I have had AS for 48 years and when the Spondylitis Association of America began we who have this disease started seeing progress toward better management of the disease and its many ramifications. The research has been fruitful and continues to give us more than just hope; it gives us tangible paths to a better, more productive life.
I am so grateful to this organization. My journey with psoriatic arthritis/spondyloarthritis started 4 years ago. The Spondylitis Association website has been and still is my go-to source for information beginning with my diagnosis and continuing through various treatments. It publishes the most informative educational blogs and articles, works with the best doctors, specialists and researchers, and offers webinars with doctors updating members on the latest information available. I wish I could support this organization with more than my small donations, because they have helped me so much.
When my son was diagnosed with AS I wanted to get all the information I could. The web site is a great source of useful information; and it has links to support groups, doctors, written material, and seminars. As a parent, and advocate I'm grateful for all the knowledge I've gained. And I know any donations made go where they can do the most good.
This is a website I go to frequently as we navigate my son's treatment.
SAA is at the forefront of research and information for Spondyloarthritis and its' family of diseases. With as little as 2 million dollars a year, they are succeeding in their quests. This, however is a very little known autoimmune disease and needs a bigger spotlight so more funding can be donated by the general public. This disease effects more people than Lou Gehrig's disease, MS, and Cystic Fibrosis combined, but is very unknown it seems. SAA calls every single person that makes a donation to the association. Not just a typed form letter, but a phone call from a real person that truly cares about what he/she is doing. I am a proud supporter of SAA and a patient with Ankylosing Spondylitis.
When my husband was diagnosed we found great resources on SAA's website. It was nice to feel part of a community instead of all alone. We have donated for the last 4 years and feel the money is well spent. They honestly care and do everything they can. I could hardly believe it when we had a personal thank you on out answering machine for making a donation. Great organization with great people.
I was diagnosed with Ankylosing Spondylitis 3 1/2 years ago, and, despite having a great doctor, felt like I was in a raft in the middle of the ocean with no rescue in sight. Then, the SAA formed a local support group, and I started attending monthly gatherings, and eventually joined the organization and became a monthly donor. The support group, seminars and educational material provided by SAA has been a lifeline as I deal with the day-to-day reality of living with this chronic illness. It is amazing how much this organization does to educate the medical community and the public about Ankylosing Spondylitis and related diseases, and also fund research to help those with the illnesses have a better life. I can't recommend it highly enough.
I suffer from AS and benefit greatly from the work of SAA. I also donate because of how effective they are.
For people afflicted with Spondylitis, SAA is a great source of knowledge and community, as well as funding research into causes and treatments.
As one who has Ankylosing Spondylitis, I have benefited greatly from information obtained from SAA's web site and other publications. They provide helpful practical advice for people dealing with this family of diseases, which affect a surprisingly high number of people.
My daughter has been diagnosed with spondyloarthritis for about one year now. The support that we have received from SAA has helped us feel not so alone. I have a different autoimmune disease and there is no national support group for my specific disease. The SAA, which deals specifically with the cluster of spondylitis disorders, has been a great and thorough resource of disease information, but more importantly for my daughter, the SAA has provided the forum and opportunity to network with others, including health care providers to get her the best comprehensive care.
After going to a chiropractor for many years, and my pain, and stiffness getting worse, I finally went to a doctor who diagnosed my symptoms as ankylosing spondylitis in 1992. Because my condition went untreated for many years, and even worse, because I went to a chiropractor who had no idea what he was doing, nor ever heard of my condition, for over 10 years I had a very difficult time managing my illness. Thank God, now, after many difficult years, I am better able to manage my condition. I credit, in large part, SAA for helping me manage, and deal with my disease. Their information, and helpful suggestions, have been a vital part of my care. I am fully comitted to this organization, and greatly encourage everyone to support this vital cause, and hopefully, someday, with their help, this dreadful illness will be curred, and not hurt anyone else. In the meantime, this wonderful organization adds tremendous knowledge to the world, who before their vital work, had vey little information about this illness.
My now deceased father had AS and now my identical twin daughters have AS. I have found SAA an invaluable source of information and inspiration, both for understanding the disease and for learning how my daughters can live with it. Many thanks to SAA for being there for me and for my family!
The SAA provides valuable research and drives awareness of a terrible disease that afflicts millions of North Americans every year.
SAA provides great educational sessions free of charge to persons affectd by SAA and offerings are planned in different areas of the country so that many can take part in those sessions. The learning from speakers and other attendees has been invaluable. I've developed friendships and contacts from attending sessions that have continued for several years and would not have been possible without SAA.
As a disabled Veteran who is partially crippled and always having to deal with pain that was mis-diagnosed for over 20 years. . I myself who was finally diagnosed by one of the best MD's at age 39. I had to close a business which i loved but could no longer endure the pain with the Arthritis without some real hard drugs from the Doctor. Well, i got some relief but the hard drugs were destroying my life. I went through a divorce after almost 10 years of marriage. I lost everything in the courts and I was at my lowest point i think in my life at the time. My sister (Lori) who works with the Cancer Society herself became a victim last year. She is doing well now after the chemo and is considered a survivor. In 1999, she had heard about this small group for Anklyosing Spondylitis and paid for my first year as a small gift to me for my Birthday. I think it was one of the best Birthday presents i have ever received. I have gotten to know others on the internet and even submitted my story of years (16) of mis-diagnoses from Doctors who just didn't know any better. Becoming a member with SAA it helped me to start to understand what was happening to my body. I found some friends here that understood what i have been up against for most of my adult life. I consider myself to be a life long member and consider this a great way to help others who have been through the tough times as well. Now i understand to feel better that i have to deal with the pain and depression that all of us Spondy's endure everyday of our lives. Most spondy's will tell you It keeps most of us single and our friends at a distance so this website is something that helps fill the gap especially on some of our most painful days when an understanding friend just to talk with when you are hurting can make all the difference in the world. Thank You SAA and keep up the great work keeping all of us Spondy's up to date.
I was diagnosed with AS about 10 years ago, when I was 29 years old. Soon after I found SAA online and became a member. I can't tell you how much their website and quarterly magazine have helped me over these past 10 years, not only with great articles, forums, and exercises, but SAA has given me real hope that one day there will be a cure for AS. It always lifts my spirits when I get their latest quarterly in the mail. They cover such a wide range of topics in their magazine, and it always leaves me feeling hopeful. I always look forward to reading it when it arrives in my mailbox, and I always learn something new and they are always working towards a cure. SAA also has events where you can meet other people with AS. I think anyone with AS or even someone with a friend or loved one who has AS can benefit from this incredible organization.
I've been pleased with the materials and responsiveness of SAA.
If you have Anklyosing Spondylitis (AS), there is no better organization to go to. I have attended webinars, seminars, forums, and read countless articles - all very beneficial in understanding AS.
Exceptional charity, very accountable from top to bottom and as a donor and carrier of the disease I find them a great resource to help me and my family. They are driving research that may one day help to find a cure.
Based on several years of experience I have nothing but a vote of the highest confidence.
This organization has saved my life. They are the experts in the field of Ankylosing Spondylitis, and they are warriors in the fight against this horrible disease. The SAA is on a mission, to educate, to support, to raise awareness and to find a cure for AS!