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Michigan Lyme Disease Association

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Nonprofit Overview

Causes: Health, Public Health, Specifically Named Diseases

Mission: Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while helping to support research. Providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public. 

Target demographics: with support, education and research on Tick-Borne Diseases.

Direct beneficiaries per year: Research in Michigan, Doctor Education, Public Education

Geographic areas served: State of Michigan

Programs: Educational Lectures to Organizations/Businesses. Hosting Conferences to Educate Physicians. Supporting Research efforts. Setting up educational booths to educate the public. Setting up support groups to help patients.

Community Stories

52 Stories from Volunteers, Donors & Supporters

rocketdog

Client Served

Rating: 5

MLDA has been very helpful to me in negotiating treatment for my illness. They are a valuable tool for anyone in the state who has lyme disease.

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1

Client Served

Rating: 5

This organization helped me tremendously when I needed information about my illness. I received support I needed such as doctor information, treatment options, support groups and online forums. I have referred several people here as well.

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Client Served

Rating: 5

Thank you to MDLA and Linda for being there to help educate the many thousands of people about Lyme Disease and Prevention.

pamela9

Client Served

Rating: 5

linda has been there for me over and over michigan lyme is great they help so many people thank you

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1

Client Served

Rating: 4

i feel very blessed to have this in michigan linda is wonderfull education is whats needed they provide that pam maize

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1

Client Served

Rating: 5

I can't tell you how many people I have referred to this organization. They do very important work raising Lyme Awareness, helping those who have been bitten by a tick or who need to be tested for Lyme Disease, testing areas for ticks/Lyme Disease and much more. With this disease prevention is so important so we desperately need MLDA!

1 Martha V.

Client Served

Rating: 5

MLDA has provided my family and I with much needed information about Lyme Disease in Michigan and assisted with finding a Lyme literate physician. When someone else has questions about Lyme, I send them to MLDA.

1

Client Served

Rating: 5

When my son was diagnosed with lyme disease 7 years ago I had no idea where to turn. Thankfully I found the MDLA. The president was so helpful in finding a doctor and just general support has been great. We attended a MDLA support group that was active in our area for a while, and again, very helpful people. Always good information, always time to talk. Have referred many people to the group and always everyone is happy with the support they recieve. The leadership goes above and beyond the call of duty! Great origanization!!

1 2007robbie

Client Served

Rating: 5

When I have a question, or need to find a specialist who has seen other lyme patients, I can call the Michigan Lyme disease association and they are able to answer my questions or let me know where I may be able to find a dr.
I know of no other group that helps lyme patients like the MLDA.
Many people would suffer needlessly if it was not for the Mlda.

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1

Client Served

Rating: 5

I belong to a lot of different lyme groups on the net and via mail. The MLDA is one of the best. They work very hard to help others with this disease. They have a great phone support system, web posting site and even have some local support groups. Thanks so much to Linda and all of you who have supported me in the past.

2

Client Served

Rating: 4

There are no doctors from my area who understand how to treat Lyme disease. The infectious disease physicians do not believe chronic Lyme exists. Well for more than 2 years I have had it and now have proof positive with accurate testing. With help from Michigan Lyme Association I found a doctor who knows how to treat Lyme right in Michigan. Without their info I would still be searching...and sicker. I can't thank them enough and finally feel like I am on the road to recovery.

1

Client Served

Rating: 5

The Michigan Lyme Disease Association has given me lots of valuable information. It is great to get support from others who are going through similar things as I am.

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1

Client Served

Rating: 5

This is a great source for people who have Lyme Disease to get questions answered and have great support. Lyme can be a lonely illness because often you don't feel well enough to get out with others. The group provides the support that I need! I am glad that I don't have to feel alone!

1 avalynn

Client Served

Rating: 5

Michigan Lyme Disease Association has been extremely supportive in our struggle with Lyme. MLDA has also been very helpful with Lyme awareness in our area.

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1

General Member of the Public

Rating: 5

MLDA has been a great source of help and support for my family. It's tough dealing with an illness that is not understood by the traditional medical community, but, knowing there are others dealing with the same issues has been a tremendous support.

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1 Molly32

Client Served

Rating: 5

The MLDA does a great job for the otherwise underserved Lyme Community. They provide support and information for a very difficult disease - one that is often misunderstood, both by the lay person and the medical community. They also participate in much needed research.

