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Lupus Foundation of Northern California

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Nonprofit Overview

Causes: Health, Health Support, Nerve, Muscle & Bone Diseases, Specifically Named Diseases

Mission: To be a premier source of information on lupus by providing programs ana services designated to educate and increase the knowledge of those affected by lupus, promote lupus awareness, and support external lupus research efforts.

Target demographics: lupus patients and their families

Geographic areas served: Northern California

Programs: support services, education events, advocacy activity and research.

Community Stories

44 Stories from Volunteers, Donors & Supporters

2 cvonraesfeld

Client Served

Rating: 5

Had it not been for the amazing people at the LFNC I may have spiraled out of control. In a period filled with panic attacks, high anxiety and multiple brain issues they kept me grounded. The support group has been an amazing resource and is inclusive of everyone, No one is ever turned away for lack of resources which puts this in the top of the Lupus Organizations. There is always a friendly face or a welcoming voice and plenty of food! A great organization to get involved with whether you are a patent or just looking for more information.

Comments ( 1 )

lfnc Thank you, Christine! Your hard work for lupus patients everywhere inspires the staff each day.

1

Board Member

Rating: 5

Can't say enough about Lupus Foundation of Northern CA (LFNC). An extremely dedicated staff, ED, volunteers, board members and supporters who care deeply about helping Lupus patients and their families. Not knowing a thing about the illness prior to my diagnoses LFNC became my go to place for information, resources, programs and support. They have truly made an impact on the lives of so many patients myself included.

I am thankful for their support on my lupus journey which has lead me back to them. Must say LFNC is GREAT stand out !! Non profit !!

Comments ( 1 )

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lfnc 10/29/2016

Thank you for your incredible dedication to the cause and hard work on behalf of everyone with lupus.

Previous Stories

Volunteer

Rating: 5

LFNC provides valuable information and is a great resource for the Lupus community. I am impressed with the kind hearted , dedicated board members and volunteers. Keep doing what your doing!!!Great Job. Thank you for all that you do!.

lupus

Volunteer

Rating: 5

I have been a volunteer for the LFNC for approximately 27 years. I first became involved when I was newly diagnosed and was seeking information and support. The organization was there to meet my educational and emotional needs. The administration is very supportive and encourages members to become involved, therefore I used my professional experience as a registered nurse to help teach classes, lead support groups and volunteer in other capacities. This nonprofit really stands out in its mission to raise awareness of lupus, support those who suffer from lupus and their families, support legislation to increase funding for research, and directly supply funding for lupus research. For this reason, LFNC should be one of the top great nonprofits in the country.

Previous Stories

Volunteer

Rating: 5

The Lupus Foundation of Northern California has been a part of my life for the past 15 years. First, as a newly diagnosed client seeking information and support. The organization provided literature, videos and classes. I also found support in one of their subchapter support groups. I met others suffering the same issues and made friends for life. As I became familiar with the chronic nature of the disease, I decided to give back by becoming a volunteer. I utilized my background as a nurse to assist as a spokesperson, teacher and coleader of a support group. During this time I earned how many people have been served by this great nonprofit.

Review from Guidestar

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Volunteer

Rating: 5

I have volunteered at many non-profits, but LFNC stands out among them because of the dedication of the staff and how much they care about supporting lupus patients and their families and friends. In addition to providing important information, LFNC does an incredible job advocating on their behalf, to get them the support and resources that are needed at the state and national level.

Previous Stories

Volunteer

Rating: 5

I've always been impressed with the dedication of the staff and volunteers at LFNC. They do an incredible job of educating and supporting individuals with this very severe and confusing disease, as well as helping families and friends understand and support those who have it. In addition, their advocacy work is truly admirable.

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Volunteer

Rating: 5

I have volunteered for LFNC for almost twenty years in Sonoma County. I love the people I've met in our support groups. We have made a queen-size butterfly quilt as a fundraiser and made more than $1,000 by selling tickets. The members of the support group are very encouraging to each other.

Volunteer

Rating: 5

I started off getting involved in LFNC as a Lupus patient and soon fell in love with the organization. All the effort and these amazing people put into helping people who felt so hopeless and alone when they were first faced with their diagnosis is obvious the second you meet them. There seems to be a very warm welcoming energy about the foundation and all the people there. I felt right at home only after a few visits. Then before I knew it I was volunteering because I wanted to be a part of what they did in making a difference in people's lives. I am so grateful to have found this organization. It was a huge resource of support that helped me get back on my feet and get my life back.

Previous Stories

Volunteer

Rating: 5

I first came across LFNC when I was diagnosed with Systemic Connective Tissue disorder. I was going through a very rough time in my life and this organization became a second family. One that understands and is supportive in every way possible. They helped encourage me to never give up hope on battling this horrible and confusing disease. With the support from them and from my family and friends I have been in remission for about 6 months now. I have been volunteering at LFNC all through out my battle with SCTD/Lupus and have even spoken at a meeting regarding my remission and my journey in how I got there. LFNC has done so much for me I can't say enough. I fully support them the way they have supported me. I recommend this organization to anyone who wants to be a part of an amazing cause.

Review from Guidestar

Volunteer

Rating: 5

I was at my annual lupus exam when I first learned about the Lupus Foundation of Northern California. There was a poster seeking participants for their 5K run that caught my interest. I had been looking into becoming a volunteer with some organization and decided the LFNC would be one of a personal interest to me.

