Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.
The LFNC is a wonderful organization. I have become more aware of this organization because my niece has lupus. The LFNC has become a huge part of my nieces life: helping her deal with and understand the disease, as well as enabling her to reach out to others and become a support person for others with the disease. I enjoy the yearly Lupus walk. Thanks LFNC for helping raise money to learn more about this disease and for being a great source of information for anyone wanting to learn more about the disease. And thank you for being a source of hope and support for those afflicted with the disease.
The Lupus Foundation of Northern California is a great nonprofit organization! My cousin has had Lupus for over 20 years and this organization has helped her tremendously over the years. This nonprofit helps people in need, they raise money for research, and they raise awareness about Lupus. This organization has also given my cousin a new purpose in life by giving her a job opportunity to work for the organization. I am extremely grateful to them for all they do to help my cousin and the community.
Thank you for your kind words! We are glad to be here for your cousin.
My sister was diagnosed with lupus at about the same time my oldest daughter was born. She was able to last through both good and bad times and still manage to take care of my two daughters. I never fully understood the disease until she became an advocate for the cause. The Lupus Foundation of Northern California has given her a voice for her pain and the pain that others with Lupus go through every day.
Thanks for your review! We are so proud to help give a voice to those with lupus.
My best friend has lupus and other medical issues and the information and stories enables me to better understand and offer guidance. Not being in the medical profession and not experiencing her daily obstacles learning from professionals and the community has been insightful and a support system for me.
Thank you for your review! I'm so glad that we have been able to help you understand lupus.
I joined this to support my mother in law as well as all the other victims of lupus. It was a great experience and I believe participating in this helped to promote the awareness of this auto-immune disease and to get more people to help contribute for a good cause.
I always wanted to do a run to support something and the Lupus Foundation made my very first experience really memorable. Everyone was just so dedicated and nice, and the event itself was a blast! I had lots of fun and also became more aware of what Lupus is at the same time.
Thank you for all you do! Your newsletters are filled with very useful informaiton.
Thank you for putting out such great information for those who suffer from Lupus. This site not only helps the client, but their families. Thank you for keeping us informed!
Review from Guidestar
Attended a few of their seminars to gain knowledge regarding Lupus. I gained so much information and gained valuable knowledge about the Lupus disease, the organization . The people, staff, medical personnel ,who volunteered their time in the local, San Jose chapter are so generously helpful to anyone, Is one of the organizations that deserve , truly one of the best .
Although I no longer belong to a regular lupus support group nor do I attend functions, I do try to keep informed by reading the LFNC newsletter and searching for online info about SLE. In July 2012 I saw a workshop being held in San Francisco ttitled "Lupup Self Management/Holistic Nutritional Approaches for Lupus". At 48 years of age and having been diagnosed with SLE in high school, I have come across all sorts of info on these topics and they are pretty much the same--stay positive, avoid nightshade foods, sun screen, sun screen. For some reason, though, I decided to sign up and attend anyway. In a word AWESOME ! The attendees--all of whom were strangers to me--were friendly and welcoming, the speakers were knowledgeable and very personable, there was tasty, healthy food, and it was free. I was--and still am--experiencing a flare-up and was planning on staying home but I am so glad that I attended. A significant amount of the information I heard was new and definitely inspiring. That outing actually made me feel better. Thanks LFNC for making programs like this available and for changing my mind about support group meetings.
I have Lupus It REALLY helps to get information about what one can do it help be as healthy as one can:D I'm on SSA + SSI I don't have $$ or health to help!
I support and appreciate all that the Lupus Foundation does to help both those affected by Lupus.
Review from Guidestar
LFNC has provided me with so many supportive oppurtunites for me since I found about them over a year ago. They run a youth support group that has been so helpful to me. I love getting together with other people my age that understand what I am going through. I participated in a webcast with LFNC about teens with lupus. I had never experienced anything like that before and loved having the chance to be part of it! The annual walk that is put on by LFNC is always a great time. It is so good to see so many people coming together for such a good cause.
When my sister, Sophia Lin's third child was born, she already didn't have enough time in the day. It was completely frustrating to try to pin down the different ailments that began to plague her, such as swollen glands, stiff fingers, constant fatigue and on on on while caring for a new born and his two siblings. Prescriptions, never ending concern, doctors, teaching hospitals were all added to my sister's already impossible schedule. While we as her family loved and supported her there was little that we knew and understood. Then one day, my sister was diagnosed with Lupus. This part of the journey led us to LFNC. A one stop resource that both patient and loved ones could learn from through current conversations, networking, professional research, invaluable peer support, and organized pro-activity to make a difference in a heretofore little known mystery disease.
My sister was diagnosed with Lupus 5 years ago after fighting for her life for 2 weeks. The doctors had no idea what was wrong with her. All they knew was she was dying and they didn't know why. After she was diagnosed, she had learn about Lupus and what she needed to do to keep it under control. Lupus isn't well known, so I am so grateful for The Lupus Foundation and their efforts to provide information, programs, education and services for those effected by Lupus and to help promote Lupus awareness. It was so great to see the number of people who came out to participate or support participates in the 5K Lupus Run/Walk.
I have stayed up-to-date via the website and emails about Lupus. While I was informed that my childs chances of having Lupus were only slightly higher than the general public, it is good to be aware of signs and symptons. Her mother went undiagnosed for nearly 12 years because she would go in and out of remission.
I first got involved with this foudation when my rheumatologist was working for it. The information NCLF gave to me helped me to understand the differences and similarities between lupus and rheumatoid arthritis. They consistently provide a wide range of info, services and connections to the local and medical commmunities in the Bay Area. I feel very fortunate to know about, and benefit from, such a productive and helpful organization.
My husband is a lupus pt, who to this day is still somewhat in denial. I find the website to be very supportive for me and often forward positive news info to my husband in hopes of encouragement. This site has a fountain of information for those impacted by lupus. Thank you.
My family and I participated in the Run/Walk for Lupus for the past two years... I am grateful to have the opportunity to show my sister how much we support and love her! We made it into an annual family & friends get together and its been a rewarding and fun experience!
Being diagnosed with Lupus was scary. I had heard of it but knew nothing about it. When you have a diagnosis of a chronic disease the symthoms are constantly changing. I needed a resource that had current information as well as support to help me through each step. LF has given me that. I have attended symposiums, read the website, blogged others in my situation. All of this was only available with the help of LFNC. Thank you..