1

Client Served

Rating: 5

MLDA--where would I have been without you twenty years ago when diagnosed with Lyme? A five star rating is just the start for those who have struggled with this debilitating disease! This organization not only is a wealth of support for Lyme disease victims, but the educational literature, prevention awareness, forums, and conferences have been valuable to the medical profession along with everyone who enjoys the great outdoors in our beautiful state. For some, the journey with this disease is ongoing, and the encouragement and support from the MLDA through support groups, e-mails, on-line support, etc. cannot be surpassed. Thank you, MLDA members, for your labor of love and all that you do. My life will never be the same because of all your encouragement and support over the years. Lyme awareness has come a long way in our state because of your efforts. Sue G

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1

Volunteer

Rating: 5

My teaching profession took a major turn in 1994 when a minute tick, embedded in my chin, was removed. Life changed from that moment on. . .I saw 13 different doctors for various symptoms that changed almost daily, spent days lying on the couch that seemed like an eternity as no professional could diagnose what this "illness" was. The fourteenth doctor tested me for Lyme Disease which had positive results, and the treatments began. Symptoms became much worse than prior with the toxin die offs, etc. Who was out there that I could talk to, not knowing day to day if my life was going to soon be over? After ordering a book from a local bookstore, (nothing abailable in local libraries on Lyme) I discovered a support group about 30 miles from my home. Thanks to the MLDA and this group which was just being started in Michigan, I once again had hope and was encouraged, educated, and uplifted. Going through this valley without support would have been unbearable. Thanks to my good health at this tine, it is time to "give back" and assist the MLDA in educating and supporting those who are newly diagnosed, etc. What a life-line the MLDA has been in our state. The positive comments from hundreds/possibly thousands regarding the well-planned professional conferences, literature available to anyone, test kits, newsletters, etc. have saved many from ever going down the path that I did. MLDA - a ten in my eyes!!!!

1

Client Served

Rating: 5

The Michigan Lyme Disease Association has been a life-saver to me. Having moved back to Michigan two years ago from Virginia (I had to move back home with my parents because I am so ill with the disease), this group has offered support and vital information. Linda Lobes is there every single time you need her, and I have met some wonderful new friends who have become a big part of my life. Thank you Michigan Lyme Disease Association...and keep up the good work for those who are suffering!!!

1

Client Served

Rating: 5

The Michigan Lyme Disease Association has been a beacon in the fog of living with Lyme disease. I have learned so very much about the various issues involved in trying to get a proper diagnosis and in trying to procure appropriate medical care. When a member has a problem, he/she can rely on other members to provide helpful suggestions. And, when it comes to knowledgeable leadership, Linda (the MLDA president) is the best. I am thankful for the support of the MLDA in my life living with Lyme.

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1

Client Served

Rating: 5

The Michigan Lyme Disease Association is committed to educating the community at large, and to supporting, and assisting those who are afflicted by the tick-borne illness, Lyme disease. Its president, Linda Purdy Lopoes, is knowledgeable, kind, and always available to help. Through the MLDA, I have become an informed patient. I have also found a group of very kind members who are ready to lend a helping hand, an eager ear, or a shoulder on which to cry. Annual fundraisers help defer some of the costs of meeting its goals. Monthly support group meetings are open to anyone who wants to attend. Newsletters are sent out once or twice a year. There is also a Yahoo! support group. Informational booths are set up by the MLDA at various events throughout the year (such as dog shows). The MLDA also sends out literature to medical professionals and participates in educational conferences so as to better inform doctors, nurses, etc on how to diagnose and treat Lyme disease.

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1 Michelle80

Volunteer

Rating: 4

This is a great non profit group that raises awareneness about Lyme Disease in Michigan. I like that 100% raised goes into the program & not into pockets. Mid Mi Lyme has been a god send for myself & my family, we have received valuble information & help. Im looking forward in paying back with helping out more & continuing to raise money for such a worthly cause. The people are friendly, kind & generous in making this a top notch non profit.

