I have been touched by the compassion of the Matty Fund in my struggles as a mom who worries everyday that my child is not seizure free. As a volunteer since 2006 and recently a new board member, I am so proud to be part of the team providing support and programs for epilepsy awareness.
The Matty Fund (Matthew Siravo Memorial Foundation) is a non-profit that focuses on epilepsy and provides support to the families affected by it. Not only do they cover the basics (fundraising, awareness, legislation) but they take it a step further bringing awareness to children and teachers in schools, assisting nurses and physicians in various settings with the latest updates on research through lectureship programs. They bring children with epilepsy together for fun family events (pumpkin festival, etc.) that enables children and their family members to interact with others who may also be faced with the same issues and challenges. This past weekend's Snow Angel Ball was a well run event that helped to highlight what The Matty Fund does and to share real stories about the families who are a part of The Matty Fund family. The food was good, the music (Sugar) was great, and everyone who attended learned a little bit more about The Matty Fund staff, their efforts, and enjoyed meeting some of the young recipients of the Foundation's support.
I am the Vice-Chairman of Rock-N-Jock Charities and first met Rich and Deb Siravo at a RNJ board meeting six years ago. We were meeting to make a decision on which Rhode Island children's charity RNJ Charities was going to support that year, with our two-days of fund raising events. When Rich and Deb got through telling us the story behind The Matty Fund and what they do, and have accomplished, there wasn't a dry eye at the table and we voted unanimously to support The Matty Fund that year and each year since. Along the way, we have supported other groups with The Matty Fund, but we have found that when it comes to event support The Matty Fund is 100% on board supporting all of our efforts. Whether it's advertising our events through their social media pages, helping set up silent auction tables, right down to helping load in sound equipment for the concert, The Matty Fund personnel, including Rich and Deb, are right there. I would strongly encourage any fund raising organizations that are looking to make donations to a very worthy non-profit, please consider The Matty Fund. RNJ Charities will continue to support The Matty Fund as long as I am a director on this board. I now consider Rich and Deb friends, and you will too.
I have been involved with The Matty Fund since its inception. Being able to view the organization as a volunteer, employee and now a board member has proven to me day in and out, just how wonderful The Matty Fund is. The events are a blast, the staff are professional and most importantly the children and families touched by epilepsy are the main priority!
I am a board member of Rock-N-Jock Charities, We have worked with the Matty Fund for several years. We host a concert and golf tournament in August with the proceeds supporting the work that The Matty Fund accomplishes. We have supported a number of charities in years past. When we met Richard and Debbie Siravo and heard their story we instantly knew that this charity was one that we had to support through our fundraising efforts. After working with them for two years my family was suddenly dealing with a very small family member who was diagnosed with epilepsy. The Matty Fund has supported this little one with their Camp Matty, their Easter Egg Hunt as well as providing resources and education for our family. I can not even image the heartbreak that the founders of The Matty Fund must have felt when they lost Matthew--they however turned their lose into a foundation that supports so many. I feel lucky for having met Richard and Debbie Siravo and I consider them friends for life. Suzanne Viner Media Relations Rock-N-Jock Charities
My role in the mattyfund, volunteer, parent of a child with epilepsy, board member and most importantly facilitator of the Discovering My Epilepsy Support Group. I have been a part of the Mattyfund since 2004 and since then I have watched this small foundation evolve into an organization that not only raises money for research; but also provides education programing, academic scholorships, and lectures and workshops for both professional and parents. The Mattyfund continue to find new and creative ways to help support the children and families of RI. As they continue to grow I see there out reach of support spanning accross the United States.
As a board member and a mom of a child with epilepsy, I know first hand the stuggles that families go through dealing with this disease everyday. The Matty Fund has done so many wonderful things for the children and families who have joined our organization. The few fundraisers that the Matty Fund promotes every year fully funds such wonderful family events like Camp Matty, Pumpkin Fest, Easter Egg Hunt , and Support Groups each and every year. The Matty Fund also has a wonderful program that educates the community and schools about epilepsy. Research has been funded by the Matty Fund as well as lectures with world renowned doctors. If you have a child with epilepsy and are looking for a great support system and fun activities for your child, you will want to call the MATTY FUND!