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Michigan Lyme Disease Association

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Nonprofit Overview

Causes: Health, Public Health, Specifically Named Diseases

Mission: Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while helping to support research. Providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public. 

Target demographics: with support, education and research on Tick-Borne Diseases.

Direct beneficiaries per year: Research in Michigan, Doctor Education, Public Education

Geographic areas served: State of Michigan

Programs: Educational Lectures to Organizations/Businesses. Hosting Conferences to Educate Physicians. Supporting Research efforts. Setting up educational booths to educate the public. Setting up support groups to help patients.

Community Stories

19 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

I just moved back to Michigan, after having my health decline severely out of state. I was bit almost 10 years ago and have seen dozens of doctors and have taken hundreds of vials of blood all for absolutely nothing. Because it was Lyme, now neurological Lyme due to its late diagnosis. I just moved back to MI to live with a family member, unable to work and went to my first support meeting with Khaya Davidson and Kim Cooney. I was SO blown away by how amazing this support group was! They had an amazing guest speaker and the crowd of people were fantastic to speak to. I was probably one of the more educated individuals there, in regards to Lyme and chronic illness, these people need these support groups so they can obtain more information from those that have spent countless hours on research. I need this group for support and guidance on doctors in the area. All in all, I was so happy I went, it was incredibly helpful and cathartic, Khaya and Kim are amazing and I'm so thankful for this support group. This disease is devastating and we need it desperately!

General Member of the Public

Rating: 5

This organization has been a wealth of information for myself and loved ones whom I am trying to help. I have called members of the MLDA multiple times and they have always been receptive to answering my questions, providing direction to websites to visit or books to read, I cannot say enough good things about the caring demeanor of Linda and others in the MLDA. They have never solicited donations when I have called, rather at every turn they have been completely dedicated to helping and providing information. A true definition of a non-profit

Chelsea18

General Member of the Public

Rating: 5

I do not have Lyme disease but this association has really informed me of the disease and what to look for and even how to educate others on what Lyme disease is. The MLDA has many brouchers and other informative materials. It truly is a great organization.

General Member of the Public

Rating: 5

MDLA does a great job providing research and information on a disease that is severly misunderstood.

General Member of the Public

Rating: 4

MLDA provides a wealth of information on all things Lyme related. I especially like their interest in homeopathic resources. As I've learned Lyme cannot be treated by conventional medications alone. Linda has been an invaluable resource and all the MLDA members owe her a great deal of gratitude.

Carrie28

Volunteer

Rating: 5

The MLDA is a wonderful organization with caring and dedicated individuals, who are a great resource for those who need help with anything to do with Lyme Disease and associated confections. We strive to raise awareness through many research campaigns, brochures and much more. All to often we provide support to those in need to many newly diagnosed patients and health professionals seeking additional information. Without the MLDA, many would struggle in knowing where to go for help or information on what Lyme Disease is all about. I'm happy to serve as a board member, in continuing to help educate the public and assist in much of the planning the goes on for the association.

Previous Stories
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Board Member

Rating: 5

I've had lyme disease now for 18 years but took a year to get diagnosed. I was quite young at the time, 15 years old and my mom was desperate for help. We thank God every day that we came across the MLDA, and the president Linda at the time. She helped us immensely and has helped me to want to give back by joining the board. Without the MLDA, many people would be lost. They are THE best non-profit I know. I don't know where I'd be today without them.

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1

Volunteer

Rating: 5

When I was diagnosed with Lyme Disease in 2000 I did not know what it was, and had never met anyone else with it, except for my doctor! it took several years of feeling isolated during my treatment before I finally found MLDA, and it has changed my life. The friendships, support, and education I have received from this group (and continue to receive) has been amazing! And it is wonderful to be appreciated for my efforts to help others in our group.

Previous Stories
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General Member of the Public

Rating: 5

I have found the leadership of MLDA to be accessible and eager to help each individual person who requests information and/or help. The leader and members of the group I have been attending are friendly and open in sharing their knowledge and experiences with each other, including newcomers like me. When I suggested holding a public educational meeting at my church, the MLDA president helped us plan it and personally came to speak and share educational materials. People who spoke with me afterward were very impressed and found it a very enlightening experience.

1

General Member of the Public

Rating: 5

The Michigan Lyme Disease Association has maintained excellence in public education, support, and
advocacy in a very caring and professional way for many years. Education for the public as well as Lyme disease patients, support groups and individual support for patients, interesting and entertaining annual events to raise funds for the organization, sponsoring conferences, appeals to the state government for decent recognition of Lyme disease as well as education and care - these are only a part of what MLDA does. And the MLDA newsletter and the website are both very carefully organized and information is always thoroughly documented.

As a neighbor, in Ohio, who has spent years trying to do just a few of the same things MLDA does, I really know what it takes to organize and maintain such an organization that makes such a huge difference for people who are suffering. I am in awe of the MLDA.

1

General Member of the Public

Rating: 5

The Michigan Lyme Disease Assoc. (MLDA) is one of THE most helpful, knowledgeable, and compassionate organizations around. Our stories seem all to familiar. Countless Dr. Visits, years of being told there's not a thing wrong with you as you continue to deteriorate. This organization knows your story all to well. They are able to educate you on different treatments. The best thing... they are working overtime to educate those Doctors who have turned us away one to many times! I am so Blessed to have the MLDA a part of my life in fighting this disease!

