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2012 Top-Rated Nonprofit

SADS (Sudden Arrhythmia Death Syndromes) Foundation

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Nonprofit Overview

Causes: Health, Heart & Circulatory System Diseases & Disorders, Specifically Named Diseases Research

Mission: Your child or a young person you know may be at risk for sudden cardiac death due to an inherited condition. He or she will appear healthy, and in most cases, you will have absolutely no idea that something might be wrong. Once diagnosed, these conditions are treatable. Without diagnosis and treatment, they can be fatal. Nearly 4,000 children die each year due to undetected cardiac arrhythmias. One in 2,500 of them are at risk of a sudden cardiac arrest. These deaths can be prevented if more people are aware of the SADS warning signs. The Sudden Arrhythmia Death Syndromes (SADS) Foundation is dedicated to saving the lives and supporting the families of young people genetically predisposed to sudden death due to cardiac arrhythmias.

Results: We are making great strides raising awareness of SADS. More people are learning the warning signs, and contacting the SADS Foundation if they think their child may possibly be affected. We applaud this effort, and hope that soon - every person will know what SADS stands for, what the warning signs are, and what to do.

Target demographics: Children, young people, and families

Geographic areas served: World-wide

Programs: The sads foundation is dedicated to providing information, assistance and hope related to this disease. In fulfilling this mission, the organization has the following goals: education: to educate health care providers and the lay public to promote early diagnosis and treatment. Patient services: to serve as a physician referral resource and to provide information to physicians who care for patients with cardiac arrhythmias. Support services: to assist all those affected by the sudden death of a young loved one, or who have been diagnosed with a cardiac arrhythmia by providing informational materials, facilitating support groups, and maintaining an active networking program. Public awareness: to inform families, physicians, and communities about the genetic cardiac arrhythmias in the young, and thereby prevent sudden cardiac death in young people. Research: to encourage research on genetic cardiovascular diseases predisposing the young to sudden death.

Community Stories

2 Stories from Volunteers, Donors & Supporters



Rating: 5

SADS is an amazing organization committed to saving the lives of those affected by the variety of heart arrythmia conditions. They work dilligently to educate doctors, schools, and the general public on how to detect warning signs which claims the lives of many adults and youth; particularly young athletes. It's amazing that in this day and age many doctors miss the signs of SADS conditions, because they simply do not know what to look for. By supporting SADS, they are able to grow and continue to teach those that have the power to help save lifes.



Rating: 5

My wife died of Prolonged QT (SADS) in 1998. For the last 3 years I have helped organize a fun run event and donate all proceeds to the SADS Foundation. All of the staff at the SADS Foundation have been very helfpful and provided great support so that we could have a successfull event.