Mission: The National Uterine Fibroids Foundation (NUFF), founded in 2000, began as a grassroots organization in 1998 and grew out of the need for women to gain access to objective, scientifically and medically based, information about treatment options for uterine fibroids BEYOND the hysterectomy. As an organization, NUFF has five mission goals: 1. To provide information to the public about the diagnosis of, and treatment options for, uterine fibroids and related conditions of the reproductive systems, and the right to receive informed consent from medical providers; 2. To advocate for the rights of all women to maintain independent choice in the matter of deciding upon treatment options; 3. To facilitate research studies conducted on the cause of, treatment options for, and patient outcomes associated with treatment of uterine fibroids and related medical conditions; 4. To promote alternative to hysterectomy in an effort to reduce the number of unnecessary hysterectomies performed on women each year in the United States; 5. To provide support to internet developed women''s health groups that provide services to women recovering from treatment choices that resulted in a negative outcome and/or reduced Quality of Life related to uterine fibroids and/or other conditions of their reproductive systems.
Programs: NUFF's programs include a toll free helpline, educational brochures, an online support group, and the continuing development of a website portal for information dissemination. In addition, we host public lectures on uterine fibroids and treatment options. NUFF also assists women and physicians in developing an internet presence that is medically related to uterine fibroids through website development or support group maintenance.
NUFF and the online support group founded by Carla Dionne inspired me to set up a similar group for German speaking women. I am British but live in Germany and suffered from debilitating symptoms caused by Uterine Fibroids for 16 years. NUFF and Carla have taught me so much about using online resources to do research and also about campaigning - and I have used these skills to help thousands of German speaking women in Germany, Austria and Switzerland.