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Michigan Lyme Disease Association

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Nonprofit Overview

Causes: Health, Public Health, Specifically Named Diseases

Mission: Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while helping to support research. Providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public. 

Target demographics: with support, education and research on Tick-Borne Diseases.

Direct beneficiaries per year: Research in Michigan, Doctor Education, Public Education

Geographic areas served: State of Michigan

Programs: Educational Lectures to Organizations/Businesses. Hosting Conferences to Educate Physicians. Supporting Research efforts. Setting up educational booths to educate the public. Setting up support groups to help patients.

Community Stories

19 Stories from Volunteers, Donors & Supporters

kcooney8

Volunteer

Rating: 5

When I was first diagnosed with Lyme Disease they sent me literature to understand what Lyme is, various treatments, how to protect myself and family in the future. They do educational booths to raise awareness, and work with other agencies in Michigan to determine highly populated areas with ticks and identifying what infections are current in Michigan. This is also important as Michigan is known for its tourism

Previous Stories
1

Board Member

Rating: 5

I had Lyme Disease about 25 years ago and it went into remission. However it came back about 4-5 years ago. In googling it I found the MLDA and allied. The president directed me to a LLMD (which I had no clue what that meant then). They also sent me a lot of information on LD and answered a lot of questions. I was also given a list of names I could contact for support sand eventually started a support group in my area. I wouldn't be here today if it weren't for the MLDA. They supported me at my lowest points and ow I'm able to give back. They also have an e mail support for those that prefer that way as well as many FB groups on Lyme Disease. It's great getting new info and communicate with someone who understands what I'm going through. I will forever be grateful for this non profit organization

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rocketdog

Client Served

Rating: 5

MLDA has been very helpful to me in negotiating treatment for my illness. They are a valuable tool for anyone in the state who has lyme disease.

Previous Stories
1

Client Served

Rating: 5

This organization helped me tremendously when I needed information about my illness. I received support I needed such as doctor information, treatment options, support groups and online forums. I have referred several people here as well.

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1 Teddi

Volunteer

Rating: 5

I've had and been disabled with Lyme Disease for 25 yrs. It is a most serious and complicated disease. MLDA is vital to education, fundraising, outreach, in MI. The president, Linda Lobes, is an extremely devoted worker who has been a much need resource and support for myself as well as many other patients, physicians and others in MI. I can't say enough positive things about this organization.

Previous Stories
3

Volunteer

Rating: 5

MLDA is a continual source of valuble information and support for myself as well as hundreds of others. I visit the online support group almost daily. Sometimes I ask a question or sometimes I just learn by reading input from others. It helps me to not feel so isolated ecspecially when I'm unable to get out due to fatigue or head pain. MLDA is by far my favorite non=profit group!

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Carrie28

Volunteer

Rating: 5

The MLDA is a wonderful organization with caring and dedicated individuals, who are a great resource for those who need help with anything to do with Lyme Disease and associated confections. We strive to raise awareness through many research campaigns, brochures and much more. All to often we provide support to those in need to many newly diagnosed patients and health professionals seeking additional information. Without the MLDA, many would struggle in knowing where to go for help or information on what Lyme Disease is all about. I'm happy to serve as a board member, in continuing to help educate the public and assist in much of the planning the goes on for the association.

Previous Stories
2

Board Member

Rating: 5

I've had lyme disease now for 18 years but took a year to get diagnosed. I was quite young at the time, 15 years old and my mom was desperate for help. We thank God every day that we came across the MLDA, and the president Linda at the time. She helped us immensely and has helped me to want to give back by joining the board. Without the MLDA, many people would be lost. They are THE best non-profit I know. I don't know where I'd be today without them.

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1

Volunteer

Rating: 5

When I was diagnosed with Lyme Disease in 2000 I did not know what it was, and had never met anyone else with it, except for my doctor! it took several years of feeling isolated during my treatment before I finally found MLDA, and it has changed my life. The friendships, support, and education I have received from this group (and continue to receive) has been amazing! And it is wonderful to be appreciated for my efforts to help others in our group.

Previous Stories
1

General Member of the Public

Rating: 5

I have found the leadership of MLDA to be accessible and eager to help each individual person who requests information and/or help. The leader and members of the group I have been attending are friendly and open in sharing their knowledge and experiences with each other, including newcomers like me. When I suggested holding a public educational meeting at my church, the MLDA president helped us plan it and personally came to speak and share educational materials. People who spoke with me afterward were very impressed and found it a very enlightening experience.

