it very difficult to share her problems and concerns with her family or friends as she felt they did not understand what she was truly going thru. She turned to the oral cancer foundation for understanding and support. She was able to share her fears, learn how to manage her treatment, and speak honestly and openly with what went from complete strangers to true friends. No other organization gave her the sense of self that this organization did. No one else shared their personal history like the members of this organization did. She was never alone as long as she had access to her computer. I could never thank this organization enough for what they gave her.
Oral cancer brings with it a host of problems, such as swallowing difficulties, learning to use stomach pegs for the first time, losing one's sense of taste - not to mention the side-effects of either chemo or radiation.
The Oral Cancer team were there for me throughout the journey. Having access to expert opinion and to others who had travelled down the same road made all the difference.
Facing the possibility of having my bottom teeth removed following cancer of the tongue, I decided to try and find information about whether or not this was a good idea on the web. This is when I discovered The Oral Cancer Foundation. After posting the enquiry, I soon heard from Brian Hill (the founder) and Gary Allsebrook (a long standing member). They both offered excellent information, for which I am extremely grateful. Had I simply gone ahead without their advice, I could have ultimately lost my jaw bone. I cannot thank them enough for their comments. The Oral Cancer Foundation also provides an invaluable forum for people all over the world to be able to communicate with and learn from others who are undergoing similar experiences, or who have walked the same road. My only regret is that I did not find them earlier, as in so doing avoided what was a very lonely road.
My son was diagnosed with oral cancer at the age of 27. We were devistated and knew nothing about the disease. He searched and found The Oral Cancer Foundation. All the volunteers and survivors and care givers helped my son as he went thru this horrible time. They helped him cope and told him what to expect and what questions he needed to ask his providers. They literally became his family. He passed away last July but he was trying to raise awareness and told everyone he could about the OCF. He wanted to help others as the people involved with OCF helped him. He was a amazing man and would have helped others if he had survived. We will always be grateful to this group of people that give so much to others dealing with this disease.
When my partner was fighting oral cancer, the support and advice I got was incredible. I had friends to turn to for advice, ideas, and somewhere where as a caregiver I could have a rant and not be judged. Thanks for your support and the tireless work you all do to bring oral cancer to the forefront. From accross the pond I support all you do.
The Oral Cancer Foundation provided comfort, support and hope to my mom as she battled a nine year fight against oral cancer. The friends my mom made through the Oral Cancer Foundation have continued to be a support to me after my mom passed away. I will support the Oral Cancer Foundation and their efforts for the rest of my life and I will always be grateful for this wonderful organization for all that they do.
I am young, and found out on my 30th birthday that I had been diagnosed with oral cancer. I have never smoked, chewed, had a cavity, or excessively drank in my life, yet this terrible disease has chosen me. I can say that the people at The Oral Cancer Foundation have helped make this trying and challenging time more bearable. I am extremely grateful for their guidance, help, and counsel. This organization is a great not-for-profit that raises awareness about a terrible cancer that does not get much recognition. I thank God everyday for such a wonderful group of people.