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Sepsis Alliance

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Nonprofit Overview

Causes: Health, Public Health

Mission: Save lives and reduce suffering by raising awareness of sepsis as a medical emergency.

Programs: Sepsis awareness and education programs for the general public and health professionals. Support to sepsis survivors and loved ones of sepsis patients.

Community Stories

52 Stories from Volunteers, Donors & Supporters

2 Patti S.1

General Member of the Public

Rating: 5

Our son survived septic shock at only two weeks old. We are very fortunate the hospital staff knew the symptoms and acted quickly. The information provided by the Sepsis Alliance is so important and needs to be shared!

1

General Member of the Public

Rating: 5

My father-in-law's son was a victim of sepsis who ultimately died of cancer not too long ago.

My parents, both retired medical professionals (my father a retired Army veteran and anesthesiologist; my mother a retired Critical Care nurse) saw many sepsis cases during their professional careers. There are sepsis survivors in my family.

Like the Bill & Melinda Gates Foundation, Sepsis Alliance wants to inspire people to take action.

Sepsis accounts for nearly $24 billion in annual costs, making it the most expensive condition to treat in the entire U.S. healthcare system. It is the number cost of readmissions to hospitals, and the number one killer of children.

38 sepsis patients require amputation every day.

The CDC, always exploring ways to reduce patient risks and preventable deaths, analyzed hospital discharges between 2000-2010, and over that 10-year span, the top eight deadliest diagnoses all had double-digit declines in inpatient mortality except for one: sepsis.

Studies conducted by the National Institutes of Health (NIH), as well as the VA, showed that exposure to carcinogens, such as herbicides during the Vietnam War and contaminants from oil-well fires during the Persian Gulf War, left veterans with significantly higher rates of certain types of cancer than the general population.

Cancer patients, with their high frequency of hospital stays are particularly at risk of sepsis infection. One NIH study published in 2004 revealed that cancer patients are at almost 4 times greater risk to be hospitalized with severe sepsis ' which has at least a 28% mortality rate' than the general population.

Sepsis does not discriminate. It can affect anyone ' healthy or sick, young, old, and those in-between.

Its effects are devastating, and sepsis victims are not the only ones to suffer. Survivors, their families and caregivers, too are affected by the trauma caused by sepsis. All reasons why Sepsis Alliance created a Faces of Sepsis campaign to help support survivors and victims' families, by giving them a place to share their stories.

Effectively half the population of the U.S. has not heard of sepsis, and is not aware that recent research indicates sepsis is now increasingly acquired in the community, not as a hospital-acquired infection (HAI).

The Bill & Melinda Gates Foundation is on the front lines, helping combat infectious diseases, and we see good synergies on this basis and others, knowing where the foundation puts its emphases.

Sepsis Alliance is the nation's largest sepsis advocacy organization, and we work in collaboration with individuals and organizations nation-wide across the healthcare continuum ' from hospitals, those helping to translate scientific discoveries into solutions, to those working to develop and deliver innovative approaches to deliver health services in a bid to raise awareness in the public for sepsis - which the CDC this last fall raised to the status of a 'medical emergency'.

All lives have equal value. And Sepsis Alliance can save more lives with support from and in collaboration with the Bill & Melinda Gates Foundation.

Thank you for your support.

Review from #MyGivingStory

1

General Member of the Public

Rating: 5

After surviving sepsis in 1988, I was glad to find this great nonprofit alliance, raising the public's awareness of sepsis, by posting stories of victims and survivors of this little understood but deadly disease.

John58

Client Served

Rating: 5

Sepsis Alliance was invaluable to me after my Mom died with Septic Shock in 2010. I didn't know what Sepsis was and was stunned, utterly speechless, when the doctors at a Level 1 Trauma Center told us that Mom was going to die. We thought Mom had the flu; her only symptom was a shaking chill. Despite their best efforts, Mom went from walking into the ER and talking to being in an induced coma, on dialysis, having 8 IV lines and many other treatments, all in the same day. Mom died two days later. I reached out to Sepsis Alliance and the fine people there cared so much, listened to me and taught me a lot. I raise awareness of Sepsis whenever and wherever I can.

Previous Stories

General Member of the Public

Rating: 5

Sepsis Alliance informs and educates the public and healthcare professionals. It is a valuable resource for all in learning more about this devastating condition. I will always be grateful to Sepsis Alliance for all it does, in memory of my Mom, who died before our eyes with septic shock.

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1

General Member of the Public

Rating: 5

Sepsis alliance has been invaluable to me as a sepsis survivor. I've learned so much about sepsis that I never knew. I've also met other survivors, it's nice to know you're not alone. It's wonderful how SA educates the public and healthcare workers about this condition, and how they're fighting for mandatory sepsis protocols. I'm sure many lives have been saved due to this. It would've made all he difference for me if the ER I went to recognized sepsis as a medical emergency.

