The Matty Fund is different from other non-profits. They cover the basics (fundraising, awareness, legislation) but they take it a step further. They have a wonderful program that brings awareness to children in schools and teaches them how to be a good friend to somebody that has epilepsy. They bring children with epilepsy and their families together for fantastic events. They have created a true family environment. They enable the parents to connect and share their stories and experiences with each other while the kids are able to be kids in a safe environment. They understand that epilepsy impacts the entire family and they are wonderfully supportive. I only wish I lived closer so that I could attend more events.
I guess I can be a volunteer, client served, and donor! The Matty Fund has been very helpful in connecting people together with epilepsy and promoting awareness in the state of Rhode Island and beyond. On a personal level, they have helped to give confidence to my daughter diagnosed with epilepsy, in order to succeed in her transition to and thru college. In turn, she has returned back to the organization to return the favor...
The Matty Fund has provided my family and so many families support and services unlike any other organization. The Matty Fund's resource center provides so many programs, services and information about seizures and epilepsy. There is no other organization in the country that provides so many opportunities to families dealing with epilepsy. Thank you for all you do!!!
Our family is indebted to The Matty Fund for the invaluable support and resources that they provided. Lead by Richard and Deborah Siravo, The Matty Fund continues to reach new heights in terms of creating awareness and fostering a spirit of community for those directly or indirectly affected by epilepsy. Though our 9-year old son has been seizure-free for 2.5 years, our family will always be a part of and will always support The Matty Fund, because quite simply, doing what they do improves the human condition!
The Matty Fund does an incredible job at in providing information and support to an underserved population: parents and families afflicted with epilepsy.
The Matty Fund is there to help families navigate the overwhelming and confusing landscape of epilepsy by providing support, resources, referrals, and an overall sense of caring and love that families desperately need in the depths of this diagnosis.
The Matty Fund is a unique non-profit that truly focuses on supporting children and their families affected by Epilepsy. They have helped our family significantly as we raise our daughter, Grace, who has been living with Epilepsy for seven years now. We felt isolated and scared until we met the Siravos. Through the Matty Fund, we have connected with some wonderful families that understand the struggles we face, and we don’t feel alone anymore. We feel supported and loved and know that no matter what challenge may lie ahead that the Matty Fund will be there to provide support and guidance. We are so thankful for the Matty Fund! They have truly changed our lives as well as so many others.
My son was recently diagnosed with epilepsy and met with challenges we weren't expecting on his first day of school. The Matty Fund was there every step of the way--offering support to our family as we negotiated this difficult step. I have no doubt that they will be an organization we will turn to again and again as our son's needs and our needs change. We are grateful for The Matty Fund.
Matty Fund is fantastic support. They are always there when you have a question,, concerrn, or just need someone to talk to that knows what your going through! They raise awareness for epilepsy which most people know nothing about, but with their help it's becoming more and more known. I can't say enough good things about them they are GREAT!
The Matthew Siravo Memorial Foundation is a Wonderful nonprofit organization commited to helping families deal with the realities and uncertainties of epilepsy and seizure disorders. All staff members at the foundation, including Mr and Mrs Siravo have been a great help to my family from the moment that we began our long journey to get a diagnosis for my daughter. Each and every time I have contacted the foundation with a question or just feeling frustrated, someone has answered the phone or responded very quickly to any message that I have left via phone or email. The activities that are offered for the families served under this Non profit are outstanding also. Camp Matty and the other activities, including the M.E. Support group give children and families dealing with seizure disorders a place to go where they can interact with other families dealing with the same and/or similar issues and also have a safe and fun atmosphere where the children can still feel "normal". This has to be one of the best non profits ever created, especially if you are looking for one dealing with seizure disorders. I am grateful to have The Matthew Siravo Memorial Foundation in my families life, and I know many other families feel the same way.