Mission: The Myasthenia Gravis Association is dedicated to improving the quality of life for those affected by this autoimmune, neuromuscular disease, through awareness, education and patient services.
Geographic areas served: Kansas & Missouri
Programs: The two MGA Clinics are a collaborative effort with local Neurologists who specialize in the treatment of MG. Physician offices make an effort to schedule MG patients the same day of the week so that MGA staff and volunteers can meet with patients/clients in the physician’s office before their appointment. A new diagnosis or coping with a chronic disease can cause anxiety and fear. Meeting with a MGA staff member or volunteer offers an informal, friendly and less medical opportunity for sharing. The purpose of the clinics is: • Provide support to MG clients and referrals to human services• Provide “New Member Packets” for newly diagnosed members• Provide opportunities to discuss coping with symptoms• Provide opportunities to discuss wellness techniques & healthy lifestyle• Provide informational material regarding links to MG and other health-related resources
My experience with the Myasthenia Gravis Assoc has been wonderful. Since the disease was considered fairly rare when I was diagnosed just over 2 years ago, I had difficulty finding information. I was referred to MGA and received information on treatment, medications,clinical research and other resources. This was invaluable because I was also able to interact with other MGA patients and learn from their experiences. So I became a Board member.