My daughter was diagnosed with a brain tumor when she was 7 in 1998. She is now 23 and recently graduated college. I don't know how we would have made this journey without the help and support of the Making Headway Foundation. They give you hope and vision for better days, and when days are bleak they are there to hold your hand and help you bear that weight. They also support research looking to the future for better treatments and cures.
My greatest privilege is working with parents and siblings in those cases when the child does not survive the impact of a brain tumor. Most people do not understand that tumors in children , benign or malignant, are catastrophic for the development of sibling's, as well as for the cohesive marriage of the parents. The guilt, anger and depression, as well as issues of childhood neglect, can be carried by siblings for the rest of their lives if not treated quickly and appropriately. This dramatically effects their chances of reaching their full human potential. Making Headway is the finest and the only foundation I know that seriously treats the spreading impact of this disease throughout the whole family. Without Making Headway, many more parent marriages would end in divorce, and many more siblings would fail to develop a normal, healthy response to the life experience. Making Headway does critically needed work at every level.
My concern is for all the siblings of our patients at Making Headway. By giving them equal love, respect and attention, they are growing up with far less anger, depression, and despair. Making Headway is the only dedicated foundation that treats the WHOLE FAMILY so that each survives and thrives to their highest potential. The medical research and care for kids with brain tumors at NYU is recognized around the world, but it takes a village like MH to recover the patient and family together. It's true that whatever happens, life will never be the same, but it's also true that the staff and volunteers at MH are happily determined to make life meaningful and beautiful again. As a bereavement counselor, I have never seen a team of professionals like these anywhere else.
10,000 stars for Maya and Edward Manley, and 10'000 more for our kids at Making Headway.
The Making Headway Organization is amazing in so many ways. Not only do they give direct support to families who are going through various brain/cancer treatments they actively raise funds to continue ground breaking research. I have personally seen the reach and affect this group has on peoples lives and particularly on children struggling with the treatment of their disease. I hope this non profit is around for many many years to come. Dedication like this is rare, but the big hearts on board are even harder to find.
I have always been impressed by The Making Headway Foundation. They provide support in many areas to children with brain and spinal cord tumors during their hospitalization(s) and to their families. In addition the foundation also provides on-going care services for the children and and their families when they are discharged from the hospital.
THIS ASPECT OF THE MAKING HEADWAY FOUNDATION IS UNIQUE AND VERY NEEDED. THEY PROVIDE EDUCATIONAL CONSULTATION AND PSYCHO-SOCIAL SERVICES FOR THE CHILDREN AND THEIR FAMILIES. I WISH THAT THIS WAS DONE MORE FREQUENTLY BY OTHER NOT-FOR-PROFITS. IN ADDITON THEY ALSO PROVIDE RESOURCES FOR RESEARCH TO FIND A CURE.
THE ENTIRE MAKING HEADWAY TEAM IS HARD WORKING, DEDICATED, EXPERTS IN THE FIELD AND CARING. IT IS A PLEASURE TO WORK HARD AND HELP THE FAMILIES NAVIGATE THE COMPLEX SCHOOL SYSTEM AND MAKE SURE THAT THEIR CHILDREN RECEIVE THE SERVICES THEY NEED.
Educational Consultant, The Making Headway On-Going Care Team
Making Headway is truly a special organization. The organization as whole has a genuine care for people that should be bottled up and served around the world. Maya and Edward are special people and I feel honored to work for them. I have witnessed first hand how their generosity and compassion has helped many children through a very difficult time. It is an organization that should serve as a model for how to truly help when help is needed.
Catherine Lepone 07/11/2013
Thank you for being a part of our team, Sabina!
The Making Headway Foundation goes far beyond foundations that are also raising money to do research with the hopes of finding a cure!
The emphasis on ' Quality of Life Issues' is superior. The foundation has formed an On-Going Care team to help families with many issues that they face with a child with a brain or spinal cord tumor. Beyond research and the importance of a cure The Making Headway Foundation places a great emphases on care for the chidren and their families both when they are hospitalized and when they return home.
Making Headway provides comfort supports during a child's hospitalization and also cares deeply about the child's family offering many comfoting services like massage therapy.
In addition when a child is able to return to home, services such as school planning, counseling for the family, therapy for the siblings and for the ill child and family are put in place. I have worked in healthcare for over 35 years and it is rare that a foundation considers 'on-going' care to be so important.
Kudos to the Board for making sure so many critical issues are supported by an amazing foundation!
Catherine Lepone 07/11/2013
Thank you, Patty.
Making Headway is the best non profit I've ever worked with. Their care and dedication supporting patients and families is comprehensive and since. That level of care and support includes the well being of those who work with them. They deserve all the praise and more.
Catherine Lepone 06/14/2013
On behalf of Making Headway, thank you for this kind review!
I have been involved with Maya & Ed Manley & Making Headway Foundation for over 20 years - first at NYU, then Beth Israel & back again at NYU. I am a practicing Neuroradiologist & former Neurosurgeon.
Treating & Diagnosing Tumors, infections & tauma in pediatric & young adults is for me very difficult. Making Headway has always helped me by being able to "give back" "to help" these same paietents - in a non medical way - so that the patients become people. Thank you for letting me help.
Catherine Lepone 07/11/2013
Thank YOU for helping!