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2016 Top-Rated Nonprofit

Prostate Cancer International

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Nonprofit Overview

Causes: Cancer

Mission: Prostate Cancer International will transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

Target demographics: Men who are concerned about their risk for or who are diagnosed with prostate cancer, and their familes

Direct beneficiaries per year: Between 1500 and 3000 people every single day of the year through our online initiatives

Geographic areas served: America and across the globe

Programs: The "New" Prostate Cancer InfoLink (a prostate cancer news service) and its associated social network (a prostate cancer-specific discussion form with > 6,000 members), along with other communication and advocacy initiatives.

Community Stories

68 Stories from Volunteers, Donors & Supporters

NOTSDR

Client Served

Rating: 5

A patient should not make any treatment or diagnostic decisions without first consulting with Sitemaster's commentaries. Truly one of the few unbiased and accurate sources of information, analysis, and advocacy on the web for all stages of prostate cancer.

Previous Stories
1

Client Served

Rating: 5

I have posted my reviews on this site in the past, and I can add that PCI continues to be the premiere non-profit for unbiased, truthful, critically constructive , and evaluative reporting on prevention, diagnosis, and treatment of prostate cancer. I would strongly encourage any person who wants to stay on top of the latest prostate cancer news to subscribe to PCI. The PCI "Sitemaster" not only attends and reports on new abstracts presented at professional medical conferences and he comments on the published results of recent clinical trials, but he personally responds to questions and comments from his subscribers. The PCI site has a link to enable a person to search for all articles published on the site by subject area . The distinguishing feature of PCI is the Sitemaster who has the scientific and medical knowledge to independently and accurately evaluate and opine on prostate cancer news stories, media releases, medical abstracts, and clinical trial results. Sitemaster and PCI have no motive other than educating and advocating for the patient. For those interested, PCI also has a social network for support where the patient can ask questions of other patients, participate in discussion threads, and communicate with Sitemaster on all topics related to prostate cancer. If you have a question about prostate cancer and you want an unbiased, accurate, and truthful answer, please visit the PCI site. I have advanced prostate cancer and have used the PCI site dozens of times and read the posts on a daily basis.

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2 Chris75

Client Served

Rating: 5

Great support from qualified and caring people...thank you

Previous Stories
1

General Member of the Public

Rating: 5

I got great support when i needed it most-thank you so much.

1

Client Served

Rating: 5

This website provides timely annotated reviews of the latest research, a useful forum to ask questions and a social network so one can coordinate with other patients, as well as patient information on a very wide variety of prostate cancer issues.

1 Mike194

Client Served

Rating: 4

I find the information posted on the PCI, "New Prostate Cancer Infolink" to be timely, relevant, and above-all, well balanced. I appreciate postings with which the site master(s) disagree and I value their comments explaining their disagreement.

As a PCA patient, I received triple therapy: HDR, IGRT, and ADT. As I read the postings, I try to put myself (with that complement of treatments) into each article.

1 Bill M.

Client Served

Rating: 5

I found out I had Cancer in 2005. I discovered Prostate Cancer International several years later. I wish I had known about PCI at the beginning. PCI is the very best source of information and support that I have found, and continues to be the best. The information is timely, accurate and PCI goes to tremendous effort to make sure it is understandable. Their social network support is perfect and like PCI itself, compassionate.

Previous Stories
1

Client Served

Rating: 5

I have been using The "New" Prostate Cancer Info Link for about 5 years. It is excellent! I wish I had been connected with them before I had my surgery - their explanations are on topic and very clear. I live in Canada, and while I am very pleased with our health care programs, in terms of being patient centred and up to date, the help I received from The NPC Infolink was vastly superior to what I received from our provincial prostate cancer program. NPCI goes put of its way to understand and respond to patients needs and concerns. It is remarkable. And it also offered a blog service, expertly monitored, that connected me to other men who were dealing with prostate cancer. I recommend this service to anyone, anywhere in the world.

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1

Client Served

Rating: 5

Having a free resource this excellent was far above and begone anything I could have imagined after cance diagnosis. That was nearly a year ago and I still tell people about it all the time,.

1 John407

Client Served

Rating: 4

This site gives up to date reviews of the scientific literature. Then has personal comments to clarify the science. An excellent balanced site. They don't
Post unless the information is important and they are very temperate in their reviews.

1

Client Served

Rating: 5

Prostate Cancer International and their New Prostate Cancer Infolink, provides the best source for news and information in the world of Prostate Cancer (PCa). When I was totally confused by all of the various internet sources, this site was the one I repeatedly came back to for solid understanding and knowledge. The team at Prostate Cancer International provides objective comments and opinions to help a layperson understand the latest PCa news and information and determine what is worthwhile, and what is not.