1

Client Served

Rating: 5

MLDA--where would I have been without you twenty years ago when diagnosed with Lyme? A five star rating is just the start for those who have struggled with this debilitating disease! This organization not only is a wealth of support for Lyme disease victims, but the educational literature, prevention awareness, forums, and conferences have been valuable to the medical profession along with everyone who enjoys the great outdoors in our beautiful state. For some, the journey with this disease is ongoing, and the encouragement and support from the MLDA through support groups, e-mails, on-line support, etc. cannot be surpassed. Thank you, MLDA members, for your labor of love and all that you do. My life will never be the same because of all your encouragement and support over the years. Lyme awareness has come a long way in our state because of your efforts. Sue G

Previous Stories
1

Volunteer

Rating: 5

My teaching profession took a major turn in 1994 when a minute tick, embedded in my chin, was removed. Life changed from that moment on. . .I saw 13 different doctors for various symptoms that changed almost daily, spent days lying on the couch that seemed like an eternity as no professional could diagnose what this "illness" was. The fourteenth doctor tested me for Lyme Disease which had positive results, and the treatments began. Symptoms became much worse than prior with the toxin die offs, etc. Who was out there that I could talk to, not knowing day to day if my life was going to soon be over? After ordering a book from a local bookstore, (nothing abailable in local libraries on Lyme) I discovered a support group about 30 miles from my home. Thanks to the MLDA and this group which was just being started in Michigan, I once again had hope and was encouraged, educated, and uplifted. Going through this valley without support would have been unbearable. Thanks to my good health at this tine, it is time to "give back" and assist the MLDA in educating and supporting those who are newly diagnosed, etc. What a life-line the MLDA has been in our state. The positive comments from hundreds/possibly thousands regarding the well-planned professional conferences, literature available to anyone, test kits, newsletters, etc. have saved many from ever going down the path that I did. MLDA - a ten in my eyes!!!!

1 Michelle80

Volunteer

Rating: 4

This is a great non profit group that raises awareneness about Lyme Disease in Michigan. I like that 100% raised goes into the program & not into pockets. Mid Mi Lyme has been a god send for myself & my family, we have received valuble information & help. Im looking forward in paying back with helping out more & continuing to raise money for such a worthly cause. The people are friendly, kind & generous in making this a top notch non profit.

Previous Stories
1

Client Served

Rating: 5

Linda & MLDA has been a God send to me. I was tested in 1990 for Lyme Disease & Epstein Barr after i had a long bougt with Mono. I was in college at this time & extremly ill. My tests kept coming back as negative however my blood results were a complete mess. I went to college for a couple yrs while ill trying to finish my teaching degree. The road since that day began has been a complete & utter nightmare that still haunts me to this day. When u r active & outgoing then u transform into something u r not. A very long journy until finally Spring 2010 i finally was positive for both. It was a lot to take it.....i then contacted Linda & she saved me. A person who could relate & understand my roughly 23 yr journey to get to that point with answeres. Because of Linda & MLDA they helped me to get on track with a doctor & receive support as well as be a part of such a wonderful group of people. I & my family look forward to the yearly fundraiser that we attend. MLDA is a blessing & im so grateful to be apart of such a fabulous group all raising awarness & money for Lyme Disease. Thank you !!! Love & light, Michelle

1

Volunteer

Rating: 5

I am very thankfull for the MLDA. It is my only support and resources for lyme disease. Don't know what I would do with out it. It has led me to medical treatment, awareness, and medications. It has helped me with the businesses that support the cause as I have contacted them for things I have needed. Sandy Spencer

1

Volunteer

Rating: 5

My wife has Lyme disease and is very active in the organization. Thus I am able to see what MLDA does. It is the best source of information and help for people with Lyme disease. It has great guidelines and members. It is a model for other similar organizations to emanate. I am very moved listening to my wife listen and support a phone caller. And the same with fund raising events, they are worthy and self rewarding. If I had Lyme disease I would contact them as soon as I could. I know I would get the help I need.

1

Board Member

Rating: 5

MLDA has been the only hope and only place to turn to for anyone with or anyone who knows someone suffering with Lyme. As a mother with all 3 of my children having Lyme Disease times can be hard. It is because of the MLDA and Linda that we given any direction at all on how to help them to get better! My oldest son was very ill and still after 3 years of treatment is still fighting this disease daily. It is all because of Linda and the MLDA that we were able to even know where to start to even treat him. Our family owes the MLDA everything! The health of your family is the most important thing and the information and support that is given and offered by the MLDA is second to none!

