Lungevity is everything they say and more. When you want to find facts, they have them. If you, or your care-giver (or co-survivor as they have been calling them. Much more accurate term in my opinion) need someone to talk to, they they will match you with someone who has been through similar situations. And if you want to volunteer, they have many things for you to do so that no matter what you are capable of, you can feel useful and appreciated. Every member of that group is like a super pleasant ambassador into the one side of your lung cancer journey that doesn't cause emotional or physical pain. The support is unending and full of true friendship from volunteers and paid staff alike.
I am so blessed to have found them 5 years ago.
This is just an amazing group! No matter how you want your support, you can find it here. There is a message board so you can post questions or just what you are worried about to get written support. If you just need to type it out to get a rant out, do it here and half a dozen people will give you virtual hugs and pats on the back. If you are wondering what post-op will be like, people will share their stories.
If you prefer to have some one on one support they will find you someone to email or phone who understands what you are going thru because they have been thru it too. They try to match you as close as possible for diagnosis and anything else you prefer... if you want to make sure that you are matched with someone your gender, age group, family situation... ask away and if they know of someone that fits the bill, you will have a new friend.
Then there is the annual Hope Summit in DC! Informative speakers, yummy meals and more and more survivors every year!! I can hardly wait til May for the next one!!
There is no better place for lung cancer support!
I thank God that I found them and only wish I had found them sooner!!
LUNGevity has awesome information and resources for people with Lung cancer and for caregivers. They provide up to date information regarding lung cancer. The Hope Summit was one of the greatest experiences I had since my diagnosis.
This organization gives hope and valuable resources to those fighting lung cancer. The Hope and friendships and help given to my son were phenomenal! I will be forever grateful!
Lungevity Foundation is such a wonderful resource for those of us diagnosed with lung cancer. Not only does it help in navigating all the information one seeks at the time of a diagnosis, but it also provides LifeLine. This is a mentoring program which puts you in touch with someone who totally understands! In addition, if you attend any Lungevity functions such as Breathe Deep or especially the Hope Summits, the instant connection with other sister and brother survivors is unexplainable.
I was in Hospice care when I found Lungevity. That was early in 2017. I was already improving and I was on oxygen. I so wanted to attend the National Hope Summit as a Bucket List item. I was able to get financial assistance with my hotel costs by Lungevity. My daughter and I flew into Washington D.C. and spent the weekend with some of the most amazing people that I have ever met. I got some new information that was a game-changer for me. I felt so much love and hope from the other survivors. After we returned home, I kicked Hospice to the curb after 10 months. I am about to start a new targeted pill for my genetic mutation. Lungevity has literally saved my life!!!
I found lungevity in 2010, several months after my lung cancer diagnosis. Their website gave me the information I was looking for and in 2012 I attended my first survivors Hope Summit which completely changed my life. Where I felt ignorant I gained knowledge. Where I once felt helpless, I found empowerment. When I felt alone, lungevity connected me to strangers who became family. Lungevity gave me the tools to help others by being a lung cancer advocate. After my mom's death from one cancer in 2016 I brought my father to the Hope Summit. I had hoped it would have the same impact on him as it did on my mom and I. After only half of the weekend I saw a side of my father I never knew existed. Lungevity has taught my father how to live as a caregiver with no one to care for. He also has lungevity family and a new purpose no. We are only three lives that lungevity has changed for the better but there are so many more lives... families who benefit everyday because lungevity exists.
When I was first diagnosed with lung cancer--a never smoker--I was in shock and overwhelmed. LUNGevity was the first to reach out and give me support and resources. Super engaged, super active and proactive, and on top of the latest in research and treatments. Five years later, I am still going strong--and still think the world of LUNGevity and its wonderful, caring staff!
Amazing support! Informative and uplifting. I start everyday by checking in to see how my fellow survivors and fighters are and end every day with a prayer for us all!!! LUNGevity is one of the few non profit who actually use your money for research which is another thing I love
I was diagnosed with lung cancer in 2000, 3 months after my mom died of lung cancer. It was before the internet boom and I felt so alone and scared. I was a single mom with 10 year old twin boys and no family around. Within about 6 months of my diagnosis, I started becoming familiar with the world wide web, but there was very little to nothing on lung cancer.
Then I found LUNGevity. I was no longer alone. I now have a community, a family. LUNGevity's site is comprehensive and the message board is a life saver to me.
The support from LUNGevity, has been a lifeline to me. Not only does one get emotional support, but we learn more about different protocols from each other than the doctors!
I think one of the most powerful events LUNGevity sponsors is the annual HOPE SUMMIT. There is so much emotion and support for one another. Words cannot describe what it is like to be able to be yourself, your "cancer self" for one whole weekend.
