I had "severe" sepsis and 28 days of 24/7 intravenous antibiotics followed by antibiotic pills, in a hospital and then even longer in a nursing home. The doctors and nurses never said anything about potential sepsis after effects but after getting home I certainly did have some, so online I went and soon found Sepsis Alliance, thank goodness. I had never even heard of sepsis yet the Sepsis Alliance website provided very useful answers to my questions. And that meant, and does mean, a lot to me. I thank you, Sepsis Alliance sepsisalliance.org !
Sepsis Alliance helped in my recovery by connecting me to stories of survival and knowing I am not alone. Their awareness raising is essential
I went into severe Sepsis shock the day after Christmas 2015- I just thought I was unwell following a shorter than usual discharge from hospital due to the holiday season.Luckily my surgeon has an angel called Kathleen as his practice nurse who,luckily for me took my phone call and told me to,return ASAP to my hospital.
Following a record triage in ER ,and many tests I ended up in emergency surgery as I had developed severe Sepsis shock- everything was shutting down from my kidneys onwards.i remember seeing my family crying and me not knowing why - until about 3 weeks later when my Infectious disease doctor was telling me ,I was 45 minutes from death.i don't recall much except awful nightmares and visions,and having no ability to control my body.Luckily I recover physically a bit,but was shot emotionally as I had a feeling of not really being here and questioning why I was here.After nearly two years,of ongoing confusion about myself and my conditions,I was lucky enough to find the Sepsis Alliance website and it was
Ike a light went on.I finally understood what was going on and. I was not alone in feeling as I do today.Like many others,I found myself crying with relief as I now had answers.Thank you for your information,stories from fellow 'survivors ' and ideas about what I have been going through.Thank you for giving me a part of my old self back by giving me information.I am in Australia so maybe our protocols might be different as our medical systems are very different but that does not detract from the value of this Alliance.
Wonderful to connect with so many people in recovery. Definitely helped me pull through!
Thank you Sepsis Alliance. You have helped me to understand what I went through and what other people go through!
Sepsis Alliance was invaluable to me after my Mom died with Septic Shock in 2010. I didn't know what Sepsis was and was stunned, utterly speechless, when the doctors at a Level 1 Trauma Center told us that Mom was going to die. We thought Mom had the flu; her only symptom was a shaking chill. Despite their best efforts, Mom went from walking into the ER and talking to being in an induced coma, on dialysis, having 8 IV lines and many other treatments, all in the same day. Mom died two days later. I reached out to Sepsis Alliance and the fine people there cared so much, listened to me and taught me a lot. I raise awareness of Sepsis whenever and wherever I can.
Sepsis Alliance informs and educates the public and healthcare professionals. It is a valuable resource for all in learning more about this devastating condition. I will always be grateful to Sepsis Alliance for all it does, in memory of my Mom, who died before our eyes with septic shock.
The information I've gained from Sepsis Alliance has been invaluable in terms of understanding all that my body went through and the after effects of Sepsis. S.A. saves lives by spreading awareness. They also provide info and support to those who have survived Sepsis!
We lost our son to Sepsis in 2014. The information and on-going support of the Sepsis Alliance has been invaluable. If the medical community knew more about Sepsis in 2014, our son might still be with us.
The Sepsis Alliance has gone above and beyond in helping us cope with losing our son to Sepsis. In addition, the information that they provide, we have been able to share with many family, friends and co-workers -- and in return, raise funds for their cause. They are responsive to personal requests and never cease to amaze me. The information on their website is great and helped us make serious decisions at a critical time in our lives.
My son was 14 when he was diagnosed with sepsis. It was the worst moments of our life and i was lucky to have this site for support and knowledge. Sepsis.org has been a place for me to browse though other stories and not feel so alone in this.
