My diagnosis of mesothelioma was a shocker. Trolling the internet for information turned up MARF--a source not only of information but also of hope. Even though I had been to a major cancer center for a second opinion, I had been offered nothing but symptom treatment. MARF showed me the way to one of the few medical centers that actually treat mesothelioma. The staff has been extraordinarily supportive and the organization's work continues to offer hope.
The doctors told my family that my father had about 6 months to live, and that he should get his affairs in order. When it seemed like all hope was shattered, I stumbled upon the Mesothelioma Applied Research Foundation. Their supportive staff helped my family to find specialists, learn about clinical trials, connect with others battling this cancer, and most importantly this foundation gave us hope.
The Mesothelioma Applied Research Foundation is THE source for mesothelioma awareness, medical guidance and other support for anyone impacted by mesothelioma. Mesothelioma awareness and research for better treatments and a cure are desperately needed, and only MARF can meet these needs. MARF is also attempting to establish September 26 as an annual Mesothelioma Awareness Day and assists individuals who are working with their state legislators for state recognition of this date. My 39-year-old son died of mesothelioma in 2006, and MARF continues wto support me and my efforts to promote mesothelioma awareness in his memory.
MARF has been a tremendously helpful resource for our family. When my mother was diagnosed with mesothelioma, we had no idea what it was or knew anything about the disease. Now we have a network of people for support, info on the latest developments, and lots of hope.
MARF has been a life line for me with its wealth of information, caring and resourceful staff, and a wonderful community, a “family” of supporters on its website. My husband of 47 years died after courageous one year battle with mesothelioma, a cancer caused by asbestos. He had worked directly with asbestos some 40 years before and at various times since. That is one of the hardest parts to understand......that it could be in your system so long before anything surfaces. I wish whole heartily that there was some magic solution that would erase this whole meso mess, but there isn’t.....YET!!! Someday there will be a solution, there will be a cure.....I HAVE TO BELIEVE THAT!!!. And all those who have gone before, in some way or other, have helped with the research, the trials, etc, each little bit of knowledge gained will contribute towards that solution, that cure. I HAVE TO BELEIVE THAT!!!! MARF has been hard at work trying to reach that goal by researching for a cure, for treatment options, for better and earlier ways to detect meso, and most importantly for banning asbestos usage. With more funding, so much more can be done to reach this goal.
Our son was diagnosed with Mesothelioma two and one-half years ago. Since there are only approximately 300 cases annually of the type of meso from which he suffers, it is known in the medical community as an "orphan disease". This designation has been applied because it receives very little funding from the typical sources to help find a cure. Additionally, information about treatment options is hard to find. The resources of M.A.R.F. have assisted us to locate the limited number of medical doctors in the United States that have expertise in treating the disease. It is one of the most valuable services offered because of the scarcity of information. In addition, the Foundation solicits private money for research and lobbies Congress to provide public funding as well. M.A.R.F. has a very small staff that is able to make a substantial impact. They plan and conduct an annual symposium attended by 300+ people in which the leading physicians present the most recent advancements in treatment and survivors share their stories. The staff is very efficient and able to offer services well beyond the limited resources provided to them.
i was diagnosed with mesothelioma in dec. 2005. i was 23. my mother found MARF one day while researching my illness. all through my treatment she kept telling me about this organization and their website. she kept telling me about all the other patients, and caregivers, and family members. she also kept learning about new clinical trials and facts about mesothelioma. then she joined as a volunteer so she could help find a cure. so once i was feeling better, i checked out MARF's website. i am so glad i did! i learned so much about my disease. stuff my doctors didnt know. i met wonderful people who have become a huge part of my life and fight against cancer. and i too have become a volunteer. i want to make a difference. i want asbestos banned and i want funding for research. so does MARF. they work so hard for the victims and their families. the patients are givin hope, when its needed most. the staff knows each person and their case personally and knows you on a first name basis. i can truly say they have become part of my family! i dont know what i'd do without MARF!
