Metastasis is what kills cancer patients, but research in this critical area is woefully underfunded compared to the magnitude of the problem. METAvivor is a grassroots organization that is raising support for laboratory research directly targeting metastasis. They also provide support for patients living with metastatic cancer. Perhaps as importantly, they have begun to shine a light on the growing number of patients living with metastatic cancer -- their real problems, challenges and realities. METAvivor solicits advice from experts to assure that their research grants are going to the best possible science. They do all of this with a minimum administrative overhead. In short, if I want money going directly to metastasis research, this is the place I send my contribution!!
I had a fundraiser for METAvivor in memory of my friend Kara Guzzetti and I had the honor of meeting CJ and Patti from the organization who came to the event. They brought their energy, compassion, and knowledge with them. Most people do not know that Metastatic Breast Cancer does not have to be a terminal disease if we can support research to turn it into a chronic one.
I am a stage 4 metastatic breast cancer patient, and I believe that METAvivor is one of, if not the the best, non-profit out there. 100% of every donation goes to stage 4 research, which is what is actually going to take death off of the table for all stages of breast cancer. In addition, METAvivor is extremely easy to work with (I have volunteered with them) and everyone at the organization is dedicated and kind. I can't recommend them highly enough, either as a resource for someone with MBC, as a place to volunteer, or as a non-profit to raise money for.
METAvivor is the only 501c3 in the United States that gives 100% of donations to stage IV metastatic breast cancer research!! They also have a nationwide peer to peer support group, the annual Stage IV Stampede in Washington DC to lobby legislators for more research funding, and the Sea to Sea campaign to spread awareness of MBC! Thank You for all that you do for the metastatic breast cancer community!!
Metavivor fills a dearly-needed role in making sure metastatic breast cancer gets the attention and research it needs to help the 150,000 Americans who are living with MBC. The staff is living with this disease themselves, so they understand all too well the urgency and importance of Metavivor.
Review from Guidestar
I recently co-chaired a luncheon for this great organization. After attending the luncheon last year and meeting one of the nonprofit’s co-founders, who while very ill, made sure that she worked to make the luncheon a success, I was very inspired to help. Metastatic breast cancer research is distressingly unfunded for the most part. What METAvivor is doing to raise funds and raise awareness is exemplary. The spirit and dedication of this group made me proud to be a volunteer for them.
METAVIVOR as an organization that has shown tremendous respect for the metastatic breast patients by being an advocate for those whose voices may not be heard due to the overwhelming attention given to the breast cancer community who are not Metastatic. They have committed to helping those whose disease has progressed and are fighting to ensure that research continues for those whose outlook may be more challenging.
By working with us in the community they have made it easy to partner with them in building fund raisers that will benefit metastatic patients and help get money for research and provide a hopefully longer, enjoyable, productive life for the metastatic patient and bless their families with more time and love.
A wonderful organization, helping patients have a wonderful outlook on the future.
Review from Guidestar
I am a volunteer working with patients/families on the journey with breast cancer. Unfortunately and often overlooked are those who have been diagnosed with metastatic breast cancer. The unbelievable, dedicated and energetic members of METAVIVOR have been instrumental in gaining funds to support research to change metastatic breast cancer from a terminal disease to a chronic disease that can allow for the journey to be long...NOT short-lived. I have known many of the members of this group and, in addition to their tireless work, they have had to deal with the emotional challenges of watching their members succumb to this dreaded disease. Please go to METAVIVOR.ORG and offer help to eliminate this terminal disease which can affect anyone of us!
Review from Guidestar
To find an organisation that is so transparent about everything it does is quite frankly surprising, even in the non-profit world. I have metastatic breast cancer and we need to be noticed and accepted, especially by the breast cancer community as a whole who usually ignore our existence as we are not pink fluffy "survivors". We don't fit into the Pink Survivor scenario although uur plight is used to raise funds that do nothing to help or benefit those who have MBC. It is as though there is nothing between early stage breast cancer (which is survivable) and End of Life. Well, THERE IS, and METAvivor is the only group I know of which is dedicated to the life of these men and women, and to finding treatments for us. 30% of the "Early Stage Survivors" will develop metastatic disease and METAvivor is actually doing something to help them when they cross over the divide between SURvivor and METAvivor.
Metavivor is dedicated to stage IV Metastatic Breast Cancer Research and is dedicated to placing a spotlight on metastatic breast cancer which kills nearly 40,000 a year; approximately 30% of breast cancer patients with breast cancer develop MBC-cancer that has spread beyond the breast. The Metavivor organization's analysis of cancer organizations from the western world suggests that only 5% of total cancer research funding goes towards metastatic disease. Unfortunately, metastasis can happen to anyone, at any stage of the disease making additional research funding and patient support services critical for stage IV patients in a time when the efforts of fundraising are geared towards early prevention and detection and because of this, stage IV is cast in the shadow-"Out of sight, out of mind" MBC IS the worst nightmare of every patient with breast cancer but so little funding is given to save so many lives-MBC is fatal so lets work together to make a change, our lives are depending on it!!!
I have worked as an editor in the magazine business for more than 20 years in California and Maryland. In fact, I was the editor of a magazine in Palm Springs that focused on philanthropy and good causes. In all those years, I never personally joined any of organizations I covered until I encountered METAvivor. They have such a clear, unclouded mission. There's nothing superfluous or nonessential in their efforts and campaigns. They are going to change the lives of people with Metastatic Breast Cancer. And I want to be there to help.