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Mesothelioma Applied Research Foundation Inc

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Nonprofit Overview

Causes: Cancer, Cancer Research, Health

Mission: The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease. Malignant mesothelioma is a rare cancer of the linings of the chest or abdomen. Asbestos exposure is the only known cause. The Meso Foundation solicits and rigorously reviews applications, and then awards significant grants, for research on the prevention, early detection, and treatment of mesothelioma. Through its web site and literature, its direct communications, and annual International Symposium on Malignant Mesothelioma, the Foundation provides patients, family members and physicians with hope, encouragement, and information. The Meso Foundation employs a full-time mesothelioma nurse practitioner to help patients navigate their treatments. In addition, the Foundation works to enhance awareness of this disease and to encourage federal funding for research.

Programs: The Mesothelioma Applied Research Foundation (also known as the Meso Foundation) is the only 501(c)3 nonprofit organization dedicated to eradicating mesothelioma and easing the suffering caused by this cancer. It does so by focusing on four main program areas: • RESEARCH: Funding and support of the highest level of peer-reviewed mesothelioma research; • EDUCATION: Educating patients, their families, risk populations, and the public at large about mesothelioma; • SUPPORT: Providing patient support services; • ADVOCACY: Advocating Congress for increased federal funding for mesothelioma research. The Meso Foundation is the only non-government funder of peer-reviewed scientific research to establish life-saving treatments for mesothelioma. To date, the Foundation has directly awarded over $8.7 million and, through its advocacy efforts, has directed another $8.9 million to promising mesothelioma research.

Community Stories

29 Stories from Volunteers, Donors & Supporters

1

General Member of the Public

Rating: 5

this is a great organization that has helped by friend Bonnie Anderson to be here for her grandaughter. thank you

1

General Member of the Public

Rating: 5

When my father was diagnosed with Mesothelioma in October 2008, not knowing anything on the disease, I quickly began researching on the internet, which led me to MARF. I cannot say enough about MARF. I would give it 1 million stars if I could. Their website is the greatest resource for anyone seeking information on the disease or just moral support. Not only does their website provide an astounding amount of information on the disease, their boards connected my family and I to others who were once in our shoes, providing us with support and guidance. Additionally, Mary Hersdorffer, the medical liason, provided more help than imagineable. She connected us to medical resources we didn't even know existed! I credit her and the site's promptness in contacting my family to part of why my dad is still alive and fighting today. The site has provided inspiration, understanding, and hope to my family, as I'm sure with others as well. I don't know what we would have done had we not found MARF. Thank you from the bottoms of all our hearts!

2

General Member of the Public

Rating: 1

it is okay but there is another california foundation that seems to do more and has higher visibility.....can't remember the name but they have high profile people to make their case

1

General Member of the Public

Rating: 5

My Uncle Mike died of mesothelioma and my mother found MARF and told me about it. They help patients and their familes learn about mesothelioma, connect them to resources, have wonderful support in their online community, have a team of researchers and doctors who work tirelessly to try to improve treatment and find a cure, and are always there when a victim of meso, or their family needs them, or when a loved one of someone who has lost the battle needs them. They are an excellent organization and so deserving of every award available

1

General Member of the Public

Rating: 5

When my husband was diagnosed with mesothelioma in Jan 1997 and told to go home and die."which is what he did 5 months later," we knew absolutely nothing about this disease. Or about the evil of asbestos. The heartbreak it was to cause for so many families. And the shame of it all is because there are still many places where this product still is in existence, the killing will go on and on for a long, long time. Thank you for the Mesothelioma Applied Research Foundation Inc for being there for so many people. I just wish we had had a place to go to in 1997 for the help you give so many people. There was no where here in New Zealand, Deidre vanGerven

1

General Member of the Public

Rating: 5

MARF is responsible for helping to keep my friend Bonnie alive. She was diagnosed with meso 7 years ago and is still alive today. She credits this foundation with many good things and because she is STILL alive today, so do I.

20

General Member of the Public

Rating: 5

It was by accident that I found Mesothelioma Applied Research Foundation, (MARF) actually. My brother was sick many years and had been repeatedly misdiagnosed and sent home every time he went to the doctor or hospital begging for help, pleading for more tests. He told me he thought he was dying. He was right. Michael died in a hospital clinic, and wasn't diagnosed until his autopsy. The coroner described his lungs as "just a mess..." It was after his death that I found MARF while trying to learn everything I could about mesothelioma, and to become an advocate to fight the fight my brother couldn't win. I don't know what I would do without my beloved friends and the wonderful staff at MARF! The sincere love, support, wealth of information and resources, and the advocacy one finds at MARF is almost unbelievable, and has helped me through the devastation of losing my brother. The victims themselves, the loved ones of those fighting, the loved ones of the warriors who have passed away from this horrible disease...we all find love, strength, support and lasting friendships within each other. It is sad indeed that we must come together from the tragedy of mesothelioma, but without MARF, many of us would not have the strength we have to fight for a total ban on asbestos, for mesothelioma funding to support research so that improved treatments and a cure can be found, ongoing treatment, support for the meso warriors and their families, and information resources. They have been a godsend to me!

1 Mifox1956

General Member of the Public

Rating: 5

Until I found the Mesothelioma Applied Research Foundation, My wife and I had no hope in the treatment of her peritoneal mesothelioma. The information that was available through MARF was a lifesaver in that they were able to give us a direction and purpose in our battle, giving us above all else, HOPE that was not available to us anywhere.

1

General Member of the Public

Rating: 5

my parents home was insulated with asbestos. My mother was badly burnt when trying to clean it and her breathing has been difficult for year. No one would agree it was dangerous, no one would agree that it was the cause of all the issues. We knew better, their home was rebuilt from brick to drywall, to rid of this from the home. There needs to be a cure, we need to find that to help those who suffer.