The Oral Cancer Foundation is the very BEST small nonprofit organization!!! The OCF online patient support group helps patients and caregivers all over the world with up to date and correct medical info and support. This nonprofit establishment also helps fund many cutting edge research projects. For example, some are dedicated to furthering knowledge of HPV which is the fastest growing segment of newly diagnosed oral cancer patients. The Oral Cancer Foundation has created alliances with dental offices across the US to do thousands of free oral cancer screenings every April for Oral Cancer Awareness Month. This helps to find oral cancer early when its the easiest to treat.
As a dental hygienist, part of my daily job is to educate patients about oral cancer. The Oral Cancer Foundation has been an incredible resource for vetted, up to date, and reliable information related to trends, risk factors, current research and best practices. After volunteering at community screening events, one of my own family members was diagnosed with oral cancer and I was blessed that I was able to refer him to this foundation as he fought one of the toughest battles of his life. Information he received truly made a difference in his treatment decisions and thankfully he is alive and thriving today! With 24/7/365 access, OCF is truly a top rated non-profit serving the public, patients, and the dental/medical communities!
Words could not express the value of the Oral Cancer Foundation and it's impact on the lives of oral cancer patients and their families. As a speaker on the subject of oral cancer, I direct all healthcare professionals to the site. It is meticulously updated with the most current information complemented by a vast array of educational resources. However much more than that, is the ability of the foundation to advocate, relate and support those who are going through tremendous challenges in their lives.
The founder, Brian Hill knows first hand the devastation of the disease. His empathy and compassion are exemplary. He has had the ability to instill the same kindness and warmth in the team that he works with. This became evident when one of our own family members was stricken with late stage oral cancer and eventually succumbed to the illness. The team rallied and supported through every phase of treatment. Our world is a much better place with having the Oral Cancer Foundation in it.
Jo-Anne Jones, RDH
I just just gave a patient the news that her biopsy came back positive for dyslasia and possible early invasive squamous cell carcinoma in her mouth. I referred her to an excellent oral surgeon and to this amazing website. I suspect she'll be logging in before she meets with the surgeon, and I'm grateful that I could connect her to this resource. It's comprehensive scope and obvious commitment to providing understandable, timely, and reliable information to those who need it most of all, patients, is amazing. Thank you for being a solid link in the chain of care for this awful disease.
Loved this site, as a Dental Hygienist. I realize more and more that my role is not only to clean the teeth, more importantly to check for oral cancer and save a life. I would love a video showing each step of a through screening process. Thank you Kim
I am a Oral Hygenist. One of my patients referred me to The Oral Cancer Foundation site to learn more about the increasing occurance of oral cancer especially in younger people. This site was extemely informative. I have had many discussions with the Dentist I work for since then. Early detection is critical.
I am a dental professional that is very familiar with the oral cancer issue in the US, including the reasons that the disease is too often found late, and the impact of this fact on both survival and treatment related morbidity, as well as long term quality of life issues for patients. I have watched this small organization from its inception, and am amazed at how much it is able to accomplish with a mostly volunteer based staff, significant lack of funding, and significant obstacles in its path that are both political/professional related and science based issues. Many of the impressive list of achievements that OCF has racked up, are the result of innovative use of technology platforms that are effective and cost efficient, combined with highly creative approaches to accomplishing its mission and tasks by the management of the organization. The behemoth cancer organizations that take in hundreds of millions of dollars a year could learn something from this micro funded non profit. My guess is that if someone matched end result metrics dollar for dollar between OCF and any of the large organizations, they would become supporters of this entity as the best opportunity for their philanthropic investments. I have, before writing this, reviewed several organizations and the many comments made about them. One thing seems obvious to me. The 150+ reviews of this organization at the time of my writing come predominantly from people who have been served by OCF, and when looking at other larger organizations, volunteers, donors and staff dominate the reviews. That tells me a lot, and why I decided to take the time to write this review. These guys are in the trenches with those in need, and get the job done. The postings from those served are decidedly heartfelt, and as passionate as OCF itself. I have attended a lecture given to research professionals, in which OCF's founder was one of the presenters. I was impressed with his grasp of the complexity of the science of the viral etiology of the disease. I was even more impressed that his depth of understanding allowed him to speak without notes or the crutch of a PowerPoint presentation for two hours, but none of that compared to his passion. To a room full of scientists and researchers he brought the too often missing human component to the presentation, in a manner that was the combination of patient insight and a tactful "call to action" to those in attendance. Imagine my surprise after listening to someone delve the complex nature of oncoprotein messengers ability to alter cellular function, to find out that he was a lay person with a high school diploma. What this organization lacks in infrastructure it makes up in the development of strategic alliances. What it lacks in raw dollars to get their message out, it makes up for in creative and innovative approaches, often convincing celebrity spokespeople to deliver its message. What it does not lack in, is a true passion to serve the needs of others.
This Organization provides up to date information on all aspects of oral cancer, including scientific as well as patient and recovery oriented issues
I understand this forum was very helpful for one individual with an afflicted family member. Support services are always needed in such times.