Previous Stories
1

Volunteer

Rating: 5

Tell your story here and help others understand this charity It scares me to death to think of where we would be if it had not been for Linda and the MLDA! After seeing dr after dr and had test after test ran on my son to come up with nothing over and over again and to watch him get sicker and sicker, to then be put into contact with Linda and MLDA who gave us hope and direction and support! Linda was able to lead us towards the right direction in getting our son's health back on track and finding out what he was struggling with. We owe our son's health to Linda and the MLDA! The knowledge and the support that has been giving to us by the people behind the MLDA has been so important and needed in our time dealing with this disease. Our journey is far from over but I'm not as scared of the out come knowing that we have Linda and the MLDA helping us with every step forward! Our family thanks them for the bottom of our hearts!

1

Volunteer

Rating: 5

The MLDA is a very important and worthwhile organization for individuals in Michigan. This is the only organization that provides a source of valuable information and education to the public to make them aware of the issues with Lyme disease and other tick borne illnesses. The organization works hard to get the word out to individuals, doctors, nurses, etc by sponsoring seminars, raising funds for research and holding support group meetings. The MLDA also publishes a newsletter that contains valuable information on Lyme treatments and stories of many patients that have Lyme.

Review from Guidestar

1

Volunteer

Rating: 5

I have found this organization to be above board and always giving of the respect that Lyme Disease patients should receive. They have tirelessly helped these patients in all realms of their needs, with guidance, doctor referrals, pamphlets and even a phone number where more help can be received. Thank you Michigan LDA, you have been a Godsend for those afflicted in your area of the Country.

Review from Guidestar

1

Volunteer

Rating: 5

I have had Lyme Disease for 14 years, diagnosed for 13. With no help from the medical profession in the Grand Rapids area my parents and I looked to the MLDA for answers and help. The president, Linda, has been a God send to us helping with all of our questions answering phone calls and directing us to appropriate doctors where I finally received help. I wouldn't be where I am now if it wasn't for her and the staff. The MLDA offers so much information for those who are simply concerned or have been diagnosed and struggling. Anytime I have questions I never hesitate to call because the MLDA is the best support you could ask for and has more knowledge than any other group I have worked with. I don't know where I would be with out the MLDA.

1

Volunteer

Rating: 5

If it wasn't for the Michigan Lyme Disease Foundation I would still not know what was wrong with my son and he would still be ill. They helped in so many ways to get him back to the road of recovery. As a mother it is so hard to see your child suffer. The MLDA directed me to a doctor that helped him right away. The MLDA provides information to many in the state of Michigan and gives them help in so many ways. Just letting the general public about Lyme Disease and how to protect themselves is huge! The work the MLDA does is beneficial to many people in the state of Michigan.

1

Volunteer

Rating: 5

My smyptoms started developing in 1976 after camping with 10 million ticks in Ada, Oklahoma on a horse farm. I began my rounds with all the various doctors until 1986 when I received the news I had all the signs of classic MS. I lived with this 'cloud' hanging over me until 2005 when I was unable to spell my daugther's name on the tax forms. My husband began frantically contacting doctors, medical schools and researching the internet for answers. While online he found a tiny thread of information that eventually led him to the Michigan Lyme Disease Associastions and my lifeline. The MLDA helped me locate a wonderful lyme-literate doctor and provided me with a group of people that offered a wealth of knowledge from their own adventures with Lyne Disease. Without them, I honestly feel that this disease might have beat me into nothing. Thanks to the MLDA for my giving me my life back.

1

Volunteer

Rating: 5

The Michigan Lyme Disease Association is an excellent organization and was a great resource for my family when my brother became ill. After a year with no diagnosis, it was my mom, not doctors that discovered it was Lyme disease. When my parents couldn't find a doctor in the area that would treat a child, the MLDA provided the name of a doctor.

The organization is lead by a woman who has Lyme, is an excellent advocate, and passionate about helping others.

The goal of the MLDA is to create awareness for Lyme, not only for the general public but the medical community. Because the disease mimics so many others and the medical community isn't as aware of it's presence, this organization is extremely important.

The MLDA provides newsletters that contain valuable information on Lyme treatments and share stories of people's battles with Lyme. They also put on several fundraisers each year, have support groups, and attend numerous events to generate awareness. The MLDA has hosted several conferences in which they bring in a variety of speakers from the medical community as well as an attorney who speaks about the disability rights people with Lyme have. These conferences have been very beneficial to me personally by helping me to understand all of the challenges my brother and those suffering with Lyme face.