Previous Stories
1

General Member of the Public

Rating: 5

I think all these 5 stars speak for themselves! I have never met an organization so kind and so well informed. If you have never suffered with Lyme's or do not know anyone it is a very scary disease to have. It attacks each person differently and therefore your symptoms may differ from the next person.

MLDA has been a blessing! From the simplest to the most difficult questions they always help in any way they can. It doesn't matter if your a member or not. They want to help everyone have a decent quality of life.

The MLDA far exceeds the 5 stars! Thank you for all your help this past year!

God Bless,

Beth



1 avalynn

Client Served

Rating: 5

Michigan Lyme Disease Association has been extremely supportive in our struggle with Lyme. MLDA has also been very helpful with Lyme awareness in our area.

Previous Stories
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General Member of the Public

Rating: 5

MLDA has been a great source of help and support for my family. It's tough dealing with an illness that is not understood by the traditional medical community, but, knowing there are others dealing with the same issues has been a tremendous support.

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1

General Member of the Public

Rating: 5

This is a fantastic organization. It is very informational and helpful to people with Lyme disease. It is free and it does not ask anything from anybody only to spread the word. It gives you the opportunity to help other people if you want to. I can't say enough good words about it.

1

General Member of the Public

Rating: 5

As a person who has suffered with chronic Lyme for over 4 years, I have found the Michigan Lyme Disease Association a wonderful resource...of information, kindness, empathy, and advocacy. In the initial stages of treatment, I was incredibly fearful and the MLDA, and in particular its President, was kind enough to allay my fears and answer my questions. As part of the Yahoo! group, another active member (Khaya) continually monitors the mail and offers tremendous support to the members.

1

General Member of the Public

Rating: 5

I have found many good tips from this group of people (The Michigan Lyme association) Since I was diagnosed with Lyme back in March 2009. The sponsors that have pulled this group together have so much information that they offer to help you not only heal but also have a support group for not so good days and you need to find answer's to problems you maybe experiencing. I have met many amazing people with this same illness and I thank the Michigan lyme Asscociation for all the support they have given me. Michele

1

General Member of the Public

Rating: 5

I got to know Linda and the Michigan Lyme Disease Association through my friend, who had contracted lyme disease. I have appreciated the awareness and knowledge that has been shared about lyme. Linda gave a lyme disease presentation to my outdoor club several months ago. She shared a wealth of valuable information with us....and really opened our eyes to the terrible effects of the disease! Kudos to all of her neverending efforts!

1

General Member of the Public

Rating: 5

I struggled for years with an unknown auto-immune type disease. I kept getting worse. I stumbled upon information about Lyme disease and knew I might be on to something. I contacted the MLDA and was given a list of doctors in my area who could help. I also found out about a local MLDA support group that meets in my area once a month. I have been diagnosed with Lyme and am currently in treatment. I don't know what I would have done without the kind efforts of Linda and Sue. They talked me over a couple of humps and helped me to realize I am not alone in this battle. They give so much to other sufferers of this disease. I can't begin to thank this group enough. I also gain much info from the MLDA group emails. It's still a struggle for me. Someday I hope to be well enough myself to help others through this wonderful organization and to help inform the public about Lyme disease.

1

General Member of the Public

Rating: 5

In June 2008 I found a small bull's eye rash on my leg. Took a picture of it as I did with the bug bite reactions my kids have had from our own backyard in Canton, MI. I don't remember feeling like I had the flu but a short time later I started have bad pain in my left knee that spread to my right knee, my elbows, and shoulders that would move around and burned. Initially I was told I had a thyroid problem. So I went along with that until I over several months I went through these symptoms: heart palps, not being able to breathe at night and pacing the floor, my brain would scream to shut out the noise, jaw and ear pain, not being able to focus on what people were saying or being able to stay focused on reading, ulcerated uvula, tightening in throat, completely exhausted, twitching/spasms on left side of face, etc. So I began to do some research of my own online about my symptoms and thought maybe it might be lyme disease. That's when I remembered the picture I took of the rash. I remember feeling stupid thinking that it might be lyme disease because I didn't think it could happen in lower Michigan. I was afraid people would think I was a hypochondriac. In my online research I came across the Michigan Lyme Disease Association website where I found contact information. I emailed my digital photo I had of the rash and I think it was only a day or two before Connie Siese replied. I had asked her if she thought this might be from a tick bite and if I should bother getting tested. She was so kind and nonjudgemental in her response back to me and encouraged me to find a LLMD to get tested. Her encouragement helped me overcome my fear of being labeled a hypochondriac and I did get tested. I've been diagnosed and treated for Babesia. Thank you to the MLDA for their encouragement and support through the yahoo chat and facebook too!

1

General Member of the Public

Rating: 5

I have been recently diagnosis with Lyme disease in 2010. In researching the internet I became so overwhelmed I felt hopeless and coping became difficult. I made a call to the MLDA and received direction and courage to deal with my disease. If it hadn't been for the angels voice (Linda)on the other end of the phone telling me You Can Do This I'm not sure what my state of mind would have turned into. Linda, not only talks the talk but walks the walk as she has dealt with Lyme disease herself. I can't think of a better person to be doing this job. She didn't even know who I was and yet spoke to me as though I was her closet friend. She's one special person.. One In A Million in my opinion! I don't know how she does it but she know when to Kick into action even with a stranger. Because of the MLDA my outlook in dealing with this disease has given me hope and the state of mind I need to recover fully! She is always there lifting others up with courage and wisdom when ever needed. MLDA goes beyond the call of duty in my opinion and for that I'm so very grateful they are there! Juli