As a dentist in private practice I know the importance of having frequent reminders to routinely screen every single patient for signs/ symptoms of oral cancer. Thank you for the great work and helping an noble cause.
As a private practicing dentist and lecturer oral cancer I had the great fortune to stumble on the OCF website several years ago. The quality and level of knowledge that was directed toward both the healthcare professional and the public, especially to those individuals afflicted with some stage of the disease process, was extremely impressive. The dissemination of this accurate up to date information is curial on this “Forgotten Disease” and what I found on the OCF website immediately motivated me to become a member and volunteer to assist the OCF to do whatever I could to make a difference. The very small original OCF lapel pin I received for my membership is one of my prize possessions, which I wear proudly to help promote discussions about oral cancer and the OCF, as awareness is how a positive difference will be made. A few years later in 2005, I was again fortunate, and had the opportunity to meet and get to know the founder and executive director of the OCF, Brian Hill, a survivor of Stage 4 Oral Cancer himself. His tireless energy, dedication, and perseverance to promote awareness, sensitivity, and research is truly remarkable and a model for us all and has been an inspiration for me. As a presenter on clinical evaluation, case management, and oral cancer; the key point I always start and end all of my presentations with is that the OCF the most value resources they have and the OCF website is also a valuable resource for their patients and their families. If they only learn that fact they have greatly benefited from the course. Society’s awareness of oral cancer is how this disease state will be changed. Brian Hill and the people of the OCF are making a positive difference. The more assistance we can give to the OCF, the sooner we can move this terrible disease process in a positive direction. I have never seen an organization with so little resources do so much. THE OCF IS MAKING A DIFFERENCE
I came to work for OCF from a well known surf brand. I specialize in everything "web 2.0" aka Social Media. At the foundation I spread awareness reaching out to those in need of aid and those who maybe never heard of oral cancer. The largest challenge that we face are the lack of people screened annually for oral cancer- which in turn equals to the lack of people that are aware. As stated on the OCF website- one person every hour of every day dies from oral cancer. No one is excluded from that statistic, even if you don't smoke. Before working with OCF, I had no idea. What many people do not know is that OCF's ability to help people does not stop with oral cancer. I have never had oral cancer. I haver never had a family member with oral cancer. I have never even had a close friend with oral cancer... but OCF has helped me. This foundation, the founder, the volunteers and the people on the forum have all helped to make me a better person. I have spoken to people who have survived oral cancer, are going through oral cancer, have recently been diagnosed with oral cancer and have lost loved ones from oral cancer. Hearing their stories gives me the momentum and pushes me to fight harder everyday to help them and prevent anyone from having to go through this. The experience I have working at OCF is truly priceless and has made me cognizant of the importance of helping others. Because of OCF I go to sleep every night proud of who I am.
The Oral Cancer Foundation provides many helps to communities around the US to raise the awareness of Oral Cancer. Their walks help involve many and raise money for needed research and imortant information. It is very helpful to have an organization as well informed, active, and caring as the OCF involved in helping patients and professionals.
I have sent all of my patients to this web site with great results. Everyone has thanked me for hooking them up to such an informative and open forum. I believe this site has all the elements that can assist a patient when face with the news of possible cancer and its effects on their life.
I have had the pleasure and honor of writing several website articles, news releases and other communications materials for the Oral Cancer Foundation over the past year or so. I could not be more in awe of the commitment of the Foundation and its founder, Brian Hill, to promoting early detection of the disease and to serving as a vital resource to oral cancer victims and their families and friends. Before Brian created the Foundation, public awareness of this surprisingly common and fatal disease was extremely low, and victims had very little access to desperately-needed information and advice. All one has to do is talk with an oral cancer victim to appreciate what a spectacular job the Foundation has done in filling this void. Particularly impressive to me is how the Foundation's online forums brilliantly allow oral cancer survivors to provide insight, counsel and comfort to more recently-diagnosed patients. The pain and suffering these amazing people have experienced is exceeded only by their compassion for their fellow victims. What many people do not realize is how tirelessly Brian works on behalf of the Foundation. For Brian it is virtually a 24/7 obsession, and his wife Ingrid also volunteers a great deal of her time despite the fact that she works full-time elsewhere. Moreover, the Hills' personal financial commitment to the Foundation has been truly above-and-beyond the call of duty, particularly when you consider that Brian's impressive track record as an entrepreneur would make it easy for him to accept a high-paying offer to run a private or public company. The impact that Brian Hill and the Oral Cancer Foundation have made to date is probably impossible to measure. However, if you speak to Brian, it is clear that this impact pales in comparison to what will be accomplished in the years to come.
Thank god for the Oral Cancer Foundation. Although oral cancer kills one American an hour, it is disease which has been largely unknown by the general public. However, this is slowly beginning to change based in part on the great website that OCF runs, but more importantly by all of the public awareness that has been generated in recent years by OCF. OCF has also lobbied effectively for more funds for oral cancer research, and for the American Dental Association to pay more attention to the condition. Arguably, nothing a dentist does for a patient is more valuable than an oral cancer exam, and too few dentists do this exam on a routine basis. OCF is helping to change all of that.