Lungevity is everything they say and more. When you want to find facts, they have them. If you, or your care-giver (or co-survivor as they have been calling them. Much more accurate term in my opinion) need someone to talk to, they they will match you with someone who has been through similar situations. And if you want to volunteer, they have many things for you to do so that no matter what you are capable of, you can feel useful and appreciated. Every member of that group is like a super pleasant ambassador into the one side of your lung cancer journey that doesn't cause emotional or physical pain. The support is unending and full of true friendship from volunteers and paid staff alike.
I am so blessed to have found them 5 years ago.
This is just an amazing group! No matter how you want your support, you can find it here. There is a message board so you can post questions or just what you are worried about to get written support. If you just need to type it out to get a rant out, do it here and half a dozen people will give you virtual hugs and pats on the back. If you are wondering what post-op will be like, people will share their stories.
If you prefer to have some one on one support they will find you someone to email or phone who understands what you are going thru because they have been thru it too. They try to match you as close as possible for diagnosis and anything else you prefer... if you want to make sure that you are matched with someone your gender, age group, family situation... ask away and if they know of someone that fits the bill, you will have a new friend.
Then there is the annual Hope Summit in DC! Informative speakers, yummy meals and more and more survivors every year!! I can hardly wait til May for the next one!!
There is no better place for lung cancer support!
I thank God that I found them and only wish I had found them sooner!!
I am a fourteen year Lung Cancer survivor. LUNGevity has played a huge part in my success. Their programs and information are invaluable. The professional service and staff go out of their way to support and encourage. If you are a lung cancer warrior or caregiver, contact LUNGevity now, get support and begin your journey.
I first learned of the Lungevity foundation about 4 years ago which was 8 years after my diagnosis. I had explored other organizations, but I knew I found the right one when a friend suggested I check out Lungevity. This organization is truly patient/survivor centered, offering us emotional, psychological and educational support and information. Most importantly, Lungevity offers us hope by keeping us updated on all recent developments regarding treatments. I have been living with lung cancer for 12 years now and I credit Lungevity for helping supply vital information for e to share with my care team.
This is by far the most knowledgeable, helpful, supportive and educational Lung Cancer organization out there. LUNGevity is staffed by people who are 150% invested in doing their absolute best to serve the needs of Lung Cancer patients and caregivers. Their Regional and National HOPE Summits are well organized and feature specialists in all aspects of this disease. They have our backs and work hard to keep us up to speed on the latest advances as well as provide opportunities for us to reach out to others. Thank you LUNGevity for all you do. - Melissa Crouse - Living with lung cancer for 10 years (stage 4 now)
When I was diagnosed in 2008 with stage III NSCLC, I was in shock. My vision of LC was most likely not too far off from others; a little old man with gray hair sitting alone in the dark of a bar smoking a cigarette. I had the gray hair but not the rest. Following surgery of the same year, I was told I had at most two years to live...
LUNGevity has been a life force in more ways than one can write in a review. Trust though that of all the advocacy and non profits I've had the pleasure to know throughout my almost 60 years, they have no peer. Without a doubt throughout this organization, they are wired tight to support, guide, inform, and advocate for people of every walk of life afflicted. Amazing doesn't begin to describe the level of commitment, knowledge, and capability they bring to life every day making all of our lives a little more HOPEtastic in the process. Nothing short of extraordinary!
LUNGevity continues to set the standard for cancer advocacy organizations. Their level of professionalism and commitment to provide resources and patient support is unparalleled. I have had the extreme pleasure to work with them for the past two years during my cancer journey and no other organization comes close to the level of empathy, understanding, plus overall care and encouragement they provide on a continual basis.
Simply put, Amazing group of individuals working together towards a common cause and ultimately creating incredible results.
My name is Don Stranathan I am a stage 4 lung cancer survivor and my girlfriend Penny Blume was a small cell lung cancer survivor, she passed in January of 2014. Lungevity was outstanding in helping Penny and I look for new treatments and second opinions. My last promise to Penny before she passed was to continue to advocate for more research and awareness for lung cancer. Lungevity has helped me keep that promise.
