This board was so helpful as my mom was battling a rare form of melanoma. I received very knowledgable answers to my questions and the board moderator and medical experts know about all the "cutting edge" research. If I were to come across anyone suffering from melanoma or caregiving for someone with melanoma, I wouldn't hesitate to recommend they join this board. Knowleldgable and compassionate.
After my mother died frommelanoma in December 2010, her dermatologist informed our family abouty this charity. We formed a team, and have been trying to spread awareness to the masses regarding skin cancer.
I am 33 years old was diagnosed with Melanoma in situ in April 2011 and was terrified. This website and group helped me to get through the initial fear and made me realize that I was not the only one sharing this fear. My father is also a stage III melanoma survivor so the comuunications that are shared with survivors like us give us hope and keep us informed of the latest advances in melanoma research. These communications mean a great deal to us. Please keep up the great work!
Although I did not find out about MIf until after my daughter died from Melanoma, I have come to see how much good this organization is doing.
I had just been diagnosed with stage 2 melanoma and, like most in my position, was frightened beyond belief. This website offered great information from those who were in a similar position, as well as those who had expertise in the field. Additionally, it offered hope and encouragement; something that can be lacking with the newly diagnosed. My ending is a happy one (so far), but I still check back on occassion to keep informed.
I had many questions when diagnosed with Melanoma and this site was the most helpful. Also I go quick responses and helped me to make a decision about the treatment options I had.
Melanoma is not understood by many people. Melanoma Int'l educates and helps families like mine who have lost loved ones.
Our son went through Melanoma treatment between 2006 until the end of 2008. I found the members and team at MIF gave us great support and advice. Catherine was able to assist by convincing BMS to get our son onto the Compassionate use of Ippilimumab even though we had passed the cut off date. The most important thing is that she showed incredible empathy as we were struggling on the other side of the world in Australia.
We have greatly benefited from the Melanoma International Foundation website. I was able to get all the latest research information when my mother was first diagnosed. I found an article on a particular clinical trial and connected her with a wonderful doctor. We have viewed several webinars which have allowed us to hear a doctor's perspective on a drug or treatment option before going through the long process of eligibility tests and screenings. I am so thankful for this foundation. It is truly a blessing for me and my family. My mother is doing really well for her stage of disease and has been diagnosed for almost a year! The information we've received from the website may have played a crucial role in her present condition.