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2016 Top-Rated Nonprofit

Lupus Foundation of Northern California

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Nonprofit Overview

Causes: Health, Health Support, Nerve, Muscle & Bone Diseases, Specifically Named Diseases

Mission: To be a premier source of information on lupus by providing programs ana services designated to educate and increase the knowledge of those affected by lupus, promote lupus awareness, and support external lupus research efforts.

Target demographics: lupus patients and their families

Geographic areas served: Northern California

Programs: support services, education events, advocacy activity and research.

Community Stories

48 Stories from Volunteers, Donors & Supporters

1 cvonraesfeld

Client Served

Rating: 5

Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.

Comments ( 1 )

lfnc Thank you, Christine! Your hard work for lupus patients everywhere inspires the staff each day.

Board Member

Rating: 5

The lupus Foundation does phenomenal work for lupus patients and their families! Their volunteer base is always willing to give whatever is needed to meet the task. I am a lupus warrior and finding the support and friendship within this organization has had a lifting spiritual affect on me which I KNOW helps my lupus. The LFNC works hard to collaborate and partner with the Lupus Research Alliance in increasing lupus awareness and raise money for research. I am so impressed with the degree of community outreach this organization does. The LFNC is the hand that reaches out to us who are in need of support and understanding of our lupus condition.

Previous Stories

Client Served

Rating: 5

It was wonderful to have a connection and a place to call for resources when I was diagnosed five years ago. My physician didn't give me any information or links to begin educating myself on the disease. My emails from the LFNC kept me up to date with research and resources. I was very grateful and participated in their 5k by organizing a team. The LFNC is vital to our community!

1 cvonraesfeld

Client Served

Rating: 5

Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.

Comments ( 1 )

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lfnc 10/29/2016

Thank you, Christine! Your hard work for lupus patients everywhere inspires the staff each day.

Previous Stories
2

Client Served

Rating: 5

Until the past year, my only association was the LFNC was the annual walk, which I felt was my obligation as a person with lupus. Until the past year, I did not realize what an integral part of my life it has become. Not only have I gotten much needed support, but I have made great friends in the lupus community and expanded my knowledge of my disease by hosting seminars and conferences. I am happy to be one of the charter members of the lupus buddy program and went through the patient education class. I can't imagine my life without the LFNC I just wish I had discovered I needed them earlier, might have helped me through some tough times. Thank you to everyone at the LFNC for your hard work and dedication.

Client Served

Rating: 5

When I was diagnosed with Lupus I felt lost. I found on the internet that Lupus Foundation of Northern California was giving educational class about the disease for new patients and families and I went to learn more about Lupus. I left that day with knowledge that was so important to my health and helped my family to get information and also support. Their support group has helped me tremendously to find strategies to cope, make new friends too. I hope that they can help many others the way they helped me.

3 Setareh B.

Client Served

Rating: 5

This non profit has been so helpful and inspirational to my life. They have provided support and guidance to dealing with a very difficult illness. I have not only benefitted from their services but have chosen to become a volunteer because I believe in their cause so much. I'm thankful for the benefit they have provided to my life and the lives of so many others!

Client Served

Rating: 5

I am a parent of a young lupus patient. LFNC is an invaluable resource for our family. It provides excellent information, education and support. And, even more valuable is it's consistent messaging that, through research and sharing of knowledge, there is hope lupus will become a curable disease.

Client Served

Rating: 4

Lupus can be a very confusing disease. LFNC puts on regular "mini-conferences" which bring together knowledgeable speakers with relevant information. The ones 'Ive attended on the latest developments in the treatment of Lupus have allowed me to be an informed partner in discussions with my doctors.

Previous Stories

Client Served

Rating: 4

Lupus is a confusing, often isolating disease. It can manifest in so many ways, that even the best intentioned literature seems irrelevant or contrary to whatever the latest word from one's own doctor. LFNC not only sends out frequent announcements of new information, along with links to the full explanation of the announcement, but also sponsors frequent classes with a variety of experts who first talk, then take questions. They hold these classes in a variety of Northern California locales, maximizing the opportunity to attend for people who might not be able to make it to the main office in San Jose. Over the past couple of years, I've had at least 3 links to relevant information or an actual seminar come up just as I was realizing I needed more information on an issue.