My biggest challenge has been dealing with the anxiety of leaving my sons without me. I am a single mom and my sons have no other relatives that could be in their lives if something should happen to me. Also, I was diagnosed with LC a few months after my mom passed from the same LC. My children were young and with me while I was taking care of her and we watched her waste away and die. A few months later I was diagnosed and the hardest thing was for me to tell my sons I had cancer too. They were 10 years old (I have twin boys) and I had to go to the hospital for a week, recuperate from surgery and then have chemo treatments, so I knew I would have to be honest and talk with them. It was so hard. I had no one to turn to who really understood. And then I found LUNGevity. The support from LUNGevity, has been a lifeline to me. Not only does one get emotional support, but we learn more about different protocols from each other than the doctors! Also, spends more dollars on research for a cure than other organizations. I think one of the most powerful events LUNGevity sponsors is the annual HOPE SUMMIT. There is so much emotion and support for one another. Words cannot describe what it is like to be able to be yourself, your "cancer self" for one whole weekend.
As a patient I registered for a survivorship conference organized by LUNGevity. Prior to arrival I had lost hope in my situation. After a two day conference I regained a sense of hope & companionship with other patient survivors as well as a greater grasp for looking forward to the future!
Top notch organization with the highest quality, dedicated employees. The services they provide those of us whose lives had been affected by lung cancer are beyond compare.
My first Hope Summit was in 2014. I left with such hope and inspiration and couldn't believe the amount of survivors I got to meet in person. Lungevity not only helps to connect other survivors to give hope and inspire us to keep fighting but they also are the number one non-profit that donates towards lung cancer research. Research is so critically needed for such an insatiable, deadly disease like this. I thank Lungevity staff for their deep dedication and all they do to raise awareness about lung cancer and help survivors live in the process.
If you have lung cancer, get in touch with LUNGevity. If you research treatments for lung cancer, get in touch with LUNGevity. If you need HOPE, get in touch with LUNGevity.
My name is Don Stranathan I am a stage 4 lung cancer survivor and my girlfriend Penny Blume was a small cell lung cancer survivor, she passed in January of 2014. Lungevity was outstanding in helping Penny and I look for new treatments and second opinions. My last promise to Penny before she passed was to continue to advocate for more research and awareness for lung cancer. Lungevity has helped me keep that promise.
I have been involved with Lungevity for over a year now. They have been awesome in providing emotional support along with treatment options. I have non-small cell and my girlfriend Penny has small cell extensive. Katie Brown with Lungevity has been extremely helpful in putting us in touch with people that could help Penny in her fight. We both attended the Hope Summit in May in Arlington, VA. and make contact with other survivors and gained valuable information on how to fight this disease. I am also am a Lifeline Support Partner and have been able to offer one on one support to other survivors that I have been put in touch with through Lungevity
Lungevity provides information,support , fellowship,and valuable connections to other lung cancer survivors and caregivers. As an 11 year survivor, I can't adequately describe the support and connections that i have received through Lungevity. Their staff tirelessly works to provide support and information and the organization funds meaningful research aimed at finding a cure for lung cancer.
I LOVE LUNGEVITY Foundation. I found this foundation last year while attempting to find some type of support group in my area. What I found was HOPE!!!!. They welcomed me in and I went to a regional hope summit. Through that I became part of the Alumni and found some neighboring members. We began a support group in my area for Lung Cancer Survivors. I went to the National Summit in DC. Met many survivors and gained more hope. LUNGEVITY gave me a life line partner. I met her while in DC at the Summit. Now I try to be a life line partner and it feels great to be able to help others. One of the greatest things I love about this foundation is the ongoing support I get from the members as well as Katie Brown. I don't feel or believe I have to go through this cancer journey alone. Great organization.
I was diagnosed with non small cell Stage 4 lung cancer in April 2014. I had no one to talk to about my fears and questions. The Cancer Society gave me the number of Lungevity. These people are terrific. Within 2 days Katie had me in touch with someone who has the same type of cancer. I've finished one round of chemo and will start Round 2 shortly. Then that 1st mentor had a set-back and Katie got me another mentor as soon as I asked for one. There is such a stigma about lung cancer, almost as if we caused it. One breast cancer survivor even asked me how much I smoked to bring it on myself. I would be lost without the caring support of these people.
I was diagnosed with lung cancer in August of 2013. LUNGevity was one of the first online resources I found for getting information about this horrible disease. In May of 2014, I was able to attend the national HOPE Summit in Washington D.C. and connect with other fellow survivors. Since then, I have been working to spread the word about the #1 cancer killer and the stigma associated with it that contributes to the low funding of research projects. LUNGevity has a clear mission and awesome staff that go above and beyond to work with survivors, caregivers and advocates as we all work together to increase funding for essential research. I am proud to be a LUNGevity volunteer and a 14 month (and counting) survivor!
I was involved with Lungevity as a supporter of a local event 2 years ago. Little did I know I would be diagnosed with Lung Cancer and all the emotions and questions that come with it. Lungevity has been an essential tool for me and my family to help us navigate the confusion and questions of a disease that has few research dollars yet kills more people. The stigma of lung cancer for a person who never smoked is unreal. I was embarrassed to disclose my diagnosis. Lungevity has helped me deal with everything - and given me a voice to be an advocate and help others. They are an important lifeline.