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Prostate Cancer International

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Nonprofit Overview

Causes: Cancer

Mission: Prostate Cancer International will transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

Target demographics: Men who are concerned about their risk for or who are diagnosed with prostate cancer, and their familes

Direct beneficiaries per year: Between 1500 and 3000 people every single day of the year through our online initiatives

Geographic areas served: America and across the globe

Programs: The "New" Prostate Cancer InfoLink (a prostate cancer news service) and its associated social network (a prostate cancer-specific discussion form with > 6,000 members), along with other communication and advocacy initiatives.

Community Stories

58 Stories from Volunteers, Donors & Supporters

1 Ron_50

General Member of the Public

Rating: 5

I live with very advanced prostate cancer in Melbourne Australia. I am also involved in academic research, albeit not medical. PCI offers me the perfect gateway to the most up-to-date science research relevant to my situation. Plus insightful and realistic explanations and commentary. It has helped me understand the options available to me now and in the clinical trial pipeline. I attend an excellent cancer research hospital that is at the leading edge, so PCI helps me ask intelligent questions and get down to details. I will continue to trust and depend on the excellent reporting by PCI.

1

General Member of the Public

Rating: 5

I regularly follow the prostate cancer news on the prostatecancerinfolink.net website. This is my primary means of educating myself about new developments, and is an indispensable tool for me. Mike Scott and Allen Edel are amazing, both in the time and energy they put into preparing articles, and also in responding to readers' comments!

1

General Member of the Public

Rating: 5

A most informative and timely source of information for those battling prostate cancer. I personally peruse dozens of technical info on this is the best.

1

General Member of the Public

Rating: 5

Am grateful for the comprehensive, careful and clearly written advanced prostate cancer information provided by this organization.

1

General Member of the Public

Rating: 5

Hi,
I am extremely grateful for keeping me aware about the news and trends in prostate cancer treatments after total prostatectomy, which I had to undergo in November 2014, at the highly specialized Martini-clinic in Hamburg, Germany.
Your updates help to provide some clarity on expectations for future therapeutic measures, in case my PSA increases further.
Your comments hep to realize the controversial trends in postop treatments.
Please continue the way you work and help us all to keep us updated.
Thanks,, Peter Koerfgen, Switzerland

1

General Member of the Public

Rating: 5

The "New" Prostate Cancer Infolink, under the auspices of Prostate Cancer International, is one of a kind. I know that I can read the Infolink's analysis of any new study or publication and rely on that analysis completely.

Previous Stories
2

General Member of the Public

Rating: 5

I rely on The New Prostate Cancer InfoLink--a part of Prostate Cancer International--to provide me with daily e-mails concerning current issues regarding prostate cancer. Those e-mails are extremely well written and very informative, and provide links to the studies, reports, and articles that the e-mails are discussing. I rely on those e-mails to keep me current on what is going on in the field of prostate cancer.

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1

General Member of the Public

Rating: 4

I have followed The "New" Prostate Cancer Infolink since prior to my radiation treatment for prostate cancer 4 years ago. I find most of the articles interesting (but I must admit some are over my head technically). Still worth following to see what's new in treatment and past results. Especially today's article "Does ADT increase risk for all types of dementia?" as I had that regimen in conjunction with my radiation treatment.

1

General Member of the Public

Rating: 5

Really great charity providing support, information and reading materials for every stage of those with prostate cancer and treatments

1

General Member of the Public

Rating: 5

This is probably the best source of unbiased reviews of reports, studies, and research related to prostate health issues including BPH and Pca. I rely on Prostate Cancer International to keep track of published research and provide reviews of the most relevant and timely issues. Without the work of PCI, I (and others) would have no way of keeping abreast of prostate cancer issues and research.

1

General Member of the Public

Rating: 5

I was diagnosed with prostate cancer 8 years ago. I did a great deal of research and found Prostate Cancer International to be by far the best website. Because of their excellent information I chose Active Surveillance, before it was well known, as a good choice for me and some patients. For me it delayed having to have surgery and its unfavorable side effects for only 4 years but for many it can delay the need for surgery or other treatment indefinitely.

