Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.
I support and appreciate all that the Lupus Foundation does to help both those affected by Lupus.
Review from Guidestar
LFNC has provided me with so many supportive oppurtunites for me since I found about them over a year ago. They run a youth support group that has been so helpful to me. I love getting together with other people my age that understand what I am going through. I participated in a webcast with LFNC about teens with lupus. I had never experienced anything like that before and loved having the chance to be part of it! The annual walk that is put on by LFNC is always a great time. It is so good to see so many people coming together for such a good cause.
When my sister, Sophia Lin's third child was born, she already didn't have enough time in the day. It was completely frustrating to try to pin down the different ailments that began to plague her, such as swollen glands, stiff fingers, constant fatigue and on on on while caring for a new born and his two siblings. Prescriptions, never ending concern, doctors, teaching hospitals were all added to my sister's already impossible schedule. While we as her family loved and supported her there was little that we knew and understood. Then one day, my sister was diagnosed with Lupus. This part of the journey led us to LFNC. A one stop resource that both patient and loved ones could learn from through current conversations, networking, professional research, invaluable peer support, and organized pro-activity to make a difference in a heretofore little known mystery disease.
My sister was diagnosed with Lupus 5 years ago after fighting for her life for 2 weeks. The doctors had no idea what was wrong with her. All they knew was she was dying and they didn't know why. After she was diagnosed, she had learn about Lupus and what she needed to do to keep it under control. Lupus isn't well known, so I am so grateful for The Lupus Foundation and their efforts to provide information, programs, education and services for those effected by Lupus and to help promote Lupus awareness. It was so great to see the number of people who came out to participate or support participates in the 5K Lupus Run/Walk.
I have stayed up-to-date via the website and emails about Lupus. While I was informed that my childs chances of having Lupus were only slightly higher than the general public, it is good to be aware of signs and symptons. Her mother went undiagnosed for nearly 12 years because she would go in and out of remission.
I first got involved with this foudation when my rheumatologist was working for it. The information NCLF gave to me helped me to understand the differences and similarities between lupus and rheumatoid arthritis. They consistently provide a wide range of info, services and connections to the local and medical commmunities in the Bay Area. I feel very fortunate to know about, and benefit from, such a productive and helpful organization.
My husband is a lupus pt, who to this day is still somewhat in denial. I find the website to be very supportive for me and often forward positive news info to my husband in hopes of encouragement. This site has a fountain of information for those impacted by lupus. Thank you.
My family and I participated in the Run/Walk for Lupus for the past two years... I am grateful to have the opportunity to show my sister how much we support and love her! We made it into an annual family & friends get together and its been a rewarding and fun experience!
Being diagnosed with Lupus was scary. I had heard of it but knew nothing about it. When you have a diagnosis of a chronic disease the symthoms are constantly changing. I needed a resource that had current information as well as support to help me through each step. LF has given me that. I have attended symposiums, read the website, blogged others in my situation. All of this was only available with the help of LFNC. Thank you..