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2015 Top-Rated Nonprofit

Making Headway Foundation Inc

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Nonprofit Overview

Causes: Brain Disorders Research, Cancer, Cancer Research, Health, Pediatrics Research

Mission: Making Headway Foundation provides care, comfort and a cure for children with brain and spinal cord tumors while funding medical research geared toward better treatments and a cure.”

Results: Among our many accomplishments, one of the most notable from 2012 is that we have recently committed $1 million toward a neuro oncology laboratory at NYU. We were also instrumental in finding another matching grant for $1 million. Making Headway Foundation was also named Nonprofit of the Year for 2013 by the Chappaqua-Millwood Chamber of Commerce.

Target demographics: Children with Pediatric Brain or Spinal Cord Tumor

Geographic areas served: NY, NJ, CT

Programs: support services for during treatment, ongoing care post treatment and funding for medical research.

Community Stories

28 Stories from Volunteers, Donors & Supporters

2 justamom17

Client Served

Rating: 5

My daughter was diagnosed with a brain tumor when she was 7 in 1998. She is now 23 and recently graduated college. I don't know how we would have made this journey without the help and support of the Making Headway Foundation. They give you hope and vision for better days, and when days are bleak they are there to hold your hand and help you bear that weight. They also support research looking to the future for better treatments and cures.

Comments ( 1 )

Catherine Lepone Thank you so much. Your family re-pays us in many ways and we are grateful to have you as part of the Foundation.

Renee27

Client Served

Rating: 5

This organization provided amazing support and resources for myself ( the caregiver) and my husband ( the patient). When Chris was diagnosed with medulloblastoma at age 26 we both needed support and guidance on how to handle this challenge. Making headway stepped right in and provided us with exactly what we needed. We will be forever gracious. Thank you from the Ravanellos!

Comments ( 1 )

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Catherine Lepone 11/09/2012

We are so happy we were able to help you, Renee.

Randi G.

Client Served

Rating: 5

My family goes way back with Making Headway,my daughter Bari is now 30 years old . She has gone through 5 spinal surguries and Making Headway was there for us through each one. Living in the hospital for periods of time really takes a toll on the family but Making Headway was always there to provide activities, therapy and just unbelievable kindness to help make it bearable. At one point my daughter needed surgery in another hospital the biggest surprise was Making Headway sending her therapist there my daughter was so happy to see a familiar face and did wonders for her attitude and the will to go on. I don't know any other organization that would got that far to make sure their clients were doing OK. In college my daughter did an internship with Making Headway, she is now a licensed master of social worker and licensed child life specialist due to their influence.

Comments ( 1 )

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Catherine Lepone 11/09/2012

What a beautiful success story! Thank you for sharing it.

Jason37

Client Served

Rating: 5

My daughter was diagnosed with a JPA tumor in 2001. As this was 3 days after Sept. 11 in the heart of NYC, as terrified parents we were escorted through the police and military barricades to get her to Beth Israel (North) Hospital for brain surgery. We were given the opportunity to 'move in' to her room with her pre and post surgery. The first person who welcomed us in was Maya Manley, a true angel on earth who came into our room with a stuffed toy for my daughter to play with (she also trekked in during the post-9.11 hysteria, just to care for the kids). From that moment on she introduced us to the Making Headway Foundation, the organization whom she and her husband Ed founded to provide support to the children and families of Brain and Spinal cord tumor patients. Since that time, as Beth Israel Closed and the foundations 'play center' moved along with Dr. Allen to NYU, most of the surviving patients of Dr. Allen and his team moved along with them (us being one of them). The foundation has provided us with tremendous support (emotionally and information-wise) over the past 11 years (yep, Julia is 11 years Cancer Free :)) ), each and every time we visit the hospital for our checkups and MRI's we are always welcome by the Making Headway team, always full of smiles and cheerful positive thoughts...I cannot express enough how incredible this foundation is and the thanks I have for what they do. Any and all donations made to this organization directly support the children, many of which are in dire need, far from home and scared to pieces.

Comments ( 1 )

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Catherine Lepone 11/09/2012

We appreciate your support and good comments. Thank you!

Laryssa S.

Client Served

Rating: 5

This is not a charity - it's a family. Going through the worst time of my life, my son's tumor treatment, would have been unbearable without Making Headway. Healthy kid-friendly snacks, art, parties, massages for the adults, and a shoulder always available. Have you ever heard a child say "I can't wait to go to chemo!"? I did. And so much is going out behind this. The fundraising for research and treatment is phenomenal. Created by and run by a beautiful and humble couple, who has gone through this with their own daughter, they have pour their lives into this very needed cause. Thank you Maya and Edward. Thank you Making Headway!

Comments ( 1 )

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Catherine Lepone 11/09/2012

You are so right. We like to think of all of you as "family". We appreciate the positive review.