I am 4 years post sepsis shock. Without the sepsis alliance I would have had NO understanding of what had happened to me or how to fight for my care post sepsis. Four years ago when I left the hospital I was told to rest for a couple of weeks and I would be fine. I was not fine in two weeks. I went through 1 1/2 years not knowing what to think. Then I found Sepsis Alliance and quickly found, by reading the tales of other survivors, that I was not alone. The Sepsis Alliance has continued to educate me as new information, such as Post Sepsis Syndrome, came to light. It has provided documents I can use to educate my Drs and others. It has provided simple facts I can use to raise awareness on FB. Sepsis Alliance not only raises awareness, but equips others to raise awareness.
I am a septic shock survivor and my story has been published on the Sepsis Alliance website. The website has provided me with a lot of information and resources as I begin my recovery from Sepsis.
I found Sepsis Alliance to be user friendly, helpful and courteous. It's important for those who are chronically ill due to Sepsis to find answers in order to understand why & how their lives have been changed. I don't think the public is aware of these issues unless they or a member of their family are afflicted. Kudos to those who volunteer for Sepsis Alliance in order to help those who are looking.
I wish I could have found this organization a lot earlier than I did. It could have saved my niece's life. They spread awareness of a disease most people don't know exists. Not only that, but they educate the symptoms. They save lives!!! I'm glad that I have found this organization, because it has helped our family cope by reading other people's stories who have been stricken with Sepsis. They also let us share our little girl's story, so hopefully someone who reads it will be able to save another child's life! I am so grateful for the wonderful leaders at Sesis Alliance. They do an amazing job!
Almost a year later, I thought sepsis was just another word for infection. Then I found this website after I read about how Patty Duke died: Sepsis Alliance. I guess I never fully realized how much trouble I was really in. Then I started reading stories about similar experiences and symptoms...many much worse. I am disabled but thankful to be alive. This sepsis condition needs to be in the forefront of the things all hospitals and emergency look for when someone just continues to decline for no apparent reason. I am so glad I found this website and I continue to visit it and get emails from it.
I lost my mother to Sepsis and was able to find comfort reading other families accounts of their loss and survival of Sepsis. The information on the website was helpful for me in understanding the progression and cause of the disease. I also wrote a tribute memorial for my mother and it has already been featured on social media and the website. Thank you to the Sepsis Alliance for bringing this important medical issue out in the open and hosting honest discussions about the fatalities and loss as well as the survivors of Sepsis.
I told my sepsis story on the sepsis alliance website and it was truly an inspiration for me to read just a couple of the personal stories from others who have survived sepsis. Their website brings me hope and relief. I felt anxious because I have been sick with sepsis 3 times and twice went into shock. The memories sometimes come up in my mind as pictures and I was struggling with fear about getting sepsis again but not being strong enough to fight for my life. I googled sepsis and when I found this website my mind was put to ease and gaining more understanding about sepsis from the site was calming. I am thankful to those running the site.
Without sepsis alliance I would not have the information I needed to help my recovery from septic shock. There is little or no support for victims and their families in the UK. If you have cancer or any other critical illness there is support for you throughout your recovery but for sepsis survivors there is nothing. Thank you sepsis alliance for being there.
This organisation helped me to share my story of sepsis and raise awareness to others. It has helped me in so many ways.
Thank you! Thank you! Xx
I can only give these people 5 stars, but they deserve so much more!
I am a Fast Moving, flesh eating form
Of sepsis called Necrotizing Faceitus.
It is as nasty as it sounds!
I had never really paid attention to the
Severity of this illness, let alone really
New anything about it.
That's where the education that these
People provide comes in.
There are so many victims you will not believe it.
I'm not an alarmest, or anything of the kind, it's just the facts of the numbers of people that are affected!
This IS a very important site!
You can find my story on their site, and my motivation for why I am asking you for your support
Really terrific organization that is working to raise awareness around Sepsis and to educate on the symptoms of this illness. Without this awareness many people will lose their lives.
I personally am grateful to all the information on their site around recovery. The information helped me navigate the 3 months of my recovery with more hope, joy and gratefulness.
Thank you, Sepsis Alliance.