The staff for the LFNC welcomed me with open arms and made me feel like I was part of the LFNC family. I have enjoyed working with many volunteers in our efforts to fundraise and help raise awareness about Lupus.

I look forward to many years as a volunteer and I hope that many others will come forward and join the LFNC organization.

Volunteer

Rating: 5

I am a Senior in high school and my best friend and my great aunt are both Lupus patients. In knowing the effects of this disease on an individual, my mother and I searched for a place that we could volunteer at that would help us understand the disease more. We also just really wanted to show our support to all the strong Lupus patients. We received an e-mail that asked if we help send out newsletters and we immediately responded. A few days later, we came in and were greeted with warm smiles as we were introduced to all the other volunteers. All the people in the office were very passionate about what they were doing, whether it was labeling envelopes, folding papers, and even making calls for donations. The warm feeling I felt when I was volunteering, made me want to return to help out at another time. Since then, I have volunteered several times and have gotten close to the staff and other volunteers. I believe that this nonprofit organization does a wonderful job in spreading and supporting Lupus awareness and is a perfect place to seek help and information about this disease.

Volunteer

Rating: 5

I first came to learn about the Lupus Foundation when a co-worker of mine revealed that he had lupus. I didn't know what lupus was, so I searched the Internet and found the Foundation's website. I learned a lot of information about this disease through them. That year, I also started participating in their 5K Run and Walk to help spread awareness about lupus and to do what little I can to help raise funds for lupus research. I hope there would be more resources like the Lupus Foundation all over the country.

Previous Stories

Donor

Rating: 5

For two years in a row now, I have been asked by a friend with lupus to join her team for the 5K Run and Walk for Lupus in Saratoga, California. It was my pleasure to support my friend and donate some money to the Foundation. I was very impressed with their annual event. This year's event was even better than the last -- very well-organized and there was something for everyone: from snacks to free t-shirts, goodies, good information and great entertainment! Volunteers were very helpful and the crowd was just very friendly and passionate about the cause!

Isabelle H.

Volunteer

Rating: 5

The Lupus Foundation of Northern California (LFNC) is definitely a great nonprofit organization. As a volunteer, I learned a great deal about the autoimmune disease, lupus, while helping out at the office. My mom who was diagnosed with lupus 15 years ago benefits from knowledge I gain. The staff has one primary goal and that is to make the lives of those people diagnosed with lupus better through patient education, support groups, increasing awareness, and research. Lupus, is a serious yet little known illness. LFNC strives hard to spread the word about this disease because people affected with the disease or are susceptible to getting it can fight it and live normal lives.

Review from Guidestar

Dina T.

Volunteer

Rating: 4

I joined the Lupus Foundation of Northern California as a volunteer because a friend has lupus and i had little knowledge of what this disease was all about. I wanted to help put an end to this disease that was incapacitating my dear friend. i have learned much about Lupus though books, pamphlet, and videos. Recently i watched Rene' Astudillo Executive Director of lupus Foundation of Northern California give an interview on television and he talked about Lupus and their goals for the foundation. i found this to be very informative, he explained what Lupus was and i got an even better understanding of this disease just by listening to him explain it. More interviews on television would be helpful. I have come to understand that we need more research on this disease and more funds.

Volunteer

Rating: 5

Have volunteered with the LFNC for several years and continue to be impressed with its effort and accomplishments. Remarkably the LFNC achieves so much with a small staff of 3, a few active board members and its dedicated volunteers. Lupus is a horrific disease affecting our loved ones with varying levels of complexity - sometimes fatal. Yet very little is known about it by the vast majority of people, sadly even among medical professionals. So it is all the more important to provide support to lupus patients and their families. I know the LFNC strives to do this with care and compassion. Invaluable too are its weekly electronic newsletters that provide information to our LFNC family.

Review from Guidestar

Volunteer

Rating: 5

Working with the organization made me realize how many unselfish people there are who just want to make I difference or make someone's life easier. I've worked with the San Jose lupus foundation for a few years now, and every time I'm there I'm greeted with a smile. Most organizations I've worked with before give you a job that keeps you busy, but might not really have a direct impact on others. Lupus has givin me the opportunity to take on challenges that will help the organization move forward. Personally I will do any job I can to help but with lupus they gave me a opportunity to make a direct difference in other organization and with others, making me feel wanted and needed which everyone wants as a volunteer. Special thanks to Rene, Spandan, and Maggie at the Lupus Foundation San Jose.

Review from Guidestar

Alejandra G.

Volunteer

Rating: 5

The whole team was like a family and everyone who walked into the office was given a warm welcome. I love working with them because I'm not treated like a little kid (I'm 18 but I look younger), I am given the same amount of respect as any other person. Everything is always completed on time and the planning as well as preparing for events is efficient and always on the dot. They've made being a volunteer there fun and I can't wait 'till I go again.

Review from Guidestar

5

Volunteer

Rating: 5

I have learned much about lupus from the Lupus Foundation of Northern California’s education and advocacy programs. Their electronic e-newsletter has some great articles, with health and life management tips that are great for lupus patients (and are often applicable to those without lupus too). And their facebook page often reports on stories where lupus patients or new drug possibilities are in the news.

4

Volunteer

Rating: 4

As the parent of a child with lupus, LFNC has been an invaluable resource. We have benefited immeasurably from their informational online chats, publications, online resources and conferences. In addition, our daughter has been able to take an active role in organizing a fundraising team for the lupus walk. This has given her an opportunity to take action and meet others with lupus and arthritis, which has been very helpful to her coping with the illness.