I am appalled at the utterly distasteful attacking I am seeing on here from one single disgruntled person on this date. Seems a bit over the top for them to create so many random profiles trying to attack the good supporters of this wonderful Foundation during a promotional period in which reviews were encouraged (ends in a few days). I feel that they are personally trying to take down an organization that already has now won this promotional period, and therefore these negative reviews will do nothing but show how immature they are. I hope they can find peace and leave well enough alone. All of us supporters have had enough of the hate speech being spewed across the Internet.
This is a wonderful organixation, a clearinghouse of information on melanoma. Cathy is a voice for those needing an advocate, at a time when both emotional as well as physical stresses can be overwhelming.
My mother is a survivor, and she received excellent help and guidance from MIF. I can't thank them enough for the valuable information and caring they have for melanoma patients. Melanoma is a scary diagnosis for a patient as well as their family, and MIF was able to make this journey less scary and more manageable.
I have been a reader of MIF for several years, as a daughter of a melanoma activist. Recently, when my mother has posted information or questions, the response by Catherine Poole has been negative, inflammatory, and vicious. Recently, the knowledge of this expert and survivor has been deleted. I do not believe that a forum filled with animosity and ignorance could be classified as a 'great non-profit.'
Chandler Rose Morris,
Proud daughter of a melanoma warrior.
One year ago today I found out I had melanoma, and realized how little I knew about skin cancer. Working in healthcare, I was ashamed. It wasn't until I found MIF that I truly found others going through the same situation I had been going through, as well as finding good, sound advice. I used my ignorance as a "suit of armor" and felt helpless. Because of the Melanoma International Foundation, I was able to educate myself on what questions to ask and to prepare myself for what was about to happen in my life. I was sent information to guide me along in the process as well. MIF is a lifesaver!
Great help since my wife got diagnosed with melanoma at the age of 33 early this year. Wouldn't know what to do without the support of Catherine Poole & the many great "victims" and caretakers on this forum. BIG THANKS, Rick
The initial shock of a Stage IV melanoma diagnosis is an experience I hope fewer and fewer people will experience, as the dangers of sun exposure become more widely understood. In the meantime, I found great solace in the Melanoma International Foundation Forum where knowledgeable people all over the world share experiences, updates on scientific and medical breakthroughs, and resources for treatment options. Catherine Poole, the ever present and supportive founder of MIF, does an exceptional job of moderating the forum and correcting misinformation as it may arise. It has, literally, been a life saver.
The MIF website has been a wonderful resource for our family during my daughters battle with stage 4 melanoma. The site is moderated by a panel of experts, making it one of the few sites where answers and discussions are vetted for accuracy. It's founder Catherine Poole invests countless hours and has become a valued counselor and friend.
MIF is the most valuable resource for anyone dealing with melanoma, either patient or caregiver. The site contains the latest news on treatments, links to other resources and the forums to exchange information. Catherine is very knowledgeable about the disease and has been helping patients for several years.
The site provides a great forum for Melanoma patients and caregivers to share information. The service it provides is of critical importance since the care and treatment of this disease is changing dramatically-- to the extent that many doctors are having difficulty keeping up. I check the site daily--check-in with my comrades who are fighting along unseen (but not unheard) by my side--taking from the well of knowledge and adding my small experiential info where appropriate. Also, the woman who runs the site (C. Poole) is well-informed, devoted, and tireless in addressing many of the needs for current information about treatment.
When my sister was diagnosed with metastatic melanoma, I wanted to learn about treatments available and through this website I found all the latest information available.
I am melanoma patient who would benefit from these latest innovations. One of the best places to hear about innovation is MIF with the online forums you offer. Thank you, thank you. And when desperate, I have called a couple of times and had the honor to speak with Ms. Poole, a comforting experience.
Helps me discover new ways if prevention so that my Melanoma doesn't come back. Helps me not to live in fear or know that I'm alone.
The MIF has proved an invaluable source of information and inspiration since my son was diagnosed with Stage IVmelanoma last year. The support and encouragement from melanoma patients is available worldwide and the webinars are particularly helpful. Thank you to Catherine Poole and all contributors to the MIF.
This is a great resource to have in Pennsylvania. Our non profit (Walk On Foundation Inc) which helps assist those with medical needs is from Pennsylvania and is glad to see different disease specific non profits emerge for all kinds of illnesses. God Bless you and everything you do!
The Melanoma International Foundation website provides outstanding support to anyone who needs to learn about and deal with Melanoma. MIF makes finding the information easy even when the subject is not easy. By providing the forum MIF gives us access to professionals, fellow patients and caregivers all experienced with this terrible disease. If an answer cannot be found, Catherine Poole of MIF will go find it and bring it to the forum. As a caregiver for my father diagnosed with Stage IV Melanoma, this website has been the most helpful resource to me and my family. I have learned so much and feel connected with others, because of MIF I feel I can provide the best support to my father.
I had Melenoma in 2007 and the Melenoma International Foundation was exactly what I needed in a time of uncertainty. I was able to get accurate information from people who really cared about what I was going through.
I was amazed and great full for the response that I received regarding this awful disease. The level of professionalism and most importantly I felt like an individual and that someone cared. Catherine is an amazing person and I thank her for her time.
I lost my 46 year old husband to metastatic melanoma on July 31, 2010. He fought a 13-month long battle which included surgery, high-dose bio/chemo treatment, and several experimental treatments. It is important to me that the general public understands how aggressive and deadly a cancer melanoma is.
I was diagnosed with melanoma in 2009 on my cheek. I had extensive surgery to remove it and was told my chances of it returning we're only 15%. It returned in a node in my neck in feb 2012, I had a full neck dissection but unfortunately it came back 6 weeks later in my neck I now have 3 tumours in my neck and it has spread to my liver. I am currently having decarbazine and radiotherapy on my neck. I am half way through my 20 treatments of radiotherapy and it is brutal..my mouth and tongue are swollen and I have blisters inside my mouth and throat making it impossible to swallow anything other than liquids. I am staying positive because that's all I can do....