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Mesothelioma Applied Research Foundation Inc

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Nonprofit Overview

Causes: Cancer, Cancer Research, Health

Mission: The mission of the Mesothelioma Applied Research Foundation (Meso Foundation) is to eradicate mesothelioma as a life-ending disease. Malignant mesothelioma is a rare cancer of the linings of the chest or abdomen. Asbestos exposure is the only known cause. The Meso Foundation solicits and rigorously reviews applications, and then awards significant grants, for research on the prevention, early detection, and treatment of mesothelioma. Through its web site and literature, its direct communications, and annual International Symposium on Malignant Mesothelioma, the Foundation provides patients, family members and physicians with hope, encouragement, and information. The Meso Foundation employs a full-time mesothelioma nurse practitioner to help patients navigate their treatments. In addition, the Foundation works to enhance awareness of this disease and to encourage federal funding for research.

Programs: The Mesothelioma Applied Research Foundation (also known as the Meso Foundation) is the only 501(c)3 nonprofit organization dedicated to eradicating mesothelioma and easing the suffering caused by this cancer. It does so by focusing on four main program areas: • RESEARCH: Funding and support of the highest level of peer-reviewed mesothelioma research; • EDUCATION: Educating patients, their families, risk populations, and the public at large about mesothelioma; • SUPPORT: Providing patient support services; • ADVOCACY: Advocating Congress for increased federal funding for mesothelioma research. The Meso Foundation is the only non-government funder of peer-reviewed scientific research to establish life-saving treatments for mesothelioma. To date, the Foundation has directly awarded over $8.7 million and, through its advocacy efforts, has directed another $8.9 million to promising mesothelioma research.

Community Stories

29 Stories from Volunteers, Donors & Supporters

2 Ashley185

General Member of the Public

Rating: 5

My dad was diagnosed with Mesathemioma in July 2014. This foundation helped a lot. I know my dad must talk them since he had curemeso magnet. I got involved when I decided to do my own charity event for them. My dad past away from mesothelioma 2 months ago and this nonprofit has been so supportive

1

General Member of the Public

Rating: 5

What a great source for information and support. Everyone associated with it wants to help find a cure and help you and your family.

2 Mavis N.

General Member of the Public

Rating: 5

I was diagnosed in 2009 and I have been on a long journey where the infomation on Mesothelioma is so swamped with bad news. I found MARF and although in the US and Im in the UK it was great to find other people in the same boat as myself. I found so much infomation and great to read about trials that although in the US soon came to the UK. We are all one family and we share so much.
I share the site and infomation with our Mesowarriors UK Groups on Social Media so a huge thankyou for all the hard work xx

2

General Member of the Public

Rating: 5

I cannot thank the staff at MARF enough. When my father was diagnosed with mesothelioma, we had no one to turn to at the hospital. No one was answering questions, no one was giving us resources. Then, we found MARF. My father only lived two months after his diagnosis but without the help of MARF, those two months would have been more chaotic and uncomfortable than I could ever have imagined. Thank you for being there and thank you for you support. Here is a photo of our family at our first Miles for Meso this summer, two months after my dad passed away.

3

General Member of the Public

Rating: 5

Cure Meso helped me understand my second "Moms" condition. It helped me understand the complexities of this disease and helped me feel connected with others who were going through the same. It helped spread the word about Meso by ordering and wearing the "curemeso" blue braclets. More awareness needs to be made an more research needs to be done and MARF is doing just that. Forever grateful for this nonprofit!!!

6 JoAnn16

General Member of the Public

Rating: 5

Did wonders for my friend who has now been free of the disease for 9 years. The research grants, patient and caregiver support, and wealth of information is second to none along with the small staff that keeps it's wheels oiled looking for better treatments and a cure.

1

General Member of the Public

Rating: 5

It keeps us all up to date on the latest information on mesothelioma.

2

General Member of the Public

Rating: 5

I lost my beloved husband to mesothelioma 4/10/09 and found this site after his death. I am so gratified to find people actively working to find cures, give advice and encouragement and raise funds etc. for those suffering as we did. Mesothelioma is a killer and an awful way to die. Anything that can be done to help eradicate this terrible disease and to help those suffering from it is a good thing. Please keep up the good work.

1

General Member of the Public

Rating: 5

Cure Meso. Org. This organization helps get information to those who are in need of medications and Who need assistance in helping others with this horrible disease

1

General Member of the Public

Rating: 5

When my mother was diagnosed with mesothelioma we got most of our information and guidance from MARF. My mother did not live very long after the diagnosis but I am thankful for the help we received from MARF.

