My son was diagnosed with growth hormone deficiency 7 years ago. The MAGIC Foundation has been an invaluable source of information and support, whether through their web page, their annual educational convention (which we've attended three times), or their very active Facebook groups. We were fortunate to have health insurance that covered my son's treatment without dispute, so we didn't need to call on MAGIC's insurance specialist; but it was nice to know help was available if we had needed it.
The information provided by magic in relation to our daughters diagnosis of russell silver syndrome has been invaluable. Helped us argue for appropriate protocols to be followed for treatments and much less stressful hospital admissions as a result. Being able to link in with other families going through similar experiences has literally been a life saver! Thanks for the handbook...the website...the social media and all that you do for families like us MAGIC xx
The MAGIC Foundation has given my family so much information and support regarding our daughter's growth hormone deficiency. Without it this foundation I would have felt very overwhelmed.
My daughter was born premature. She has struggled to gain weight since day one. She's been tested for so many things trying to get answers. It was until I found MAGIC when she was 4 that I found help. My daughter is considered SGA. They are a wonderful support for advice with my daughter's healthcare. A wonderful resource. I'm so grateful for their service. I try to share whenever I can!
The Magic Foundation has been a LIFESEND!!!! My son was diagnosed with a rare disorder and not only did they offer me help but their department head of his condition actually called me to help me. And the have helped me with EVERY problem we have ever had! Our 1 year old has been hospitalized 2x so far and Magic was there answering all our questions and we there for us during some of our VERY HARDEST times and continue to be there for us. I would literally be lost with them and all their incredible knowledge on what we're going through. You would think every doctor you see for your child can help you but that's NOT true. The Magic Foundation has known more about how to treat my son than 90% of the doctors he has seen!!
MAGIC has been a lifeline in a turbulent sea of fear for my family and many others. The conditions that MAGIC supports and compiles information and experts on are rare even to the doctors treating our children. The annual conference is an invaluable experience to gain information and meet people 'just like us'.
My daughter was diagnosed with Septo Optic Dysplasia/Optic Nerve Hypoplasia at 6mths old. This is where my journey through the complicated world of hospitals, doctors, insurance, and the unknown began. I stumbled upon the MAGIC Foundation and it has literally changed my life, my family's life and most importantly, my daughter's life! I have found in this foundation a network of people who 'get it' because they have kids with or have the same condition themselves. I have probably gained more information from this group than from doctors on many occasions! This family that I've made is my support system in this very turbulent and confusing time in my life and I honestly don't know where I'd be without them! Everyone is genuine and compassionate and really want to help. I have had the awesome opportunity to go to the Children's Convention for the last three years-this is a truly amazing undertaking by those that organize it! Thank you so very much for all that you do. Together, we are MAGIC!!!
I have two daughters with RSS and now a granddaughter. MAGIC has been invaluable to my family for the emotional support, practical tips on daily challenges, and advances in research in understanding and treating RSS. It is parents of affected children and adults who are affected by having RSS working together. There can be no purer and stronger motivation, and that translates into an amazing not for profit!!!!!
The MAGIC foundation is a wonderful source of support and education for many families! I don't know where we would be without them!
The MAGIC Foundation is a wonderful organization dedicated to supporting and educating families and children affected by various growth disorders. Their annual convention is an amazing time of education, networking and an opportunity for kids to feel "just like everyone else" when the rest of their experiences tell them they are "different". MAGIC's Russell Silver Syndrome Division is the only source of education and support for families affected with RSS. Without the dedication of this organization, many families would feel lost and alone. I applaud their ongoing efforts to provide top notch information and recently their steps into making long lasting changes in our nation's legislation.
Magic foundation has help our family for the last 13 year with support for Russell silver syndrome. I don't know where we would be without them. My daughter is now going down a much healthier road. We have also attended 3 or 4 conventions and gained a wealth of information.
MAGIC is a priceless resource for our family and countless others. In our daughters first few months of life, doctors had no idea why she was not growing. A diagnosis was a relief yet also very scary. The MAGIC community of families and doctors augments the the medical care that we receive in a manner that has supported us in our darkest moments. I am forever grateful.