The Meso Foundation and its dedicated staff gave our family courage when we needed it the most - to help us through our son Adam's peritoneal mesothelioma, and to help Adam see that he was not alone with this awful illness. Every penny given to the Foundation has resulted in better treatments and hope for thousands of patients and their families. Survival rates are up, and the network supported by the Foundation allows patients and family members to access medical experts and promising treatments, and allows researchers to move forward. Thank you, Meso Foundation.
I have several friends who are either battling mesothelioma, have a loved one who is (or who died from it), or are health care providers to meso patients. From them, I have learned that the Meso Foundation is the kind of nonprofit all others should strive to emulate! Its leaders are eminently ethical and professional in their operation of the foundation and stewardship of its funds -- and they provide absolutely priceless support to meso patients and caregivers. More than one of my friends have told me the Meso Foundation is the first place that gave them hope for effective treatment of their cancer, rather than just bad news. The Foundation stays on top of -- and helps fund -- the latest treatments for mesothelioma, and connects patients and families with expert doctors and nurses who are using these treatments. As a result, my friends who have the disease are alive today! The Meso Foundation also does a wonderful job of bringing patients and caregivers together in their yearly Symposium...and one of the truly healing and bonding experiences that has developed at this event is a band! They call themselves the Meso Fighters Band, and I wrote a blog post about them here. Please forgive the shameless plug...only including the link because it is absolutely an example of what makes the Meso Foundation, and all associated with it, exceptional: http://www.jcsmusicsbest.blogspot.com/2015/08/we-will-rock-you-meso-fighters-band.html
Incredible peer support for a rare disease that doesn't have a lot of support elsewhere. The foundation helps the entire family, not just the patient. The funding they have provided for research has truly made a differenced in the world of mesothelioma treatment. i'm proud to continually spread the word and raise money for this foundation, as I know it will be used for research.
This is a great foundation with purpose. It has helped many families that are going through an unbelievably tough time. Trying to provide answers, where there are none. Trying to provide solutions, where they are needed. They have played a very influential role in members of my families lives. We all appreciate everything they have done.