1 Rossana E.

General Member of the Public

Rating: 5

The meso foundation was there for my family from day one. They helped us find the best doctors we could for my father and helped us feel at ease. Many of the members have become close friends of ours. We will continue to support them and go to their fundraising events!

1 Kristy11

General Member of the Public

Rating: 5

I subscribed to this foundation after my beautiful Mum was diagnosed with Meso last year. It gives me hope & feels like there's a whole community of people who care out there as I read their regular social media updates. They are always extremely positive & do a great job of updating us all on trials & research from all over the world.

1 Ruth39

General Member of the Public

Rating: 4

My husband is a stage 4 Mesothelioma patient and this site has helped us both greatly.

1 NW Outreach Ministries

General Member of the Public

Rating: 5

My husband, John, was diagnosed with peritoneal mesothelioma a year ago. We frantically searched for help, but it seemed there was no place to find information or support for this rare type of cancer. So when we found MARF online it was God-sent! Mary was so encouraging! She was kind with a wealth of knowledge. She added us to a survivors and caregivers support group - an ongoing blessing! We were moved from fear to hope as knowledge gained from MARF's research helped us navigate to the best possible treatment options. John had a 14 hr. surgery with the only dr. in our area having the expertise to perform it. Today John is doing very well! Only those that have walked this road know what is needed for survival. We are grateful to the MARF staff for all they do to fight this terrible disease and their mission to find a cure for mesothelioma, including grants for clinical trials.

3

General Member of the Public

Rating: 5

Where do you turn when you've diagnosed with a deadly disease you can't even pronounce? The Mesothelioma Applied Research Foundation Inc., helped by dear childhood friend by providing her and her family with up-to-date research materials, treatment options, an incredible support system and hope.

2

General Member of the Public

Rating: 5

After a 2 week stay in the hospital, my husband was diagnosed w/pleural meso in March of 2008. He was only 51. The pulmonologist told us to go home & get our affairs in order. Of course, we didn't do that but started on a chemo regimen with a local oncologist. It has been 16 months & we've had our ups & downs with this horrific disease. The day of the diagnosis, I got on the internet & found MARF. After looking at other sites, MARF was the most informative & personable site & so started our relationship with staff, victims, volunteers, widows, caregivers and world of information to help in our fight with meso. Everyone is so caring & compassionate because they too, have been touched by this disease on a personal level. Most importantly this foundation has given us hope.

1

General Member of the Public

Rating: 5

The Mesothelioma Applied Research Foundation is a remarkable non-profit organization that truly helps and cares about patients and care-givers. My mother was diagnosed with pleural meso about a year ago and we have found so many resources and information from MARF. We have utilized the resident nurse, Mary Herdorffer, with her plethora of information on doctors, medicinal information, and overall treatment options. She is available via phone or email basically every day of the week for patients to access for questions or data. My father and I attended the International Mesothelioma Symposium, which MARF has organized for the past few years, in Washington D.C. and received so much information, contacts, and feeling of hope! We were able to travel to Capitol Hill and voice our stories and ask for help with research funding, awareness, and support in banning asbestos legislation to our state's representatives. We learned valuable information from the top researchers and doctors from around the world who focus on this disease. I plan to attend this Symposium year after year, and I vow to stay involved with the foundation because it creates hope for a cure for this terrible disease. It funds research grants, is in the process of making September 26 a Mesothelioma Awareness Day nation-wide, and helps thousands of people.

1

General Member of the Public

Rating: 5

Amazing group of people. The support they have given our family is overwhelming. They are advocates for patients and continue to fight for a cure and legislation to end this disease. My uncle lived 10 years with this disease. During that time MARF became a part of his daily life. He touched others with the disease thru MARF and gave them support. Hi wife also became part of MARF. She went from organizing school fund raiders to becoming a leader in national fund raising for MARF. She also supports patients and their families today. MARF helps those that are given a diagnosis that to many is a mystery.

1

General Member of the Public

Rating: 5

I believe that MARF has truly helped my family members deal with the tragic news of having cancer in a way that I admire. The organization has helped them become members of a community of hope in a time when hope isn't easy to come by.

1

General Member of the Public

Rating: 5

When my husband was diagnosed with Mesothelioma, we knew nothing about this disease.Even after his lung was removed until his death 8 months later, we knew very little.After I found MARF,I realized how many people are diagnosed with meso each year.I also found out about major treatments available for patients and tons of support for patients and the families. I have hope that one day with the work that is done by this non-profit organization [ Marf]and the funding for research that a cure will be found.