I have had AS for 48 years and when the Spondylitis Association of America began we who have this disease started seeing progress toward better management of the disease and its many ramifications. The research has been fruitful and continues to give us more than just hope; it gives us tangible paths to a better, more productive life.
I am so grateful to this organization. My journey with psoriatic arthritis/spondyloarthritis started 4 years ago. The Spondylitis Association website has been and still is my go-to source for information beginning with my diagnosis and continuing through various treatments. It publishes the most informative educational blogs and articles, works with the best doctors, specialists and researchers, and offers webinars with doctors updating members on the latest information available. I wish I could support this organization with more than my small donations, because they have helped me so much.
When my son was diagnosed with AS I wanted to get all the information I could. The web site is a great source of useful information; and it has links to support groups, doctors, written material, and seminars. As a parent, and advocate I'm grateful for all the knowledge I've gained. And I know any donations made go where they can do the most good.
This is a website I go to frequently as we navigate my son's treatment.
SAA is at the forefront of research and information for Spondyloarthritis and its' family of diseases. With as little as 2 million dollars a year, they are succeeding in their quests. This, however is a very little known autoimmune disease and needs a bigger spotlight so more funding can be donated by the general public. This disease effects more people than Lou Gehrig's disease, MS, and Cystic Fibrosis combined, but is very unknown it seems. SAA calls every single person that makes a donation to the association. Not just a typed form letter, but a phone call from a real person that truly cares about what he/she is doing. I am a proud supporter of SAA and a patient with Ankylosing Spondylitis.
When my husband was diagnosed we found great resources on SAA's website. It was nice to feel part of a community instead of all alone. We have donated for the last 4 years and feel the money is well spent. They honestly care and do everything they can. I could hardly believe it when we had a personal thank you on out answering machine for making a donation. Great organization with great people.
I was diagnosed with Ankylosing Spondylitis 3 1/2 years ago, and, despite having a great doctor, felt like I was in a raft in the middle of the ocean with no rescue in sight. Then, the SAA formed a local support group, and I started attending monthly gatherings, and eventually joined the organization and became a monthly donor. The support group, seminars and educational material provided by SAA has been a lifeline as I deal with the day-to-day reality of living with this chronic illness. It is amazing how much this organization does to educate the medical community and the public about Ankylosing Spondylitis and related diseases, and also fund research to help those with the illnesses have a better life. I can't recommend it highly enough.
I suffer from AS and benefit greatly from the work of SAA. I also donate because of how effective they are.
For people afflicted with Spondylitis, SAA is a great source of knowledge and community, as well as funding research into causes and treatments.
As one who has Ankylosing Spondylitis, I have benefited greatly from information obtained from SAA's web site and other publications. They provide helpful practical advice for people dealing with this family of diseases, which affect a surprisingly high number of people.
My daughter has been diagnosed with spondyloarthritis for about one year now. The support that we have received from SAA has helped us feel not so alone. I have a different autoimmune disease and there is no national support group for my specific disease. The SAA, which deals specifically with the cluster of spondylitis disorders, has been a great and thorough resource of disease information, but more importantly for my daughter, the SAA has provided the forum and opportunity to network with others, including health care providers to get her the best comprehensive care.