Helping parents through Raising Special Kids for approximately 12 years has been very rewarding. Each time I meet a new parent I can identify with what they are going through and I try to give them information from my own experiences and developmental disability certification training. However, Raising Special Kids is the catalyst in supporting, educating, and just being there for parents with children of special needs.
Keep up the good work RSK and congratulations to an agency that follows through with their mission statement.
Raising Special Kids puts a personal face on families that have children with disabilities. I often host medical residents in my home and share the story of how we received Josie's diagnosis. It allows me the opportunity to educate new doctors on Cerebral Palsy and the effect that diagnosis has on us as a family. On a very personal level I hope that new docotrs undertand that their choice of words echo foreaver in our mind. That information empowers us as parents and that Raising Special Kids as an organization is family friendly and provides accurate, up to date information on disabilities and a network that guides us through the maze of this new challenge.
It is an absolute pleasure to host resident doctors in my home, share our story about our disabled daughter, and further educate them on the necessity of organizations such as Raising Special Kids. It is a relief to these residents to know that there is a capable organization with an abundance of resources to where they can refer their patients and families.
Raising Special Kids has been an encouragement to my family through some really difficult times. They were available for direction and helped us network with other families. Their events have been very well planned and well received. I especially enjoyed the Resilient Relationships workshop. They are a great resource for families who "Raising Special Kids."
Raising Special Kids was there for me from the earliest months when we had yet to get the (eventual) diagnosis of autism for our daughter. We have participated in the residency training program for several years. What a great feeling of giving back it is to help our medical providers have a more realistic ... hopefully more empathetic and knowledgable ... view of what it's like to be a family living with a child who has a disability. Sharing, one on one, some of the very personal challenges (many uncomfortable, emotional, and not easily shared) can be a powerful experience for both parties. A wonderful organization!
Raising Special Kids has helped so many Doctors in Training better understand how to dialog with our special needs families. This resident training gives a wider base of knowledge for our doctors and thus better service for our special needs patients.
Raising Special Kids has been a tremendous help, comfort and encouragement to countless individuals and families who wrestle with some of the toughest issues people have to face. I have volunteered on several occasions and have seen their work up close and first hand. Integrity and honesty are at the forefront of this great agency and those who work with them know it. It is a great personal benefit to share in the work they do in the Valley of the Sun. They facilitate amazing results with the staffing they have and volunteers they recruit. A lot of us have had our lives changed for the better by this group of caring people.
This organization has helped so many families to move past the hard times in life and learn valueable life lessons about the true meaning of family.
Since my almost 19 daughter was 4 months old Raising Special Kids has touched my life. In the early years it was through guidance, support and the knowledge other volunteers had to guide me through the craziness of raising a medically fragile child. What rights did I have, what was best for her and how to neogotiate the very scary school system where at times you feel very out numbered. As my daughter grew older and more stable, it was time to give back and I decided to volunteer to hopefully help other parents fight the maze that I felt I had somewhat successfully managed through Raising Special Kids support. I became a Parent to Parent Volunteer and helped other families, they referred me to apply for the Special Education Advisory Panel to the State Board and am now serving on my 3rd term and over the past 3+ years have become a parent forum speaker, helping bring the reality of a family with a special needs child to those who may be unfamiliar or just beginning their adventure into this world. I have always gained more from the partnership than I've given, the relationships, the knowledge and support have been priceless.
Volunteered at various events to help advocate for IWD or bring awareness to the general public of the difficulties the IWD face each day. -We still have buildings where IWD cannot get through the front door because the modern buildings are inaccessible for IWD. -Due to unpaved roads, IWD are not able to receive immediate medical attention. -The insurance they have relied on is being changed. Much education and support is needed for IWD, as well as our representatives and leaders.
Raising Special Kids has been in existence for over 30 years. Their "Tag Line" is "families helping families." This takes many forms, shapes and avenues. I am very proud to be asscociated with and active in touching the lives of families as they experience the challenges in raising children with special health care needs. Raising Special Kids offers family-centered support from the Board of Directors, at the top level, through the staff, volunteers and then directly to families and their children. There are no fees or charges to families.
Raising Special Kids is dedicated to providing a catalyst for family to family support in the special needs community. It is very difficult to receive an unfavorable diagnosis for a child or family member. You feel lost and overwhelmed. Raising Special Kids provides information on many different levels but most importantly they match you with another family who has been through this and knows what the next steps are. It saves a lot of time and is very comforting to know others in similar situations that can ease your burden. Raising Special Kids also helps in providing the resources you might need for both the newly diagnosed family and the peer family. Education is also an important role of Raising Special Kids. They help parents through getting the necessary provisions for the child to succeed is the school environment. They also educate doctors and nurses on the best way to interact with patients and families of patients with special health considerations.