1

General Member of the Public

Rating: 5

I got sick in March 2016 with what I thought was just a sinus infection. 7 days later I was fighting for my life. I had strep throat, a sinus infection, DIC and double lower lobe pneumonia, that lead to becoming severely Septic. I had never heard of sepsis before. My husband and mom were called back only to be told they needed to call my friends and family to have them come say good bye, because I was too sick to live.
I spent 2 weeks on a ventilator, sedated and the next month learning how to do simple things again like washing my hands, brushing my teeth and walking.
My body still feels foreign to me and without Sepsis Alliance I would have never known that Post Sepsis Syndrome even existed and that I also had PTSD. The information on this site is amazing and I sat and cried for an hour because of all the information. And it was everything that I was dealing with.
It took my ICU doctors 2 days to figure out what was wrong with me, so more awareness needs to be shared with hospitals and doctors.
Thank you so much for all the work you and your team do!! It has definitely helped me more than words could ever express!!!

1

General Member of the Public

Rating: 5

no one should die from sepsis I lost my father although he had several nurses who should have known how ill he was it was overlooked I myself also got sepsis from changing his diabetic needle I have copd and got a stick from his needle. my father died while I was in the hospital for sepsis and although I called 911 they said I had the flu and the hospital could not do nothing. thanks to your campaign many lives can be saved my son who is running for our state rep in mi did get new fire men put on in westland god bless him and my sister who saved my life.

1

General Member of the Public

Rating: 5

As a survivor of sepsis, I found the Sepsis Alliance not only an invaluable source of information but a source of comfort for those who have lost loved ones of all ages to this frightening condition. Those of us fortunate enough to come through will continue to raise awareness through this non-profit organisation so that others will know what to ask and do should they, or a loved one, become affected. The Sepsis Alliance is doing a marvellous job.

2 Lulalu222

General Member of the Public

Rating: 5

I am a survivor of sepsis - I contracted it just in 2011 following abdominal surgery for bowel cancer. I had my colon removed, and the resection itself leaked. Fortunately, an eagle-eyed junior doctor noticed that something was up and insisted on a CT scan, despite the consultant disagreeing with her. I owe my life to that wonderful doctor.
I have recovered and now live a 'normal' life, but sepsis has changed me as a person. I was in intensive care for over a month and all my organs suffered. I had horrific hallucinations and still experience flashbacks. I was so weakened by the illness that I could not walk and could barely talk - I had severe memory problems and muscle weakness. People who don't know me would not suspect that I still suffer from side effects of sepsis; processing difficulties, some short term memory problems, weakness in my muscles, and a depressed tolerance for pain. Those who knew me before are aware of the changes in me, but relieved that I survived.
Finding information about sepsis was difficult for my family, and this website really provides help for those in a similar situation. It is overwhelmingly frightening, and hearing about others' experiences is incredibly helpful, as is reading about research and symptoms.

General Member of the Public

Rating: 5

My mom was diagnosed with sepsis in may of 2016 and unfortunately passed away from sepsis and liver condition on may 11th 2016.beautiful soul full of life got cut short...before her, i never heard of sepsis before.now in honor of my mom i make it a priority to spread the word about sepsis every chance i get.thankyou for Sepsis Alliance for doing the same.God bless

1

General Member of the Public

Rating: 5

After surviving sepsis, I started following everything related to sepsis and came across Sepsis Alliance. This organization immediately caught my attention with their personal stories from other sepsis survivors and of loved ones lost due to sepsis. I have learned so much from the information they have provided daily and they stand out to me in raising awareness. Sepsis Alliance is an excellent organization and great a great resource for those who had sepsis and those who want to learn about it.

General Member of the Public

Rating: 5

I had no knowledge of sepsis prior to my cousin contracting this illness. Now I am very informed and seek to inform as many people as I can through social media. Sepsis Alliance is a wonderful resource for knowledge and prevention, as well as knowing the signs to look for in a person who is on there way to septic shock. If there is one takeaway I've learned, it's Time Is Of The Essence! Know the signs and get medical attention asap. My cousin is doing well and eight months later she is determined to live life to the fullest for herself as well as her family. She is the most courageous, strong and determined person I know!

