We have a daughter who was diagnosed with the juvenile form of MLD in June of 2011. That is also when we found the MLD Foundation when searching online and attended our first MLD conference. It was at the conference that we met other parents who were so helpful to us by listening to us, answering our questions and sharing their own experiences. The conference provided us with everything we were hoping for, education about the disease, the latest research, friendship and support. The MLD Foundation discussion list has helped us to connect to other families from all over the US and abroad so that we don't feel alone in this challenging journey. We are SO THANKFUL TO THE MLD FOUNDATION and to its founders, DEAN AND TERYN !
MLD Foundation - thank you, we couldn't have climbed this Mt.Everest called MLD without you. blessings, Lorraine MacKinnon. You were there with everything whenever we needed you, thanks so much.
Our son was a victim of MLD. At that time there were no resources for parents/caregivers. This foundation has fulfilled a basic need for families. It is resource for information about MLD, support, comfort, friendship, and newest research information on this dreaded neuro-degenerative disease. It is valuable tool for all of those who deal with MLD on a daily basis.
The mld foundation is a great and supportive
Foundation and very useful.I learn a lot
from families suffering the way I do.Also it's
a great supportive team I feel I am not alone
And not the only one going through this horrible disease.
This Foundation has help us so much. Our family knew nothing about MLD and thanks to Dean and Teryn's help - they have connected us to many many families that are going through the same thing. The discussions have helped us with needs, pain management, symptoms.
They are wonderful and we would love to have them continued for ever and their help to try and get the word out as well as raise money for research has been terrific. Thank You Soooo Very Much MLD Foundation!!!
My son Jared was dx. with MLD in 2007. Since then the MLD Foundation has helped so much. They have helped us meet other families with this very rare disease. I had never in my life heard of this disease before my son was dx. with it. Dean and Teryn are wonderful people commited to helping families suffering from MLD. Every year they have a medical conference that all MLD families can attend so we are kept well informed of any medical advances for the disease. This is a wonderful foundation!