Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.
I have a dear friend with lupus whom I've watched struggle daily with this disease that has taken pieces of her, a little at a time. I have supported through the Gala and Lupus walk through the years. She is very involved with this organization because she was able to get information through them to help her process her diagnosis. She wants all people to be able to turn to the LFNC get support for this devastating disease as she has! She is my connection and I see LFNC's importance through her.
My daughter-in-law was diagnosed with Lupus at an early age. LFNC has been a great resource for her and helped me better understand the disease. I have participated in the 5K run/walk and the gala and never cease to be amazed by the dedication of the staff, board members and volunteers of this great organization. They provide a valuable service to the community with their newsletters, networking and research. Hopefully their efforts will lead to eradication of this and many other autoimmune diseases. Keep up the good work LFNC!
Thank you for your review. We are very glad we were able to help you understand lupus and we are incredibly grateful for your support.
A childhood friend of mine has Lupus and has been such an amazing advocate for research and spreading awareness. Because of her, I was introduced to the Lupus Foundation and learned of the amazing work that they do. We have also donated to the organization because we believe so deeply in the cause. Understanding Lupus, or any other chronic disease, is so important to increasing research dollars and to hopefully one day finding a cure. In the meantime, the more we understand, the more we can support others.
Thank you for your review and for you support!
I have participated in the annual 5k walk/run, in Saratoga, for many years but wasn't really aware of the wonderful supportive role the LFNC does until i was invited to the annual gala in San Jose, by Roberta Kracht. Listening to the speakers talk about their journey through this disease is heart warming and heart breaking at the same time. People with Lupus and their families are so fortunate to have this organization for support and research. Our family thanks you and supports you and is looking forward to the day a cure is found!
Thanks so much for your kind comments!
I became aware of the Lupus Foundation's great work through Roberta, my mother-in-law, as we participated in fundraisers like the 5K run/walk and the annual dinner. Their work is inspiring to so many who lean on the Foundation for strength in the very difficult journey of lupus survivors, and it helps to lighten their very considerable burdens while also supporting critical research. As an aside, their events have given us a wonderful way to bring family and friends together to affirm our love for Roberta, and I know I see that in many other families in the community as well.
Thank you for your kind words. Your dedication to helping LFNC and the lupus cause is incredible and we appreciate it.
I first came to learn about the Lupus Foundation when a co-worker of mine revealed that he had lupus. I didn't know what lupus was, so I searched the Internet and found the Foundation's website. I learned a lot of information about this disease through them. That year, I also started participating in their 5K Run and Walk to help spread awareness about lupus and to do what little I can to help raise funds for lupus research. I hope there would be more resources like the Lupus Foundation all over the country.
For two years in a row now, I have been asked by a friend with lupus to join her team for the 5K Run and Walk for Lupus in Saratoga, California. It was my pleasure to support my friend and donate some money to the Foundation. I was very impressed with their annual event. This year's event was even better than the last -- very well-organized and there was something for everyone: from snacks to free t-shirts, goodies, good information and great entertainment! Volunteers were very helpful and the crowd was just very friendly and passionate about the cause!
The Lupus Society of Northern California helped us when my daughter was diagnosed with lupus 28 years ago. They explained what Lupus was to us and we signed up with for the newsletter, offered us videos to take home and were so patient. Before we talked to them we had no clue, yes the doctor explained but when we heard Lupus we stopped listening... We thought it was leukemia. Ever since I have been a donor. Jo Dewhirst was wonderful and since she has left the Lupus Society has continued to improve. I appreciate the emails of the newsletters and up to date notifications of new drugs and studies that are taking place, as well as other patients' outcomes. This year we participated in the Lupus 5K and will continue to support this wonderful organization that helps so many.
Review from Guidestar
this organization has been very helpful to my wife, who has Lupus. If it weren't for the foundation we wouldn't have had any resources to review in our area. Additionally, they have been very supportive to my wife when she needed their help coping with the disease.
Review from Guidestar
My Mother died from this disease in 1971 at the very young age of 32. As if that was not hard enough to bear, a very good friend of mine also passed away from Lupus at the prime of her life! Finally, I have a step-sister who also has the disease, but she is managing the symptoms wonderfully, thank goodness. For some reason this disease has been a big part of my life. The Lupus Foundation is a place I feel I can help with donations, and in the long run help other people who have this disease! I am comforted to have this organization keep me informed of the latest developments in curing Lupus! I also look forward to the annual Run?Walk for Lupus!! Keep up the great work!
Review from Guidestar
I found the organization on Facebook. Years ago a friend of mine revealed to me about his lupus diagnosis, so I tried to read up and research about this little-known disease. Through their website and their eNewsletters I've learned much about lupus. Lots of useful information, especially on research development. I've made it a point to donate to the organization whenever there is the opportunity. Glad to support such a great organization.
I was diagnosed with SLE 33 years ago. At that time the prognosis was very poor. Shortly after being diagnosed and starting prednisone, I became pregnant. In my fifth month of pregnancy I went into full blown eclampsia with grand mal seizures, kidney involvement (spilling 8 grams of protein) and fetal demise. An emergency c-section was performed and after suture removal I suffered wound separation and remained in the hospital for 3 weeks. After all this we were advised not to try another pregnancy. During these past years my lupus has not been in remission and I remain on varying doses of prednisone supplimented with chemotherpy drugs when needed. Lupus has been a true challenge in my life but I am grateful to have a supportive husband and frequent times when my symptoms are mild. I have learned to deal with all this by taking one day at a time and knowing that my condition could be a lot worse. I am grateful to the Lupus Foundation of Northern California for providing information on current studies and treatments and for educatiing the public on this debilitating disease.
I have many friends who have been touched by lupus, and want to do all I can to help. The Lupus Foundation has brought awareness to my community by humbly but confidently asking for specific support through donations, education, and many other services.