Great organization that helps patients and families affected by mesothelioma to find right treatment. Also sponsors several grants for research and over 90% donated funds goes into research
The ONLY organization related to mesothelioma that helps patients, caregivers find the right path.
When I was diagnosed in 2009, Mary was the only person who called me and asked how can we help you? What is you plan? who is your doctor/ you team?
Since then I have enormous respect and love for all the people working for MARF.
Plus, this is the only organization that connects all of us somehow related to Mesothelioma. With organizing Symposiums and events, the Meso family comes together - patients, caregivers, widowers, doctors, nurses... can be found in the same room.... where all questions can be asked and answered; happy news and worries shared with people who understand.
My husband was given 6 months to live after being diagnosised with peritoneal mesothelioma. This was in 1998. Thankfully we found a trial in NY and he survived 11 years. It was after the first or second year that the Meso Foundation opened it doors and we found them on the internet. They immediately began to give us the support we so disperately needed. They knew about about the disease and offered us hope. We began going to symposiums and meeting many other patients and caregivers. Craig began giving others hope as he continued to beat the odds and live a strong productive life. I found my niche in fundraising for the Foundation. It empowered us against a monster. The Foundation helps people get the help they need and provides much more than information. They provide support of other patients and that is priceless.
I have had the privilage of working with people at the Mesothelioma Applied Research Foundation (MARF) since it began. It has literally helped to save hundreds of lives by giving not only hope but by actually giving advice to patients who are fighting an orphan disease. Most, if not all patients are told there is nothing that can be done for them when the are diagosised with this horrific cancer and given about 6 months to live. MARF not only given them HOPE but also helps with "scholoships" to help patients that don't have the means to get to their first doctors appointment. There are only a handful of specialiest that treat this disease and MARF raises more awareness and funding than government ever has. Having just lost my husband this past April to mesothelioma, I can tell that the MARF organization is an organization that is not only needed but is a lifeline for many that have no place else to turn. shellysbelieving
I have family members & thousands of families are in the US Asbestos Exposure Health Emergency of Libby, Montana. In seeking Life Saving Medical Treatment for my family, I called the National Cancer Institute (NCI), and explained my families health situations. The NCI informed me that there are Zero Designated Cancer Treatment Centers in the Whole State of Montana, and Referred me to the Mesothelioma Applied Research Foundation aka CureMeso. This said everything to me, that CureMeso is the Best.
To this day, I'm still working with Mary Hesdorffer at CureMeso, in obtaining help for my family members, and appreciate all the time and effort she has given to my family members. Asbestos exposure not only affects the Lungs, it also affects other vital organs of the body. My brother Diagnosed by Dr. Brad Black of Libby CARD Clinic, has had to have a Kidney removed, and his wife is in Double Kidney Failure, so not only am I appreciative of CureMeso, but also The Kidney Foundation and UHCancerCenter whom also is now working with my family to save their lives. I appreciate all whom are helping to save the lives of my family members, and others with Asbestos Related Diseases.
This non profit organization has helped so many others. Whether you are fighting for your life, caring for a loved one, lost a loved one or want to support research, the great people at mesothelioma applied research can help guide, direct and comfort you in your personal journey!
When my husband was diagnosised with Mesothelioma naturally fear set in . But somehow I/we found
Our way to MARF. This nonprofit is a godsend! They are not associated with any attorney's. The volunteers
Who call & talk with you, help you find the best care possible for your love ones. They are awesome people. The staff at MARF are always willing to help you. The caregivers support groups are super . I can go on & on. Simply put they saved me. Thank you to all the staff especially, Mary H...
MARF is an awesome organization that truly cares about the patient as well as the care givers. They work really hard along with their members to get the word out regarding this orphaned disease and the research money it so badly needs to find a cure! If it was not for MARF I'm not sure how I would have survived these past 3 years! My husband was diagnosised on 8/31/06 and the foundation and it's resources have been terrific!!!!
I came into contact with MARF in January of 2009 and started to volunteer in September 2012. This is a group of people who care about the whole person, not just the diagnosis, or the part of the body with Meso. They care about you and your family and all those affected by the diagnosis. And they offer support to each one. And unlike other Meso organizations, they are not a front for a law firm whose real interest is is getting you to sign on with them so they can get part of your money. This is THE go to place for the most current information on treatment and trial, for details on advocacy and legislation, and for people coming together in love and support. Read the other reviews! There is no finer organization. And I simply would not volunteer my time with any other organization.