ksoto

Client Served

Rating: 5

Lupus Foundation of No. California has been there for me through my most difficult moments dealing with Lupus. They keep me informed about what is out there for me to help me have a better quality of life. They are there for me when I question if I can fight the fight anymore. Having a chronic illness is a very lonely place but they make sure you are not alone. I think if they had the money they would have a bigger space for a wellness center for services as well. They are committed to service and helping those of us with autoimmune issues. I would be lost without them

Previous Stories

Client Served

Rating: 5

I have Lupus and many times the foundations has provided me with support. This summer then sent me sunscreen just in time for camping and I hadn't gone camping in over 10 years. I was safe and confident after a talk with with them. They will never let someone be left in the dark about autoimmune issues. They are the light that gets us through and they ask us for nothing but what we can give at the time. Sometimes that is going in and stuffing envelopes and its a blast! They are a great team.

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Client Served

Rating: 5

Lupus of No. Calif. has helped me greatly over the past 11 years since being diagnosed with lupus and other autoimmune diseases. I live in the country and having the latest info. at my fingertips has been so reassuring. I have used their library and enjoy their newsletters. They have helped me with strategies for coping. I appreciate them being my advocate.

Client Served

Rating: 5

I have Lupus. The LFNC keeps me updated with very helpful research information, educational classes, and and lifestyle tips for keeping my self healthy.

Chrissy D.

Client Served

Rating: 5

I decided to classify myself as a client served as I am living with lupus and other autoimmune diseases and the LFNC has been a helpful advocate for this never-ending fight. I consider myself and all lupus fighters, warriors, and I thank LFNC for providing us the tools (or weapons) to fight effectively while trying to continue our contributions to society. Thank you so much! Please keep it up! I'll be walking again next year. This time under team Craftego. My new handmade craft shop, because I will never give in to this... lupus.

Client Served

Rating: 5

Having Lupus can be very isolating. Healthy people often don't understand how someone who looks okay can be suffering pain and fatigue. The information and support I get from this organization helps me in so, so many ways from: Up to date medical research information; Tips on day to day living; inspirational stories from other patients; as well as a caring voice on the other end of the phone. The Lupus Foundation of Northern California is my partner in achieving a healthier life.

Client Served

Rating: 5

I was diagnosed with lupus in 2006 at the age of 35 and felt truly lost in the dark. As I began coping with the illness, I discovered the LFNC, and from reading the articles and personal stories, I began feeling a sense of support and community, without even meeting anyone in person. I signed up for the annual lupus walk with my family of 12, and was completely inspired by all the other members walking. I continue to receive the email newsletter from LFNC and look forward to reading the latest news about lupus. I have also recommended LFNC to a friend recently diagnosed with lupus.

debeke

Client Served

Rating: 5

I was diagnosed with Lupus in 1986. Through the Lupus Foundation I have learned much about what Lupus is and how to treat it. Most importantly for me has been the ongoing information on how to live my life to the fullest while dealing with the fatigue, pain and other symptoms of Lupus.

Previous Stories
6

Client Served

Rating: 5

I have used Lupus Foundation of Northern California a lot. When I was first diagnosed I ordered information from them and went to several lectures. Through a lecture I found a local support group. I got most of my information about lupus from this information and lectures. I still look forward to my newsletters and updates from LFNC. A very good foundation!

Client Served

Rating: 5

When first diagnosed with Lupus my Rheumatologist suggested I contact the LFNC for information and support. I did so, and attended a conference for those newly diagnosed with SLE. The conference was informative, and most important to me, I knew I was getting up to date and correct information. Now, over 20 years later, I am still a member and I continue to learn from the newsletters - the LFNC provides an invaluable service to patients and family. I would highly recommend teh LFNC to anyone who has SLE or any type of immune system disease.

Review from Guidestar

Client Served

Rating: 4

LFNC DOES A GREAT JOB OF GETTING THE INFORMATION OUT ABOUT LUPUS. MUCH OF THE GENERAL POPULATION DOES NOT KNOW MUCH ABOUT THIS PREVALENT DISEASE. THE NEWSLETTERS ARE INFORMATIVE AND ARE UP TO DATE WITH THE NEWEST INFORMATION ON PERTINENT RESEARCH AND NEW DEVELOPMENTS IN THE FIELD. THERE ARE OFTEN STORIES OF PATIENTS WHO HAVE HAD SUCCESS OR GOOD ADVICE FOR FELLOW PATIENTS. THE E-NEWSLETTERS ALSO HAVE INFORMATION ON INSURANCE ISSUES WHICH CAN BE SO IMPORTANT TO PATIENTS WITH CHRONIC DISEASE. PATIENTS WHO WANT SUPPORT GROUPS OR SOURCES FOR MORE INFORMATION CAN FIND THESE AT LFNC.

