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Meningioma Mommas, Inc.

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Nonprofit Overview

Causes: Brain Disorders, Brain Disorders Research, Health, Health Support

Mission: Meningioma Mommas is a 501 (c) (3) not-for-profit organization, which provides support and valuable resources to all those affected by meningioma brain tumors. We are dedicated to raising meningioma awareness and funding for meningioma specific research.

Results: Meningioma Mommas is a 501(c)(3) not-for-profit organization, which provides support and valuable resources to all those affected by meninigoma brain tumors. We are committed to funding ONLY meningioma specific research. We have donated $313,000 to fund research supporting Dr. Elizabeth Claus (YALE), Dr. Michael McDermott (UCSF), Dr. Gregory Riggins & Dr. Gilson Baia (JOHNS HOPKINS), Dr. John Lee (UPENN), Dr. Daniel Kelly & Dr. Garni Barkhoudarian (John Wayne Cancer Institute at Saint John’s Health Center), Dr. Randy Jensen (University of Utah) & Dr. Long-Sheng Chang (Ohio State Univ.), Dr. Albert Kim (Washington University in St. Louis), Dr. Nader Sanai at the Barrow Neurological Institute, Dr. Robert Martuza and Dr. Hiroaki Wakimoto (HARVARD UNIVERSITY, MASSACHUSETTS GENERAL HOSPITAL), and Dr. Melanie Hayden Gephart at Stanford University. We’ve lost too many second family members and need a cure.

Community Stories

1 Story from Volunteers, Donors & Supporters

1

Client Served

Rating: 5

When I was diagnosed with a meningioma in 2008, I started researching immediately. I found Meningioma Mommas and I will forever be grateful. The information, the connections with others, the contributions to meningioma research has been built by committed leadership. My neurosurgeon saved my brain. Menigioma Mommas saved my sanity. Like I said, I will forever be grateful. Barbara

10

Volunteer

Rating: 1

I have donated thousands of dollars to this organization and i was planning to hold a fundraiser for it in conjunction with my 50th birthday in 2010 at no expense to the organization but the executive director/founder became disgruntled when I asked about how its money is spent and whether she would appear at the fundraiser to speak on the illness. She then withdrew the organization from the fundraiser. She never publicly attempted to recruit volunteers to help do the fundraiser even though her organization would have been one of two beneficiaries. I should have done due diligence before I chose to include this organization in my fundraiser. Lesson learned.

Review from Guidestar