I attended the Mesothelioma Applied Research Foundations Symposium in Washington DC in June 2009. I was impressed by the dedication of all involved. The Symposium was for patients, caregivers, doctors and researchers. Whatever the persons involvement, they were there with their whole heart. I was surprised to see so many people who have lost loved ones to Mesothelioma still so involved in the Foundation. It speaks alot to their dedication to finding a cure for meso. I was there as a volunteer and I know I will continue to help the Foundation in their fight to help ban asbestos and help to fund research to find a cure.
Mesothelioma has affected a dear friend of mine. Knowing about this disease, where it comes from, how we as Americans can stop others from being diagnosed and hopefully finding a cure. . . . has changed my life significantly. Julie Gunlach, a Mesothelioma "diagnosee" loves life more than almost any other person I know. She is an intelligent, loving, beautiful, courageous, brave, mother, daughter, sister, wife and wonderful friend. She deserves a cure as does everyone else diagnosed with this disease and everyone else in the future diagnosed.
MARF brings patients & families from the dark pit of no knowledge about a diagnosis of mesothelioma into the light of hope & treatment! Most patients diagnosed with meso are told there's no effective treatment available. There is & MARF has the connections to it! They have a talented, tuely caring nurse/practioner to work with patients & their families. The best specialists for this terrible cancer can be found through MARF. My daughter is a survivor & I am now a volunteer offering support where & how ever I can. I also advocate for awareness about asbestos & mesothelioma. The MARF staff genuinely care for their cause & the people they help. They do a great job of funding research to find better treatments &, hopefully a cure. The on-line community formed on the MARF web site really care for each other & offer hope, support, knowledge, comfort, & love. Everyone with a horrific illness like meso should be so lucky as those who find this foundation! Whether or not my cancer recurs I will continue to work as a volunteer & stay connected to my MARF "family".
In 2002, I was at what I thought was the peak of my life. I was a 52 year old nurse with a great career. I was weeks away from marrying the love of my life, and we had just bought our dream home together. I was physically active, an avid hiker, biker, snorkeler and free diver, and my fiancee and I looked forward to traveling the world together. My happiness was boundless. The only problem was a nagging cold that I couldn't seem to get rid of - my doctor felt antibiotics would do the trick, but took a chest xray "just in case". That xray was the key to a nightmare whose name was malignant pleural mesothelioma, a lethal type of cancer. My professional training, my doctors, and every thing I read on the Internet told me I was doomed to die within months - maybe a year if I was lucky. I have never felt so alone or so afraid, or so without hope. I could not stop crying. But then I found MARF - the Mesothelioma Foundation, and a small light began to shine in all the darkness that surrounded me. Here were people who gave me hope, information on treatment options that could help me, and put me in contact with other patients like myself. And they stayed with me, every step of the way, cheering me on and telling me not to give up. That was over 7 years ago. It has not been an easy road to travel, but I have never had to travel it alone - not for an instant. My fiance stuck with me (and became my husband) and so did the people at MARF. The clinical information they provided never failed to help me identify cutting edge treatments that gave me a fighting chance to live. Their unwavering support and encouragement saw me through the rough spots. They buoyed my spirits by sharing both my highs and my lows with unconditional compassion. Without this organization, I am certain I would have curled up into a terrified ball, given up, and died. I will never be able to adequately describe what they gave me: they gave me HOPE, the sweetest gift there is. They gave me back my life.
In January 2009, my Grampy was diagnosed with Mesothelioma, an awful cancer caused by asbestos. I had seen the commercials on tv about Meso but really did not know or understand it. We were told he had 5 months and left with no options and little hope. I decided to take to the internet. I stumbled upon the MARF website and it was a miracle. I learned about Meso and learned that there is some hope. I signed up for a book "100 Questions and Answers" and received it in about a week. The book was free and after I read it, I passed it on to my Grampy. He had more hope after reading that book than he did since he was disgnosed. My family has been passing the book on and it is on the 8th person now (with 20 to go). After signing up on the website, a nurse called to make sure I was getting the answers I needed. I genuinely felt like I was no longer alone, struggling for answers. As a young adult, I am a member of facebook. MARF has a page and I got to contribute by helping them raise money by adding friends. In a little over 3 months their members have increased by over 20,000! MARF is a great foundation helping to spread the world that Mesothelioma is an awful disease but one that can be fought! They have given me an opportunity to help, comfort and most importantly, they have given my Grampy hope.