Previous Stories
2

General Member of the Public

Rating: 5

The New Prostate Cancer Infolink web site has been a god send to me. The wealth of information with excellent commentary by the moderator providing balanced conclusions led me several years ago to go on active surveillance before it was popular. This saved me so far from an operation and the almost certain bad side effects. Tom Loucks

1

General Member of the Public

Rating: 1

I don't know anything about you. You'll have to send me some information.

1

General Member of the Public

Rating: 5

The New Prostate Cancer InfoLink is an utterly invaluable news aggregator for men and their families confronting a prostate cancer diagnosis. The site surfaces current articles and research on the subject, providing objective commentary to help you make heads or tails out of the often conflicting information that comes out. They dissect dense research into readily digestible nuggets that men can use in their deliberations and decision-making process. If you peruse the site long enough, I assure you that you will become sufficiently well-informed for virtually any conversation with your doctor, significantly reducing the intimidation factor many of us contend with.

1

General Member of the Public

Rating: 4

This information was very valuable to me because i got to read facts of personal experiences that relate to my situation. I have not had the oppertunity to hear from people with similar symptons and situations. It made me relax a little more reading about others who are facing similar problems. The people who take part in this were quick to answer my questions and it helped me make decisions about what type of treatment to choose. I am very thakful that i became a part of this group and i appreciate the help.

1

General Member of the Public

Rating: 4

Very reassuring to be able to contact the experts behind the website and get their opinions on your situation as you progress through your own concer pathway

1

General Member of the Public

Rating: 5

I am the spouse of a prostate cancer survivor. During the early days of the disease I used this sight to gain information from other cancer victims. After the surgery (non-nerve sparing) I read about how people coped. During radiation and hormone therapy we did the same. This site was a saving grace. It made me feel less alone. There is almost more information than a person can read, but that is a good aspect.

1

General Member of the Public

Rating: 5

New Prostate Cancer Infolink NPCI is an operational service of PCI. I needed to find out as much as possible about prostate cancer when my father was diagnosed with terminal prostate cancer. He succumbed to prostate cancer two years ago. Since I first started following it, NPCI has been an excellent an frequently updated source of information about appropriate prostate cancer treatment and new developments in treatment. Obviously I'm biased, but NPCI is probably the most readily accessible source of patient appropriate information about the PSA screening test for prostate cancer. In addition to timely news commentary, notification of published research and new clinical trials, NPCI also provides sophisticated, on point, response to questions and comments on new postings. NPCI is an awesome resource for those interested in prostate cancer treatment.

1

General Member of the Public

Rating: 5

Diagnosed and RP in May 2007. The info link has beeb a beam of hope without having to become involved in support group or otherwise. I read it almost every night. Very informative without agenda of promotion.

Previous Stories
1

General Member of the Public

Rating: 5

I was diagnosed with prostate cancer in 2007, radical prostatectomy in May 2007, with chemical recurrance in May 2009. The aprostate Cancer Intl. site has provided invaluable information on many aspects of this journey, and I read it on a daily basis. It has been a better source of useful information than resources that I have investigated and/or purchased. I have shared information with my treating Urologisrt/surgeon that he was unaware of. This site provides excellent information and support to those of us that have this disease.

1

General Member of the Public

Rating: 1

This November will be the 5th anniversary of my high grade prostate cancer diagnosis. After much research and consults with conventional and alternative doctors, I made the decision to go the alternative route and with God's help, my two alternative doctors, my conventional urologist and personal changes on diet, exercise and mind monitoring I am better now than prior to the diagnosis. It is very sad and discomforting that you maintain a site that just promotes the VERY process that most honest doctors are acknowledging that it is very far from providing a cure for this type; actually any type of cancer.

1

General Member of the Public

Rating: 5

When my husband was diagnosed with prostate cancer this year. Without "New" Prostate Cancer InfoLink, the amazing moderators, contributors, medical specialists and treatment links it provides, I think we would have emotionally drowned. We got a response to my first post within a couple of hours-unheard of on most internet medical info sites. The support and information we got allowed us to calm down, investigate our options, make a decision and be hopeful. This cancer will be an ongoing battle but at least I have a reliable source to turn to when we need fresh troops.

1

General Member of the Public

Rating: 5

This is a great site and helpful for patients and family to discuss shared issues. It also promotes advocacy and awareness and is well run.