I appreciate the site master on Prostate Cancer Infolink being able to distill complex articles into terms a lay person can understand and the ability to just publish pertinent articles. Many have bee of great use and I have catalogued some for future reference.
Wonderful unexpected immediately response and unfailing support and information from this site - many thanks!
As a prostate cancer survivor, I actually look forward to your daily email updates on news and studies related to prostate cancer. I find them very informative as well as useful in providing me with a continuing update on the state of knowledge regarding prostate cancer. Thank you!
I was diagnosed with prostate cancer in august 2011. My PSA was 8.44. The biopsy showed gleason score of 7and T2b stage prostate cancer.
I was 56 years old at the time with no health issue and very active. The amount of information and misinformation was overwhelming along with the stress of cancer diagnosis. The New Prostate Cancer InfoLink provided discussions and personal experiences which helped to make a decision on my treatment.
I am a PCA survivor who has robotic radical prostatectomy surgery 2 years ago and have found this site to be one of the few places where ongoing, in depth information and new developments are reported and relayed. I have a brother 7 years younger than me, so I have an incentive to keep up with current developments in treatment - so that if, God forbid, he should be diagnosed with this disease, I want to be ready to help him make good decisions.
I was diagnosed with PC this past December, received HT and IMRT radiation through this past spring. Since diagnosis, I have been frequenting numerous PC oriented websites to learn anything I can about this disease i now have. I have been especially impressed with the site www.prostatecancerinfolink.net for several reasons. It is well organized, provides a good variety of PC related topics, and, especially valuable to me, provides rapid response answers to questions that one can enter to them online. I have been especially impressed with the depth of knowledge and rapid response time of Mike Scott, one of the resource persons on that site.
The information and support from this site, and the ability to have information remain confidential has been extremely helpful to us as we go through this unwanted journey.
I am a 59 year old man who was diagnosed with prostate cancer in 1999. Although I had surgery, followed by radiation therapy, followed by androgen-blocking therapy, the disease continued to progress and has metastasized to one area of my spine. The disease progression has been significantly retarded, I believe, by my participation in several clinical trials over the past several years, at Johns Hopkins and elsewhere. "The 'New' Prostate Cancer Infolink" is the best source of information I have found in my considerable research about cutting-edge prostate cancer issues, and especially about new drugs and clinical trials. It is of great importance to patients like me to have such a resource available. For example, the daily posts or blog that I receive from the sitemaster by email have helped me--and my physician--decide upon the appropriate sequencing of the several clinical trials for which I have been eligible. The issue of optimal sequencing is highly uncertain but is important, because choosing to participate in certain clinical trials early on can disqualify a patient from participating from other, potentially beneficial trials later on. I particularly like the site's daily blog because it is written in language that a layperson (like me, an antitrust lawyer) can readily understand, but the information is not simplistic or "dumbed down," and the blog provide links to articles and resources that are useful even to my oncologist. (My oncologist runs clinical trials himself, but he can't get to every conference that the Infolink sitemaster reports on.) In other words, the presentation of the information achieves an excellent balance of technical detail and accessibility. I am grateful for the efforts of those involved and for the clear, direct prose style of the blog.
I was first diagnosed with prostate cancer five years ago but only became aware of the PCI website in the last year. It is excellent and the best website I have found. In the U.S the only other website I have used is Malecare, whcih is good but is v ery US centric, while PCI has a good internatioal side to it. I have found nothing of value outside of these two websites. I wish it every success.
I found the advice given to me on this web sight invaluable. It answered all my questions and helped me come to terms with the advice given and that was to have radical surgery. I have since had the operation (two months ago) and have recovered very well. I followed all advice given especially in choosing a doctor who is very experienced with this kind of surgery. I have my first PSA blood test done next week and am fully confident that all the cancer has been removed. Best Wishes. Ray Stubbings.