1

General Member of the Public

Rating: 5

The Sepsis Alliance allowed me to put into print the facts about the loss of my Wife, Maureen Aveyard, to this most horrible of conditions.
Neither of us were aware of Sepsis when my wife fell ill, symptoms were diarrhoea and sickness along with the odd few seconds of shacking and shivering. Working in a care home these symptoms were not unusual and the first thought was novo virus which clears in 48 to 60 hours. We were just passing the time until it cleared. It didn't and less than 48 hours after seeing the first signs of illness Maureen passed away. 1a Sepsis. 1b. pneumonia.
Being able to relate this on the Sepsis Alliance Web site helped me to clear my mind a little and I hope that awareness is raised as a result. In England we now have a saying at the first sign of illness, ask "Could it be Sepsis". Ask it loudly and clearly, and ask it of professionals who will take it seriously and can, hopefully, help. Be aware, Be very aware.
Thank you Sepsis Alliance.

Victoria73

General Member of the Public

Rating: 5

My mom was diagnosised twice with sepsis at the same hospital so the awareness was not there! This organization has certainly been helpful in getting awareness out for her! She lost her life to this infection. It's so important to spread awareness as it can be an infection that is preventable!

1

General Member of the Public

Rating: 5

I truly can't thank this organization enough for all the work they do to spread awareness of this horrible infection. I thank them also for allowing me to tell my father, Richard Gorton's story. My hope is that the more people that have knowledge of Sepsis the more lives can be saved, even one is worth the fight. I love and miss my father every moment of every day. Thank you Sepsis Alliance for allowing my father's story to be told. Each and every one of you are angels in this fight to help prevent Sepsis. -Stacey Gorton (Richard Gorton's daughter)

1 Kimberley C.

General Member of the Public

Rating: 5

My story starts out with a brown recluse spider bite that turned into necrotizing fasciitis and sepsis. I remember nothing except a few hallucinations. I came very close to losing my life because of all this and I have a poor immune system due to diabetes. I am alive but even 2 years later I'm still suffering from PTSD and severe depression from it. This site is wonderful. It has made me realize I'm not alone. Thank you Sepsis Alliance!

1 eap35770

General Member of the Public

Rating: 5

My scariest time of my life 12-15-14 - I had a very bad UTI and had already gone to my primary care Doctor earlier the week before and given medications for treatment - of course i am recounting these memories from my husbands accounts because from Dec 13- 2014 I really have no recollection of the events I was that sick - Dec - 15 - 2014 I was found incoherent by my husband - talking out of my head he said I was arguing with him because he said he was going to call an ambulance - well he did because I passed out - the next 10 days I was in a medically induced coma with basically no urine output - my organs were failing - I was in heart failure - simply put I was dying - I had severe septic shock - the Doctors were not telling my family much except that my chance for making it through this was 20 % - well all I can say is the wonderful staff of Doctors at Wellstar Cobb Hospitajl left no stone unturned - you have like a six hour window and praise God I hit it with an inch of my life - a lot happened to much to explain here while I was under ( the dreams , the nightmares , the waking up to finding out what had happened - I thought I had wreaked my car - I had no clue - I had to learn to walk again - to eat - and all I wanted to do was go home but I had and still have memory issues - fatigue - muscle soreness - PTSD - heart problems - kidney problems - liver issues - I fall all the time - I got MRSA - lets just say the new me is a complete work in progress - Sepsis Alliance has helped me so very much with there vast knowledge and message boards and being able to talk with people that have experenced the very things I went through - knowledge is power and all I can say is please support this very important Nonprofit - it will save life's and it very well may be your own - I am blessed by the Lord to still be here - and my heart hurts for some that never made it - ones that survived but lost limbs - I will never understand why I was saved and others were not but I do know that the old me ( that very sick girl died that day ) and the new me is still learning and with Gods grace I can call myself a suviver !! Today I am a work in progress and none of it could have been done without Sepsis Alliance - please find a way to support them please !! Never take for granted your time on this earth - I am a caregiver for my father who is 84 and suffered a stroke and can not walk he lives with us - I am a mother with 2 beautiful Sons and I am a grandmother to 3 gorgeous grandsons and last but not least I am a wife - a partner - I am married to my best friend without him I don't know where I would be - thank god for my family- my best friend and my daughter-in law they are my rock

1

General Member of the Public

Rating: 5

This site is doing a great job in bringing out the awareness in Sepsis.

General Member of the Public

Rating: 5

Their cause is so incredibly important
in spreading the urgent message regarding Sepsis awareness. I would highly recommend.

1

General Member of the Public

Rating: 5

With all of the misconceptions out there about sepsis, Sepsis Alliance is a vital resource for credible and reliable information about what this scourge is, how to recognize it and how to advocate for proper, effective care. Far too many people still die of sepsis every day, and yet most people don't have any idea that's the case or that they too might be stricken. SA gets the word out in a way that makes sense to everyone. Kudos!