Gr8 organization very dedicated to the patients and families it serves!!!
The Meso Foundation has helped me as a caregiver and my husband as a patient with peritoneal mesothelioma with information and support groups through Facebook, telephone calls, symposiums, etc. They also fund much needed research for a cure. They have become a lifeline and a new community for me. Everything is also done with the utmost integrity and humanity.
As a Mesothelioma Foundation board member for the last 3 years I can't say enough about this foundation. It is the only foundation funding PEER REVIEWED medical research, dedicated to finding better treatments and ultimately the CURE for this ugly disease.
PEER REVIEWED research is a critical aspect to finding a cure. Our non paid Science Advisory Board is comprised top doctors and researchers with years of experience in Mesothelioma care. They review 50 plus research grant proposals annually and award grants based on MERIT ONLY. We are the only foundation that does that, and have given out over 8 million dollars in research grants in the past 11 years. Results from several of those grants have received additional research funding from the Department of Defense peer reviewed medical research program.
Additional services include patient, caregiver, and bereaved support groups in individual or group settings.
The Foundation Board is comprised of non paid personnel who have a personal connection to this disease, either as a caregiver who lost a loved one to mesothelioma, as a patient, as a doctor or researcher, or have a military background. One third of newly diagnosed patients have a military background.
The Foundation is directed by a nurse practitioner with over 16 years experience in treating mesothelioma patients, and is known world wide for her expertise. Her small staff works relentlessly to advance the cause to find better treatments and a cure.
Why am I so attached to this foundation? Because I believe it gives the mesothelioma community the hope we need in finding better treatments and a cure. Yes, I did say we, as I am a 7 year mesothelioma survivor.
My son was diagnosed with mesothelioma in December 2006, and died in September 2009. Between his diagnosis and his death he sought information on the nature of the disease and possible treatment options. The most useful, honest and unfiltered information he received was from personnel and contacts at the Mesothelioma Advanced Research Foundation. My son contacted the Foundation numerous times for advice on potential treatments and clinical trials, and relied on them for important guidance. He came to believe they were the preeminent source of this information, and they provided this information with a caring attitude and strong psychological support as well.
As I began to learn about the Foundation, it was apparent to me that their stated focus of guiding the patient victims and providing funds for research was more than an altruistic goal. They really live that mission. As a result I have joined the Board of Directors and committed my time as well as monetary resources to their very worthy efforts.
My husband was diagnosed December 31, 2001 with meso at the young age of 39. We were told the same by our local physician, get your affairs in order, travel to Europe etc....you have 6 to 8 months to live. I immediately hit the internet that New Year's Eve night and located the Meso Foundation. Left them a message and received a call from Chris Hahn, the Executive Director that January 2, 2002. I contribute that initial contact to my husbands' survial of 5 years. He succumbed to the disease December 21, 2006 at the age of 44. The outstanding caring, knowledge, assistance this foundation has given my family is beyond words. My heartfelt thank you and gratitude to this wonderful organization.
The Mesothelioma Applied Research Foundation (MARF) or Meso Foundation as it is commonly known looks after the interest of patients and families that are victims of this deadly but preventable disease. As there is virtually no research funded by the government or by any other groups the available treatment arsenal hasn’t changed much over the last 30 years contrary to the progress seen in eg Breast, Colorectal, Non-Hodgkin’s lymphoma, and Multiple Myeloma to mention just a few malignant diseases that have seen the impact of newer treatment modalities. The other side of Mesothelioma is the money, due to the asbestosis litigation which makes every patient a potential gold mine for those few law firms that are selected to represent the patient. Thus, there is a lot of advertisement from respectable and less respectable trial attorneys trying to attract a potential client. For a person with a newly diagnosed deadly malignant disease, with a name you can hardly pronounce, it’s not an easy task to navigate the turbulent waters of the excessive but not always necessary information flow. No wonder patients and families feel lost and confused in a time of significant stress and chock. MARF was founded to be a non-biased support group, initially helping patients with the information flow, supporting patients who can ill afford to travel for a consultation with the few and far apart clinical experts, supporting the family in difficult times and not least trying to find money for the much needed basic and clinical research, compensating for all the lost ground that the years of neglect and ignorance has caused. The Meso Foundation has as it’s ultimate long term goal to find the tools that will cure the disease and to work with other organizations to find ways to eradicate this preventable disease. As an Oncologist, Clinical Research Physician and Scientist working within the Meso Foundation finding a way to make the public, the medical community and the “government” aware and engaged in taking on the fight against Mesothelioma and reaching out to the many patients and families that are victims of this deadly but preventable malignant disease to help and support them is a noble and important task. I call on you to help me/us in doing the same, we are long overdue with dealing with this disease and you can make the difference.
My son was diagnosed with peritoneal mesothelioma 10 years ago, sadly before the Meso Foundation was established for the sole purpose of funding research to find treatment and a cure for this asbestos induced cancer. I have seen the progress over the past years in the ability of patients to fight off mesothelioma for longer and longer periods of time, all thanks to the Foundation's great generosity in funding promising research for treatment and a cure - its only mission. Please help the Meso Foundation end this disease by giving generously. It is too late for my son, but future victims will thank you.