1

Client Served

Rating: 5

This is one of, if not THE best source of prostate cancer information on the web that is tailored for sophisticated patients and their partners caregivers rather than for scientists and physicians. The information is high-quality, well-sourced, accurately summarized, and the interpretation of it is cautious and sound.

1 Jim_175

Client Served

Rating: 3

Has good up to date information, nice opportunity to net work.

1 Bob_112

Client Served

Rating: 5

I appreciate the site master on Prostate Cancer Infolink being able to distill complex articles into terms a lay person can understand and the ability to just publish pertinent articles. Many have bee of great use and I have catalogued some for future reference.

1

Client Served

Rating: 5

Wonderful unexpected immediately response and unfailing support and information from this site - many thanks!

1

Client Served

Rating: 5

As a prostate cancer survivor, I actually look forward to your daily email updates on news and studies related to prostate cancer. I find them very informative as well as useful in providing me with a continuing update on the state of knowledge regarding prostate cancer. Thank you!

2

Client Served

Rating: 5

I was diagnosed with prostate cancer in august 2011. My PSA was 8.44. The biopsy showed gleason score of 7and T2b stage prostate cancer.
I was 56 years old at the time with no health issue and very active. The amount of information and misinformation was overwhelming along with the stress of cancer diagnosis. The New Prostate Cancer InfoLink provided discussions and personal experiences which helped to make a decision on my treatment.

3

Client Served

Rating: 5

I am a PCA survivor who has robotic radical prostatectomy surgery 2 years ago and have found this site to be one of the few places where ongoing, in depth information and new developments are reported and relayed. I have a brother 7 years younger than me, so I have an incentive to keep up with current developments in treatment - so that if, God forbid, he should be diagnosed with this disease, I want to be ready to help him make good decisions.

1 Stephen F.

Client Served

Rating: 5

I was diagnosed with PC this past December, received HT and IMRT radiation through this past spring. Since diagnosis, I have been frequenting numerous PC oriented websites to learn anything I can about this disease i now have. I have been especially impressed with the site www.prostatecancerinfolink.net for several reasons. It is well organized, provides a good variety of PC related topics, and, especially valuable to me, provides rapid response answers to questions that one can enter to them online. I have been especially impressed with the depth of knowledge and rapid response time of Mike Scott, one of the resource persons on that site.

1

Client Served

Rating: 5

The information and support from this site, and the ability to have information remain confidential has been extremely helpful to us as we go through this unwanted journey.

2

Client Served

Rating: 5

I am a 59 year old man who was diagnosed with prostate cancer in 1999. Although I had surgery, followed by radiation therapy, followed by androgen-blocking therapy, the disease continued to progress and has metastasized to one area of my spine. The disease progression has been significantly retarded, I believe, by my participation in several clinical trials over the past several years, at Johns Hopkins and elsewhere. "The 'New' Prostate Cancer Infolink" is the best source of information I have found in my considerable research about cutting-edge prostate cancer issues, and especially about new drugs and clinical trials. It is of great importance to patients like me to have such a resource available. For example, the daily posts or blog that I receive from the sitemaster by email have helped me--and my physician--decide upon the appropriate sequencing of the several clinical trials for which I have been eligible. The issue of optimal sequencing is highly uncertain but is important, because choosing to participate in certain clinical trials early on can disqualify a patient from participating from other, potentially beneficial trials later on. I particularly like the site's daily blog because it is written in language that a layperson (like me, an antitrust lawyer) can readily understand, but the information is not simplistic or "dumbed down," and the blog provide links to articles and resources that are useful even to my oncologist. (My oncologist runs clinical trials himself, but he can't get to every conference that the Infolink sitemaster reports on.) In other words, the presentation of the information achieves an excellent balance of technical detail and accessibility. I am grateful for the efforts of those involved and for the clear, direct prose style of the blog.

1

Client Served

Rating: 5

I was first diagnosed with prostate cancer five years ago but only became aware of the PCI website in the last year. It is excellent and the best website I have found. In the U.S the only other website I have used is Malecare, whcih is good but is v ery US centric, while PCI has a good internatioal side to it. I have found nothing of value outside of these two websites. I wish it every success.

1

Client Served

Rating: 5

I found the advice given to me on this web sight invaluable. It answered all my questions and helped me come to terms with the advice given and that was to have radical surgery. I have since had the operation (two months ago) and have recovered very well. I followed all advice given especially in choosing a doctor who is very experienced with this kind of surgery. I have my first PSA blood test done next week and am fully confident that all the cancer has been removed. Best Wishes. Ray Stubbings.