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Meningioma Mommas, Inc.

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Nonprofit Overview

Causes: Brain Disorders, Brain Disorders Research, Health, Health Support

Mission: Meningioma Mommas is a 501 (c) (3) not-for-profit organization, which provides support and valuable resources to all those affected by meningioma brain tumors. We are dedicated to raising meningioma awareness and funding for meningioma specific research.

Results: Meningioma Mommas is a 501(c)(3) not-for-profit organization, which provides support and valuable resources to all those affected by meninigoma brain tumors. We are committed to funding ONLY meningioma specific research. We have donated $313,000 to fund research supporting Dr. Elizabeth Claus (YALE), Dr. Michael McDermott (UCSF), Dr. Gregory Riggins & Dr. Gilson Baia (JOHNS HOPKINS), Dr. John Lee (UPENN), Dr. Daniel Kelly & Dr. Garni Barkhoudarian (John Wayne Cancer Institute at Saint John’s Health Center), Dr. Randy Jensen (University of Utah) & Dr. Long-Sheng Chang (Ohio State Univ.), Dr. Albert Kim (Washington University in St. Louis), Dr. Nader Sanai at the Barrow Neurological Institute, Dr. Robert Martuza and Dr. Hiroaki Wakimoto (HARVARD UNIVERSITY, MASSACHUSETTS GENERAL HOSPITAL), and Dr. Melanie Hayden Gephart at Stanford University. We’ve lost too many second family members and need a cure.

Community Stories

1 Story from Volunteers, Donors & Supporters

1

Client Served

Rating: 5

When I was diagnosed with a meningioma in 2008, I started researching immediately. I found Meningioma Mommas and I will forever be grateful. The information, the connections with others, the contributions to meningioma research has been built by committed leadership. My neurosurgeon saved my brain. Menigioma Mommas saved my sanity. Like I said, I will forever be grateful. Barbara

1

General Member of the Public

Rating: 2

I have to concur with the previous review. While I found this forum to be very helpful in recovering from the trauma of a meningioma, along with connecting with other meningioma survivors, the administrators were very defensive and even combative at times which caused me to move on. It was unfortunate because I know the organization has been quite helpful to the cause of meningioma survivors.