I have been involved with Lungevity for over a year now. They have been awesome in providing emotional support along with treatment options. I have non-small cell and my girlfriend Penny has small cell extensive. Katie Brown with Lungevity has been extremely helpful in putting us in touch with people that could help Penny in her fight. We both attended the Hope Summit in May in Arlington, VA. and make contact with other survivors and gained valuable information on how to fight this disease. I am also am a Lifeline Support Partner and have been able to offer one on one support to other survivors that I have been put in touch with through Lungevity
In 2009, at 39 years old, I was diagnosed with stage 3B non small cell lung cancer. I underwent brutal treatments for 10 agonizing weeks. Because of the stigma and the small # of lung cancer survivors, I really had no one to talk to about what I was going through, except for my mom, who is also a lung cancer survivor. Without her (my rock) I don't know how I would've made it through. She was always there to support, encourage, and remind me that "tomorrow will be better". I was lucky... most don't have anyone to turn to who has been there, done that. I wanted to share and give to others who may not have been so lucky and were fighting "alone". When I found LUNGevity, I was truly amazed at what this organization is all about. It gave me a voice; a way to touch and be touched in a way that gives and spreads hope to others as well as myself. This organization is all about the survivors, their families and caregivers. It funds vital research and provides information, support, and hope to all who are in need. I have attended the LUNGevity Survivor's Hope Summit two years in row and both experiences were magical. From the moment I walked in, I felt welcomed, accepted, embraced, and loved. I have NEVER experienced anything like it in all my life. Just being with all of the survivors gives me a renewed feeling of strength, empowerment, and unconditional love. I have made friendships that will last a lifetime and have gained the knowledge and ability to touch others as I have been touched. In the days just before the 2013 Hope Summit, I was going through a lot of not so happy things. I remember thinking, "I survived cancer for this?!". I was crying the morning I got onto the plane, but the moment I connected with the first "brother and sister survivors", I was all smiles. I suddenly remembered what it was all about! LUNGevity has opened many doors for me to help not only myself but others who need what we all crave... Love, support, encouragement, and hope. Through LUNGevity, I have been accepted to review applications for funding for research through the Department of Defense, and have been directed to the patient navigation institute where I was awarded a full scholarship to train to be an oncology patient navigator, None of this would've been possible without the guidance that LUNGevity provides, There is NO better nonprofit organization out there!!!
I was diagnosed stage four in 2009. I came through some very harsh treatments and made it. I have been cancer free for almost four years. During the first part of treatment and beyond, it was frustrating to have no support in our little town. I went through all the usual emotional issues and felt alone. I bumped into Lungevity by accident in a magazine ad. I looked it up online and found a great resource for support. I made many online friends who knew what I was going through and gladly accepted me. I have been to two of the Hope Summit gatherings in Wash. DC. I have learned so much from this wonderful group and feel like part of a big national family and beyond. I am aware of their tremendous fundraising efforts and all they do to help research. They work so hard and they know so many of us on a personal level too. They have made a huge impact during my recovery and continue on our behalf as patients, caregivers, survivors and families.
Lungevity extends a warm welcome to everyone who is touched in some way by lung cancer.It is an organisation that is determined to fight the scourge of lung cancer on many different levels,investing $millions supporting lung cancer projects right down to supporting individual survivors,families and carers.Their interests extend beyond North America,reaching out worldwide,even to such places as Bonnie Scotland,which is where I live,almost five years ago,I was diagnosed with lung cancer,it was through searching the internet for some information on lung cancer,I discovered LUNGevity, reading through their website engaged me enough to want to become a member.I was accepted into a new family friends who are made up of survivors,carers and family members.It has been my priviledge to visit the USA on two occassions and meet with,many LUNGevity members and staff I had only contact with prior online.It is my intention to make future visits to the USA,to maintain and strengthen my links with LUNGevity.
