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Sick Kids Need Involved People of New York Inc

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Nonprofit Overview

Causes: Centers to Support the Independence of Specific Populations, Developmentally Disabled Centers, Disabilities, Health, Human Services

Mission: To provide advocacy and support by accessing the necessary services for families who care for their chronically ill, medically fragile or developmentally disabled children at home.

Results: The founder’s efforts on behalf of sick and disabled children ignited the interest of the U.S. Surgeon General who held a major national conference that highlighted the plight of the many families and children caught in the web of institutional placement. Systemic changes came about and the medical, social and financial communities began to appreciate the benefits of home care for sick and developmentally disabled children, thus, many programs began to evolve. Families gravitated to SKIP because the founding principles are based on a real family’s experience.  In 1986, for its child advocacy work SKIP of New York was awarded a Federal Special Projects of Regional and National Significance (SPRANS) grant through the U.S. Department of Health & Human Services (HHS) - Federal Bureau of Maternal and Child Health, the first such award to a grassroots consumer organization.  Granted for a three-year period, the project extended for an additional year due to many achievements. In response to what was recognized nationally as a significant success, The New York State Department of Social Services (NYS DSS) in 1989 approached SKIP of New York to form the first partnership between a parent-run, community-based organization and the government. This transformed the agency from that of a state advisor into one contracted to provide services under state-operated programs.  In addition, SKIP was the driving force behind the New York State legislation that created the Medicaid Model Waiver.  For over 25 years, SKIP has worked closely with key New York State agencies in the design and implementation of all the major programs targeted to serve children with special health care needs. ABOUT SKIP Although SKIP does no outreach, new families come to the agency at a rate of 50 each month.  SKIP is now serving over 3,500 children. Referrals come from hospitals, insurers, legislators, state agencies, school districts, home care providers, physicians, and parents who have learned firsthand that they can depend on SKIP.  Over the years, SKIP of New York has impacted positively and − often immeasurably − the lives of over 10,000 children and their families.

Target demographics: SKIP of New York provides services throughout New York State. SKIP’s main office is in Manhattan with satellite offices in Rochester and Buffalo. 70% of SKIP of New York’s clients are located in the New York City metropolitan area (five boroughs).  Who SKIP serves: The list of diagnoses for the children SKIP serves is eight pages long, and every diagnosis and family situation is different.  Diagnoses include cerebral palsy, Duchenne’s muscular dystrophy, cystic fibrosis, spina bifida, mental retardation, traumatic brain injury, congenital heart defects, HIV/AIDS, sickle-cell anemia, cancer, autism, among many others.

Direct beneficiaries per year: 3,500 medically fragile, chronically ill and developmentally disabled children throughout New York State.

Geographic areas served: New York State

Programs: Care at Home, Medicaid Service Coordination, Family Support, Family Education and Training, Residential Habilitation, Respite, Plan of Care, Environmental Modifications and Assistance Technology, the Julia Fund (to care for children without funding resources).

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