To suffer with cancer is a difficult task at best; to suffer alone is unconscionable. My husband was struck with mesothelioma in September of 2007. Internet searches for information about mesothelioma were dismal at best until I happened upon MARF. It’s difficult for me to see MARF as an organization but rather a group of people who are truly passionate about helping those afflicted with mesothelioma as well as their caregivers, families, and medical personnel associated with this disease. MARF not only offers much needed information about meso in a straightforward, easy to understand manner, they offer hope. And as anyone associated with cancer will tell you, we should all be allowed hope. The folks at MARF are quick to return phone calls, knowledgeable with answers and work diligently to support and fund research that may one day offer a cure for this terrible cancer.
When my husband of thirty-eight years was diagnosed with mesothelioma back in 2000, we were told by the first doctor we went to that he had approximately six months to live. Though that doctor didn't say, "Go home and die," he wanted to operate and he'd had only twelve meso patients before my husband -- none of whom lived more than a month or two past the surgery. Someone told us that the Mesothelioma Applied Research Foundation had a packet of information about the disease and meso doctors. We got that packet, learned there was more to fighting meso than letting a doctor with no experience practice on a loved one -- that there was a chance to lengthen my husband's life even if meso couldn't be cured. We got four years of being together instead of six months thanks to information about Dr. Sugarbaker and other doctors we found through the Mesothelioma Applied Research Foundation. There was even helpful advice on dealing with "ambulance-chasing lawyers" and on avoiding scammers -- interesting because it was founded by a lawyer whose father, I believe, had contracted meso. The Foundation has come a long way in the last nine years. I see it connecting people into a network of assistance with all manner of questions that meso victims and their families have to deal with. MARF responds to real needs! (Bec Gilbert)
The Mesothelioma Applied Research Foundation has been and remains an important organization in my fight with mesothelioma. Upon receiving my diagnosis in July of 2007, my wife and I were in a state of chaos. Definitive information about this disease, its treatment and contact with another person who was fighting this battle was non existent for us until we found the Foundation. Within 24 hours of placing a call to the 800 phone number, we received a call from a staff nurse who was willing to spend time answering all of our questions. The additional resources provided by the Foundation did, and continue to provide support and information for us. This is truly a deserving, client centered, organization which should be supported in any way possible.
The Mesothelioma Applied Research Foundation, was extremely helpful during my husbands battle with Mesothelioma cancer. I was heartbroken after my husbands diagnosis and went searching for some info. about this cancer that I had never heard of. From my first contact with MARF I was introduced to a nurse who listened to all my questions and then answered them one by one. She put me in touch with a Mesothelioma patient in my area and I was able to meet this person, hear about her treatments and make informed decisions. I have developed a strong bond with this wonderful lady. I was able to take my husband to see several doctors that are experts in Mesothelioma because of the information I had attained. This saved us precious time. We met the best doctors on the East coast and we were able to make the most informed decisions on treatments, because this cancer has no cure each doctor has a different theory on treatment. I believe with out the help of MARF, my husband would have never survived for the 17 months he did. Most patients are given a 6-9 month life expectancy. MARF is heavly involved in getting the laws in the United States changed so everyday people will not be exposed to asbestos. Exposure to the deadly mineral is the main cause of Mesothelioma. Once Mesothelioma has taken a hold it is a terrible painful death. Ithink this is a wonderful Foundation and in much need of public exposure.
MARF has been a wonderfully supportive organization, providing links between patients and doctors, researchers, and other patients as well as information on the latest research into the treatments and causes of mesothelioma. Patients with this rare disease often have little local access to information, and this is the one organization with links throughout the country that can provide help that is often not available through doctors and hospitals. MARF also lobbies for legislation to eliminate the danger of asbestos, which still exists, despite the widespread notion that it has been removed.
As the caretaker of a meso patient, I found this site to be a God-send. I received hope, encouragement and the name of a meso specialist that I could take my husband to for a second opinion. During the course of his illness I received hope and encouragement by the patients and caregivers on the MARF discussion board. I shared our experiences, hope and knowledge gained bcz of the disease, and used that to encourage others and also at times to vent the grief that was welling up within me - by trying to end entries on a lighter or laughable note. My husbands 27-month long battle with meso ended just 3-1/2 weeks ago.
When my 48 year-od husband was diagnosed with this disease, I was told he only had two years to live, MARF provided me with the information I needed to give him a shot at a cure. Their MESO Community Blog is an invaluable method of support for people dealing with this very rare and unique form cancer. This foundation works tirelessly to educate the public about this disease and to pass laws to decrease the number of people who continue to be exposed to asbestos.