Client Served

Rating: 5

I was diagnosed with Lupus 20 years ago and it was life changing for me. I used the Lupus Foundation of Norther California as my resource of information about the disease. They also directed me to support group that got me through the first few years. I direct those who I come in contact with to the Lupus Foundation and they thank me as their experience is similar to mine. Although, having Lupus is something I have made my peace with I continue to read all the info that the Foundaton provides. I also donate to them as I persoanlly know the value they offer to their clients.

Review from Guidestar

Helen13

Client Served

Rating: 5

I have been a member for over twenty years. Initially the group was a terrific resource for learning about Lupus when I was first diagnosed. I went on to facilitate a Lupus support group in my area for several years. I am in remission for the most part now, but continue my membership as a way of keeping myself up to date on the latest treatments and information.

Review from Guidestar

Client Served

Rating: 5

After years of odd health events, I was diagnosed in 1984 with having SLE. As an RN I knew lupus by text book but did not have much experience with the disease. Someone directed to the Lupus Foundation and I found great resources in books to read and conferences to attend. Over the years I have been able to refer many people to the foundation for help, including doctors, family members and patients. Also when you have Lupus and someone who knows you has a friend (usually newly diagnosed with lupus) they call you for help, especially if you are an RN. The newsletter and associated newsletters have brought me lots of great information I have shared with my doctors, family, friends and other lupus diagnosed people. I appreciate research and have been able to be a subject in several lupus and lupus related research studies thanks to the Lupus Foundation getting the information out to me in newsletters and now email. I know of no better resource for our community, lupus patients, family, friends, research and doctors than our very own Lupus Foundation of Northern California. I felt like I mattered when I contacted the foundation for the first time or attended a conference. I feel J. Dewitt was a great director and set a balanced and sound course for our foundation. I also had a letter from Henrietta Aladjem when I wrote her a note about her newsletter and felt like I was important to her personally. It was her books, the first I read about Lupus that I was directed to from the foundation that helped me see that lupus can be lived with. This is the overall message I get from the LFNC- you can live a full and productive life with lupus by taking steps along the way to care for yourself and attend to the lupus. LFNC puts lupus in perspective. Lupus may be part of my life but it is not who I am.

Review from Guidestar

Previous Stories
8

Client Served

Rating: 5

I was diagnosed in 1984 after ten years of "we think you have Lupus but so far it is only autoimmune events". LFNC was BALF then and it was still pretty new but fully functional when I contacted the organization. I received quite a bit of very helpful information and was directed to several books. These books put many things into perspective for they told the stories of Lupus patients. I attended conferences that were educational and helped with doctor visits. The newsletter is an excellent resource for individuals and family members. I have taken it to doctor and dental visits to share the information with my health care providers. Even though I was a Reg. Nurse I did not know about living with Lupus, Sjogrens, Raynauds and Discoid Lupus. The Lupus Foundation gave me tools and direction. I became a person others would send their friends "newly diagnosed" with Lupus to for information and reassurance. I would then direct them to BALF/LFNC and encourage them to ask for information and participate in activities. Many have told me that the foundation was a big help to them and their families. LFNC is a valuable resource for not only the Lupus patient but the community at large as it is inclusive and never exclusive in sharing information and providing avenues for education about a very complicated and deadly disease. I am proud to be a member and I encourage others to join.

Client Served

Rating: 4

I was diagnosed in 2010. I have come to Lupus of Northern California for support and have joined support groups to understand the disease and better education myself and my family.

Review from Guidestar

Susan106

Client Served

Rating: 5

Lupus Foundation of Northern CA does a wonderful job of providing lupus information to patients and the community. The email newsletters are informative and interesting. I recently attended a lupus seminar and got a chance to meet others with lupus and discuss important topics. I think Rene is doing a fantastic job!

Review from Guidestar