This board was so helpful as my mom was battling a rare form of melanoma. I received very knowledgable answers to my questions and the board moderator and medical experts know about all the "cutting edge" research. If I were to come across anyone suffering from melanoma or caregiving for someone with melanoma, I wouldn't hesitate to recommend they join this board. Knowleldgable and compassionate.
After my mother died frommelanoma in December 2010, her dermatologist informed our family abouty this charity. We formed a team, and have been trying to spread awareness to the masses regarding skin cancer.
I am 33 years old was diagnosed with Melanoma in situ in April 2011 and was terrified. This website and group helped me to get through the initial fear and made me realize that I was not the only one sharing this fear. My father is also a stage III melanoma survivor so the comuunications that are shared with survivors like us give us hope and keep us informed of the latest advances in melanoma research. These communications mean a great deal to us. Please keep up the great work!
Although I did not find out about MIf until after my daughter died from Melanoma, I have come to see how much good this organization is doing.
I had just been diagnosed with stage 2 melanoma and, like most in my position, was frightened beyond belief. This website offered great information from those who were in a similar position, as well as those who had expertise in the field. Additionally, it offered hope and encouragement; something that can be lacking with the newly diagnosed. My ending is a happy one (so far), but I still check back on occassion to keep informed.
I had many questions when diagnosed with Melanoma and this site was the most helpful. Also I go quick responses and helped me to make a decision about the treatment options I had.
Melanoma is not understood by many people. Melanoma Int'l educates and helps families like mine who have lost loved ones.
Our son went through Melanoma treatment between 2006 until the end of 2008. I found the members and team at MIF gave us great support and advice. Catherine was able to assist by convincing BMS to get our son onto the Compassionate use of Ippilimumab even though we had passed the cut off date. The most important thing is that she showed incredible empathy as we were struggling on the other side of the world in Australia.
We have greatly benefited from the Melanoma International Foundation website. I was able to get all the latest research information when my mother was first diagnosed. I found an article on a particular clinical trial and connected her with a wonderful doctor. We have viewed several webinars which have allowed us to hear a doctor's perspective on a drug or treatment option before going through the long process of eligibility tests and screenings. I am so thankful for this foundation. It is truly a blessing for me and my family. My mother is doing really well for her stage of disease and has been diagnosed for almost a year! The information we've received from the website may have played a crucial role in her present condition.
After being diagnosed with melanoma in 2007, I found MIf after having seen so much mis-information on the web and even from the medical comunity. MIf has provided clarity on the options availble and the the truth about melanoma. Through the information from MIF I have taken the approiate steps need to help ensure my longterm survial.
I have beend diagnosed with metastatic melanoma four separate times. My most recent diagnosis this past March left me with little to zero options outside of surgery. I was desperate for help and kept turning for more answers. I was on-line at work one day and searched for Melanoma and came in contact with the Melanoma Internation Foundation. I called the number and spoke with the most knowledgable staff peron. She discussed clinical trials and she was very familiar with the doctors in Colorado and the other treatments I had endured up to that point. I was so thankful to have her in my corner. She knew what I was going through and had been through already. She was positive, encouraging and most of all, full of valuable information.
As a newly diagnosed melanoma patient, I found lots of support and a wealth of information for all the questions I had regarding my diagnosis. I also received lots of comfort and support from others on the site and it helped to put my mind and ease more than I can ever express!!! Wonderful site doing wonderful work!!!
The Melanoma Internation Foundation supported my family by helping me understand my husbands diagnosis. Catherine was so informative along with everyone that chimed in with answers to my questions. If it wasn't for MIF I would not have know what to expect or even the right questions to ask. The website is a God Send.
This is a wonderful site and a relief to have when dealing with this disease. Members are informative, supportive, and quick to respond to new member postings. It has been an incredible resource for me and my family.
MIF is hands-down THE best melanoma site on the net. This nonprofit is filled with the latest information, it's scientifically solid, and it's compassionate and supportive. I just cannot imagine a better combination. This site is a godsend.
Melanoma International Foundation gives people a place to learn reliable information about their disease and talk about it with people who have been there. MIF also does a great deal of education and outreach with the public to try to prevent melanoma. I have found the site, its members and especially the staff helpful, caring, knowledgeable and understanding. MIF is a wonderful resource.
My husband was diagnosed with Melanoma in 2008; we didn't know where to turn. Our family doctor wanted surgery as soon as possible but we didn't know if the treatment was correct. I researched Melanoma and the Melanoma International Foundation came up, I don't know what made me call, but am glad that I did. The people at the foundation answered my questions and helped us find the right doctor for us. My husband is now under treatment and doing great, we thank our lucky stars everyday for the foundation.
MIF is an awesome foundation that I stumbled upon after my brother died from melanoma in 2005. It has wonderful info., feedback, and knowledgeable links.I think it should be given an award.
This site is just the best. When I was first diagnosed with Melanoma I had so many questions and getting so few answers with any of the Dr's. This site is a wealth of information and support for everyone. If youre ever feeling down there is always someone to help you through the dark days. Its the tops.