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1

Client Served

Rating: 5

Linda & MLDA has been a God send to me. I was tested in 1990 for Lyme Disease & Epstein Barr after i had a long bougt with Mono. I was in college at this time & extremly ill. My tests kept coming back as negative however my blood results were a complete mess. I went to college for a couple yrs while ill trying to finish my teaching degree. The road since that day began has been a complete & utter nightmare that still haunts me to this day. When u r active & outgoing then u transform into something u r not. A very long journy until finally Spring 2010 i finally was positive for both. It was a lot to take it.....i then contacted Linda & she saved me. A person who could relate & understand my roughly 23 yr journey to get to that point with answeres. Because of Linda & MLDA they helped me to get on track with a doctor & receive support as well as be a part of such a wonderful group of people. I & my family look forward to the yearly fundraiser that we attend. MLDA is a blessing & im so grateful to be apart of such a fabulous group all raising awarness & money for Lyme Disease. Thank you !!! Love & light, Michelle

1

Client Served

Rating: 5

This group is absolutely fabulous! I don't know how I would have made it without their help. Linda helped me find a doctor, one of the support group leaders was up late with me on the phone one night until the wee hours of the morning, and they are terrific whenever you have a question or need a hand!

Previous Stories
1

Client Served

Rating: 5

I don't know where I'd be today if it wasn't for the MLDA. I was going through the loop of doctors to find out what was happening to me, because I felt, literally, like every system in my body was going crazy all at the same time. I was getting test after test, but nobody could find anything wrong. I'd even been told it "couldn't be lyme because we don't have that in Michigan...". (Not only not true, but hey, it is possible that people do camp/hike OUTSIDE of Michigan, which was utterly dismissed.) They were so very helpful in helping me find a doctor to see if lyme disease was the cause of my problems, and so very kind in just listening to me. I was having a very bad evening one day, feeling really very, very bad, and one of the ladies talked to me at 10 p.m. for about an hour and a half until I started to feel better. In addition, they always call you back, which isn't something I can say for some other non-profits I've tried to volunteer for. Things are MUCH better now, and I know if it wasn't for this amazing group of people I'd still be getting bounced from doctor to doctor and getting the royal run-around.

1 Charlotte15

Client Served

Rating: 5

This organization has been everything to me. They have helped me move trough life with this horrible lyme disease. They helped me find a doctor when i was too sick to do it myself. They've helped educate me on prevention, and what to expect with my health for the remainder of my life. Their educational booths are better every year and i have helped with them now that i feel well enough. I have contact with their online support group every day. This organization is the best!

1

Client Served

Rating: 5

MLDA has been instrumental in helping so many people in Michigan. MLDA is effectively educating the medical practioners and public about Lyme Disease. Many Doctors are now recognizing the symptoms and providing the proper treatment. With more funding the MLDA can continue the great work it started. My wife had Lyme disease for years before being properly diagnosed and treated. The earlier it is diagnosed the less lasting effects on various parts of the body. Thank you for helping MLDA maintain its status.

1

Client Served

Rating: 5

We came here in MI no less than a year from Asia and my daughter had an unusual rash from an unknown insect bite. I've heard about this association and since then, it greatly help us determine the cause and the treatment that we will be undertaking. We got pamphlets ad things related to lyme so it could be prevented if we have it and the organization extends help to find the good doctor who knows how to treat the condition. It is truly a life- saving, tender- loving organIzation that i hope would exists for a long time. Thank u for helping my family!

1

Client Served

Rating: 5

When I first found out about the Michigan Lyme Disease Association I was in quite a bit of pain, suffering from 4 or 5 migraine headaches per week, and every doctor that I had seen was unable to find out what my problem was. I had already seen 19 doctors and 9 Specialists, spent thousands of dollars on medical testing, and the only thing the doctors all agreed on was that "something was wrong with my immune system". I was depressed, and had been unable to keep any job due to my poor health. No job means no health insurance, no money, and ultimately - no medical help. One day, I was at an event where the MLDA had a booth set up, with photos of the Lyme disease rash, the tiny ticks, and other information. As soon as I saw the photos, I KNEW that I had Lyme disease. One of the people from the MLDA was at the booth, & she immediately came over to talk to me. It was such a relief to know that other people understood what I was going through, & that I really was ill and not just "making it up to get out of going to work". I have talked to some of the MLDA members by phone, and it is very comforting to know that they are there. I have also joined their Yahoo group, & I have learned excellent information from the group members. I am very thankful that they are here for us.