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Patient Advocate Foundation, Inc.

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Nonprofit Overview

Causes: Education, Educational Services, Health


Patient Advocate Foundation was established in 1996 as a national 501(c)3 organization with a mission of “safeguarding patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.” PAF serves as an active liaison between patients and their insurer, employer and/or creditors to resolve insurance, job retention, and/or debt crisis matters relative to their diagnosis through case managers, doctors and health care attorneys.

Programs: Patient Advocate Foundation's Co-Pay Relief, A Patient Assistance Program On 4/1/04, PAF opened Co-Pay Relief, a cash assistance program to provide co-payment assistance for medically and financially qualified insured patients who have prescription drug coverage but cannot pay to access their prescription drug coverage. Support is currently available for patients with Breast, Lung, Brain, Colon, Kidney, Head and Neck, Pancreatic and Prostate Cancers, Autoimmune Disorders, Diabetes, Lymphoma, Sarcoma, Macular Degeneration, Myelodsyplastic Syndrome, Myeloma, Osteoporosis and Chemotherapy Induced Anemia/Chemotherapy Induced Neutropenia. This premier program has been approved by the Office of the Inspector General. A Modification to Advisory Opinion 04-15 was received on 8/29/08, increasing the number of available disease categories from 27 to 43. Hispanic/Latino Outreach Program The Hispanic/Latino Outreach Program was implemented in 2001 with offices in New York and California staffed by bi-lingual case managers. This program seeks to improve access to healthcare for the Hispanic/Latino community. PAF also provides educational materials in Spanish. When the program was implemented in 2001, 1.24% of all PAF patients were Hispanic/Latino. For FY 07/08, 8.62% of all patients served were of Hispanic/Latino descent. National African American Outreach Program PAF's National African American Outreach Program was initiated towards the end of the 2004 fiscal year. This program is designed to reduce health care disparities and assist individuals by disseminating information to those who are generally unable to receive reliable health care. In FY 07/08, 17.07% of the patients served by PAF are African American. Local and National Outreach Initiative During FY 07/08, PAF staff attended over 600 local, regional or national conferences either as a participant or as an exhibitor. This included conferences such as the National Sickle Cell Disease Program Conference, the Association of Oncology Social Workers Conference, The Oncology Nursing Society Annual Meeting, The Association of Community Cancer Centers Conference, The National Comprehensive Cancer Network Annual Conference and American Society of Clinical Oncology. Publications Department The newest publication is within PAF's "A Greater Understanding..." series of brochures entitled "Second Opinions: Know Your Rights and Options." The majority of PAF authored publications are also available in Spanish. All of PAF published educational publications are provided at no cost and can be obtained via internet by downloading from the PAF website, www.patientadvocate.org. Med CareLine Division In November 2006, PAF launched the Colorectal CareLine (CCL), a patient/provider hotline, designed to provide sustained assistance to patients who have been diagnosed with colorectal cancer and are seeking educational resources, direct assistance with access to care issues and/or financial aid for select patient needs. In November, 2008, the second Med CareLine program was launched, the Lymphedema CareLine to assist breast cancer patients with access to a test the determine if the patient is prone to lymphedema and through early detection, can almost always avoid the disease. PAF/American Cancer Society Partnership In May 2008, PAF entered into a partnership with the American Cancer Society to receive referrals from the ACS Patient Navigator Program. These services are an extension of the services provided by ACS. The Lance Armstrong Foundation In FY 07/08, PAF celebrated it's 4th year of the partnership with the Lance Armstrong Foundation and the LAF LiveStrong SurvivorCare Program. Patients who reach out to LAF and are in need of social service programs and access to healthcare are referred to PAF for assistance. Since inception of the partnership, PAF has assisted 5,876 patient referrals.

Community Stories

1 Story from Volunteers, Donors & Supporters


Rating: 5

I am a patient volunteer with the Patient Advocate Foundation and do guest speaking on occasion. If it were not for PAF, I would not be able to do so. I have been in the battle against cancer since 1999 and in 2006 came up against my most challenging battle. I am currently fighting Stage IV Colon Cancer and found myself getting deeper and deeper in debt with patient copays until I came in contact with the Patient Advocate Foundation.
Their patient assistance program has been very helpful in my battle against cancer, as it gives me one less thing to worry about. If I had to keep worrying about the terrible debt of copays, I would have given up my fight 4 years ago. Thanks to the Patient Advocate Foundation, I can continue my battle, and still receive assistance with my copays.

Review from CharityNavigator