The Ovarian Cancer National Alliance changed my understanding of life as a survivor of ovarian cancer. First, as a client, I learned about my disease through their education programs. Then I learned about empowerment, testifying on behalf of other women with the disease. Through their outreach efforts, we engaged the underserved and under-informed. We became the voice of patients to healthcare providers and policy makers, and made substantive change. This is a charity that affects every aspect of ovarian cancer - patients, clinicians, researchers, donors, caregivers, lawmakers and the public. Serving on their board is the most honorable role of my life.
I was diagnosed with Stage 3 C ovearian cancer in May 2010 and didn't know a thing about this disease. After I was discharged from the hospital I went looking for a website that would answer my questions. I came upon the Ovarian Cancer National Alliance and learned so much. My family and myself learned what to expect. Since that time I have gone back to this website to learn different things and have help in their fund raising in the months of September. I will do anything to help OCNA to raise awareness of Ovarian Cancer so the next woman doesn't have to go through what I did. Thank you OCNA, you have helped me more than you know.
It has now been 17 years since my diagnosis with advanced ovarian cancer. Fortunately for me, that was also the year that the Ovarian Cancer National Alliance was founded. Through every twist and turn of this journey, the Alliance has been with me. I count on the Alliance for accurate and up-to-date information about the disease. The organization has afforded me a place to use my voice for all women diagnosed with ovarian cancer. Each year as I attend their National Conference, I see the far reaching effects of the Alliance, turning survivors into thrivers. In the past two years I have watched in awe as the Alliance has worked to bring groups together to advance our cause and research. I am proud to be associated with this organization which represents our community so well.
As a survivor I have had a great deal of interaction with OCNA over the last 15 years and can only say that it is by far one of the most outstanding nonprofits I have encountered. A wealth of information about the disease, resources for the patient and family, concern and assistance with the challenges many of us face not only physically and financially but also emotionally. OCNA is passionate about awareness of ovarian cancer for all women, physicians and future health professionals and has an amazing staff and cadre of volunteers to accomplish this mission. The staff's enthusiasm is infectious and motivating. If you don't believe it, try saying no to attending the annual march to Capitol Hill! The staff is small in number but extremely commited to their jobs. If they do not have an answer to your question, they will work hard to get the right information to you. I know how hard the board works to make sure donations are used in a manner that will have the most impact for survivors and all women at risk of developing ovarian cancer. Proud to give my dollars to this major force on the TEAL TEAM.
For ovarian cancer survivors OCNA is a godsend - advocating for us in Washington, D.C., gathering us together for an inspiring, informative, and encouraging annual conference, and helping its partner members to educate women and advocate for better awareness of ovarian cancer and its symptoms. OCNA is an excellent example of a nonprofit - great organization, great results, and great people!!
If you have been touched by ovarian cancer, you must know OCNA. They are the clearinghouse for all information about the disease and new treatments. They are also the umbrella for local chapters that work on getting the word about about awareness and that raise money for research. But the most amazing program is Survivors Teaching Students. Ovarian cancer survivors go into medical school classrooms and describe their experiences so that the doctors, nurses and other medical professionals of the future will keep this disease in mind.
The Ovarian Cancer Naional Alliance has provided us, as a small local Ovarian Gynecologic Cancer Alliance in a small town, a larger National presence and a BIG voice. The legislative branch extends opportunities and include us in their year round monitoring and dogged lobbying on behalf of women's health issues in the government process. The good that they do is unmeasurable. The facilitators have nurtued us when we were just learning and beginning by providing awareness material and expertise. The Board and Officers continue to listen to our ideas, our concerns, our focus as it changes and incorporates the essence of all these good things into their annual business plan. We appreciate their ear as well as their voice. The organizers and planners of the National Conferance feed our need for knowledge and allow us time for kinship and comaraderie. We approach the "Hill" on Lobby day as an inspired Tide of Teal, determined to be heard and make a diference. Every conferance is differnt and each one has a particular character. It remains a good thing and an inspiration for the next year.