Though Malecare seems more focused on prostate and testicular cancer, their social worker was able to help me connect with other men diagnosed with lung cancer. Malecare also showed me how to use the internet to get quality kinds of information.
Malecarupport is a support organization that guides one from that deafening silence at the moment of diagnosis through the meandering matrix of options and confusion to a point of reasoned and informed decision making. This alone is priceless.
I was all alone with this diagnosis of prostate cancer and found Malecare which held me and gave me courage and the latest knowledge. I could not survived without this support group and I still come to meetings to encourage others to attend.
Malecare has been a most positive experience for me after being diagnosed ten years ago with prostate cancer. My choice of treatment is based on what I learned and discovered through this support group.
In the 18 months since my prostate cancer was diagnosed, Malecare has been hugely helpful to me. Its weekly discussions are a vast source of specific information and ideas, as well as a font of psychological guidance and support. Darryl does a splendid job of steering the ship between these two goals. And thanks to his wisdom and diplomacy, the experience has made me feel much less alone. A prostate cancer diagnosis is terrifying and confusing. But the Malecare meetings have made it much easier to take. I recommend Malecare, and Darryl, whole-heartedly.
After I was diagnosed with prostate cancer, I found Malecare via Google. Their weekly support group was of great value not only as an information exchange, but of great psychological help in getting through the whole diagnosis/decision/treatment/recovery process.
I have found male care to be extremely helpful in alerting me to the latest treatments for prostate cancer.
As a male who is dealing with this disease I find the website very supportive.Keep up the wonderful work
I am indebted to Daryl and the folks at Malecare because, over a year ago when I received my diagnosis of prostate cancer, they were there for me. I was upset and confused and swimming in questions. Malecare provided a wealth of useful information in the form of websites and writings on various topics concerned with prostate cancer. Moreover, I was able to attend a couple sessions of the support group that meets in Manhattan and hear the stories of others who were where I was. The counsel I received at the support group gave me the information I needed to make the right decision for me. I underwent a radical prostatectomy at Memorial Sloan Kettering Cancer Center and, although my cancer was more serious than suspected, I came through the operation fine and have had no recurrance. My PSA continues to be zero. Malecare helped A LOT. I continue to be on their mailing list and know they are there to help in the future should I need it. Thanks Malecare.
I have a friend who was diagnosed with Prostate Cancer and who attended Malecare support group. The Malecare support group seemed to help him ALOT. HE seemed so much more relaxed and confident about his treatment choices after attending the group.
I was lucky enough to be told about Malecare when I was first diagnosed almost six years ago. The men who attend the weekly support group in NYC are well informed, share their experience, strengths and hope and actively participate in dealing with P.C. The website has a wealth of invaluable information. Everything from choices of treatment (including active surveillance) to where to get biopsy second opinions as well as nutritional information. malecare.org provides the most up to date information and in my opinion is a must for anyone dealing with P.C.
As a 39 year old man diagnosed with Prostate Cancer, MALECARE was the only non-profit I came across that dealt in depth with the types of problems and concerns young men deal with when confronting this disease. The group coordinators and MALECARE staff have been nothing but a trustworthy source of the most up-to-date information regarding treatment options, treatment outcomes, even sharing with great confidence physician and surgeon referrals. Staff and fellow participants were available to answer almost all my questions regarding the very real considerations of continence and impotence after surgery. It's been 9 years for me since surgery and I am happily cancer free. I never take for granted the medical and emotional support MALECARE gave me and know they will give the best support they can.
Finding Malecare has made a world of difference in my approach to dealing with my prostate cancer. A group of well informed, passionate supporters, eager to share their knowledge and experience. My decision to go on Active Surveillance was a direct result of the information, guidance and support of this group. I wish everyone diagnosed with prostate cancer would have the opportunity to interact with Malecare.
My brother-in-law has metastatic prostate cancer. I just lost my brother to Non-Hodgkins Lymphoma and received extensive support from online sites. I found this site and have received moral support as well as much detailed information about cutting edge treatments, clinical trials, real life experiences with drugs and other treatments. Chuck Mack seems to be devoting his life to helping us all cope with this disease. While still on androgen deprivation therapy, I am already researching the next step and the malecare forum is invaluable. This site welcomes gay men and straight men. All are the same in this fight.
As a gay male who was diagnosed with PCa at age 61, it was a double whammy to find this out. I had retired recently and was looking forward to taking time to enjoy life with my partner. PCa changed so many things in my life all at once. I was reeling from the implications to my sexual life, my social life, along with the real scare of hearing I had cancer. What to do? I went online and looked for support. And Malecare's Prostate Cancer and Gay Men group was found on my first search.
My husband was diagnosed with advanced prostate cancer in 2005. During the past six years, we visited the Malecare site nearly every day to stay abreast of the latest drugs and innovative treatments. The site is an exceptional resource and is always on the cutting edge of what may prove to be the best treatment for men with this diagnosis. The information provided on this site, allowed us to be more knowledgeable when we met with our oncologists. We were able to suggest treatments and participate in experimental drug trials because we had read about and were aware of them. Malecare stays focused on what is happening on the political side of funding for prostate cancer research, particularly the Department of Defense funding for prostate cancer research. They do an invaluable service for all who battle this deadly disease.
I found the "prostatecancerandgaymen" site after having robotic surgery for prostate cancer in February. It has really been a help in helping me understand my recovery and benefitting from the experience of others who have gone through this. I don't know how many men use the site, but every question seems to get several helpful answers either from men who have gone through the same thing or a citation to a good source. In my case dealing with a delayed return of continence made me feel quite depressed and alone, and knowing that others have been through this and recovered has given me more hope and relieved my depression a bit. I also know that if more problems arise I can always ask more questions. Can't tell you how much this means to me!
I am a prostrate survivor of one year now. I have found some great sites to visit. I was recomended to this site by a friend who is a prostrate survivor. I believe all men should be tested with a psa and also a digital exam to keep and stay helathy. With sites like this all men can empower themselves with their health and read what others have gone thru and how they are surviving now.
I am a prostate cancer survivor (17 years) and recently encountered the malecare website. These people appear to be doing a good job, and provide resources that I wish had been available to me at an early stage.
As a gay man with prostate cancer two years ago, it was great to discover the "prostatecancerandgaymen" group sponsored by Malecare. The men in that group are willing to answer questions to the best of their ability about how the cancer and treatment(s) might affect the lives of gay men. They are much more open than the (mostly) straight sites I found.