Our daughter was undiagnosed for 2 1/2 years and then we found The Magic Foundation. The doctors were helpful but Magic gave us the answers we needed. Russell-Silver was not so scary when we found Magic. Not only did it help our daughter but also helped her brother and sisters deal with her syndrome. We are forever grateful to the staff and families that helped us in so many ways. The annual convention was a family adventure and not just for our daughter affected by R-S.
I have been a parent member of MAGIC for over 10 years and have been a Division Consultant for about 6 months. When my daughter was first diagnosed 10 years ago, there wasn't anywhere to go or anyone to talk to - and we go to one of the top children's hospitals in the world! I appreciate how much people care about providing information and support to our members. In the 10 years, I haven't found anything close. We strive to continually learn and help educate our members and if requested, education their doctors too! Some of the disorders are really rare and some physicians are very grateful to have all the research consolidated and provided to them to help them better treat their patient. Thank you MAGIC for 10 years - happy to be helping to pay it forward!
I know i wrote a review last year as well but MAGIC plays such a large part in my life and this year as been hard. I have had lots of doctor appointments, surgery and am still unable to work. MAGIC to me is an amazing support system that has been able to help me through the bad days and pick me up when i needed it. On the same turn, i am able to be there for other families who need me and have questions for me being that i have 29 years of experience living with Fibrous Dysplasia. It is a great joy to be able to be a part of such an awesome organization.
I found MAGIC a few years ago and have attended every one of their Educational Conventions they have had since. MAGIC has been a true blessing for me. I was diagnosed with Fibrous Dysplasia(FD) at the age of 5. It is a very rare disease and it is very hard to get good accurate information on; however through MAGIC and their annual conventions I have been able to obtain a growth of knowledge. I have also grown to have an extended family through MAGIC. I started out feeling very alone and at the age of 25 had finally, thanks to MAGIC, met somone with the same condition as me. This was a very heartwarming and emotional experience that I will never forget. Now, I have a network of friends with FD whom I can reach out to at any given time via MAGIC's facebook page, phone or e-mail. MAGIC has been life changing for me in so many ways. I am very very thankful that I was introduced to it.