LUNGevity is a nonprofit focused on a very deserving but underserved (some would say ignored) population of cancer patients -- those with lung cancer.
LUNGevity does two things well that distinguish it from other non-profits. First it supports and sustains lung cancer survivors and those who care for them. It sponsors a very effective online forum that brings survivors and caregivers together to foster hope, share treatment experiences, and spread side-effect mitigation ideas. Second it funds research to advance the science and therefore the development of effective curative treatments.
I first learned of the Lungevity foundation about 4 years ago which was 8 years after my diagnosis. I had explored other organizations, but I knew I found the right one when a friend suggested I check out Lungevity. This organization is truly patient/survivor centered, offering us emotional, psychological and educational support and information. Most importantly, Lungevity offers us hope by keeping us updated on all recent developments regarding treatments. I have been living with lung cancer for 12 years now and I credit Lungevity for helping supply vital information for e to share with my care team.
This is by far the most knowledgeable, helpful, supportive and educational Lung Cancer organization out there. LUNGevity is staffed by people who are 150% invested in doing their absolute best to serve the needs of Lung Cancer patients and caregivers. Their Regional and National HOPE Summits are well organized and feature specialists in all aspects of this disease. They have our backs and work hard to keep us up to speed on the latest advances as well as provide opportunities for us to reach out to others. Thank you LUNGevity for all you do. - Melissa Crouse - Living with lung cancer for 10 years (stage 4 now)
I was introduced to LUNGevity 2 years post my diagnosis. I had no idea such organizations existed prior to being diagnosed with lung cancer. In a word, 'Amazing'. They cover so many bases it's difficult to put in a review. Support, information, and research funding top the list. LUNGevity has no peer from where I sit. Eternally grateful I learned of them when I did. They're a game changer for people such as myself.
So blessed I found this organization browsing through the Internet after my diagnosis. This organization is wonderful, they know exactly how we (lung cancer warriors) feel and understand because they too have been effected by lung cancer one way or another.
LUNGevity is a very powerful group of cancer warriors and their caregivers, who speak cancer and encourage each other, to see another sunrise. They devote every minute to lung cancer, which kills more people every year than the top four cancers combined. As a ten year stage four survivor, I am honored to be part of such a wonderful foundation.
I found Lungevity and an incredible dedicated group of people almost four years ago. The offer me, a lung cancer survivor, stage 4 diagnoses, a inner circle of people like myself who offer kindness, understanding, prayers, wishes and place to meet up and share our crazy roller coaster lifestyle. Many of us live in three, six or twelve month intervals between our scans. We reach out and get inspired, we reach out and get hope. Thanks, Audrey
In 2012 I had the good fortune to meet with many helpmates in this incredible organization. The outreach of this group goes far beyond what one might expect. Comprised of dedicated people from all walks of life, coming together to advocate, support and uphold the lung cancer community at large is to be praised on all levels. I've yet to experience from any other such organization the outreach that LUNGevity provides to mention a few, medical navigation
, emotional support, opportunities to inspire and encourage, it's a place to be real.
I'm a four year lung cancer survivor currently facing a recurrence of my cancer. I was not really aware of LUNGevity until starting to fight this recurrence. I am most impressed with the quality of the people in the LUNGevity organization and specifically their commitment to improving the situations of survivors/patients like me. I have learned enough about the research funding focus of this organization to believe that its efforts will significantly help me and others facing this dreaded cancer--I also applaud LUNGevity's efforts to provide peer mentoring/support whenever and however needed.
Lungevity extends a warm welcome to everyone who is touched in some way by lung cancer.It is an organisation that is determined to fight the scourge of lung cancer on many different levels,investing $millions supporting lung cancer projects right down to supporting individual survivors,families and carers.Their interests extend beyond North America,reaching out worldwide,even to such places as Bonnie Scotland,which is where I live,almost five years ago,I was diagnosed with lung cancer,it was through searching the internet for some information on lung cancer,I discovered LUNGevity, reading through their website engaged me enough to want to become a member.I was accepted into a new family friends who are made up of survivors,carers and family members.It has been my priviledge to visit the USA on two occassions and meet with,many LUNGevity members and staff I had only contact with prior online.It is my intention to make future visits to the USA,to maintain and strengthen my links with LUNGevity.
I was dxd with lung cancer in Oct 2008,a death sentence I believed,my mind was in turmoil,thought of losing my wife and daughter forever was just so difficult to bear.Family and friends helped me tremendously from the start and through my chemo and surgery.On the successful course of treatments,I still was in need of the emotional support that my family and friends provided previous,but my cancer situation was wearing a bit thin on their patience with me,as one of my friends put it "Eric you have had all your treatments,the cancer is now gone for good,now forget it and get on with your life".My cancer issues were upsetting them,and I couldnt really blame them for wanting the subject dropped. Surfing the net one day,looking for some good news stories regarding lung cancer,I stumbled onto a site called LUNGevity,I had found something very special,a new family of friends just waiting for me to join them to share friendship,their knowledge and experiences with lung cancer,to make me realise I would never be alone again having to deal with my problems with lung cancer.I can testify that LUNGevity has been and is my saving grace.
Review from Guidestar
Lungevity is an amazing organization. The support that they offer survivors and caregivers far surpasses ANY organization out there. When I was diagnosed seven years ago, they were the only organization out there offering hope. They raise money for the much needed and underfunded research.
When I was dx'd almost three years ago, I read the stats for advanced lung cancer--3 to 5 yrs. I was devastated. All my family and friends were at a distance. In my search for info about my cancer, I was fortunate to find the Lungevity support community. It saved my life then and supported me through every crisis real or imagined every since. Hopefully, I am now a member who can offer the same to others. A primary message, we are not a number, we are an individual.
Review from Guidestar
When my wife was diagnosed with lung cancer in March 2010 the family and myself were totaly ignorant and confused. My eldest daughter discovered the web site and since then I have had only proffessional and personal advice from all the members. Every posting was promptly answered on and advice or compassionate help offered. We ar all in the same situation and Lungivity Foundation has proved its worth with all the help and also the reports of the research taking place to try and eradicate or better treat this terrible disease. My wife has passed away but I will continue visiting the site. Once again thank you or everything you did for me and the family
Review from Guidestar
I came across Lungevity after the passing of my father in 2008. The people I met have been wonderful! They get you through the toughest of times and give you praise for exciting news! I don't know where I would be if I hadn't found this website.
Review from Guidestar
I first came across when I joined Facebook and became friends with those who had lost relatives ttis disease and tried to offer words comfort and understand from them what a wonderful job Lungevity do in thier support of those with this disease and their relatives - also came to know something of the fund raising which takes place