I was dxd with lung cancer in Oct 2008,a death sentence I believed,my mind was in turmoil,thought of losing my wife and daughter forever was just so difficult to bear.Family and friends helped me tremendously from the start and through my chemo and surgery.On the successful course of treatments,I still was in need of the emotional support that my family and friends provided previous,but my cancer situation was wearing a bit thin on their patience with me,as one of my friends put it "Eric you have had all your treatments,the cancer is now gone for good,now forget it and get on with your life".My cancer issues were upsetting them,and I couldnt really blame them for wanting the subject dropped. Surfing the net one day,looking for some good news stories regarding lung cancer,I stumbled onto a site called LUNGevity,I had found something very special,a new family of friends just waiting for me to join them to share friendship,their knowledge and experiences with lung cancer,to make me realise I would never be alone again having to deal with my problems with lung cancer.I can testify that LUNGevity has been and is my saving grace.
Review from Guidestar
A first class organizatin. Great staff, great resources, and there for you whenever you need them. Thanks for everything you do LUNGevity!
The event every year is something my whole family looks forward to. LUNGevity gives them a way to honor our loved one and raise funds for research at the same time. Thank you LUNGevity. We are working to CURE LUNG CANCER!
I met LUNGevity when I was first diagnosed with lung cancer. I was diagnosed at 24 years old so I felt pretty alone, but LUNGevity changed that. I was instantly connected with people who knew exactly what I was going through, and it was wonderful to not feel alone anymore! Not only are the staff personable, respectful, and caring, but they all have been impacted by lung cancer in some way. Every single person affiliated with LUNGevity knows how hurtful lung cancer is, and we all want to stop it. LUNGevity Foundation is the best charity I have ever come across, because they are dedicated to not only finding a cure for this disease but also to emotionally help those impacted whether patient, family member, or friend. I would not be where I am without LUNGevity.
I am a stage 4 NSCLC adenocarcinoma one year survivor. I found LUNGevity after I had been through my first rounds of chemotherapy and was on a genetically targeted therapy that was just beginning to work. My sisters formed a team at Ann Arbor, Michigan's Breathe Deep event. I started to explore the website and learned of Hope Summit 2012 when Katie Brown wrote me a thank you note for my donation to the Breathe Deep event. She also invited me to apply for a scholarship to attend Hope Summit for lung cancer survivors. I am a bit shy, so it was a big step to attend the Summit. I have gotten support and been involved with the LUNGevity online community ever since. I have begun to volunteer as a moderator in the discussion forums on the site. I did not know anyone with lung cancer. LUNGevity has supported me, given me friends that are also fighting cancer and has given me purpose again in my life. I love this organization and have so much respect for the folks that run it. They are the REAL DEAL!
LUNGevity Foundation is a top notch non-profit organization. They truly care about lung cancer survivors and anyone affected by this deadly disease. I found LUNGevity after my father passed away and began to volunteer at a local event raising funds for much needed research. I wish I would have found LUNGevity while my father was still living to get much needed help. I am proud to say I volunteer for this amazing organization.
Lungevity is a wonderful organization to be a apart of if you are living with Lung Cancer or know of someone who is living with this disease. Full of wonderful caring people who are there to inspire and motivate and share the tears with when you want to cry. they are a great group trying to make progress in the fight against Lung cancer every day in every way!! I have served as a moderator since my wife was fighting Lung Cancer and that has been about 8 years now. Since she passed away they have been there to support me in my grief and help me through the good and bad days !!
My husband was diagnoised with LC 6 years ago. I was so scared I thought it was a death sentence. I had nowhere to turn until I found Katie and Rick Brown's support webpage. It actually changed my life. There are so many people on there who are survivors and it they gave me such encouragment. And they are so knowledgable and helpful... My husband cancer came back 3 times. The last time he was treated with cyberknife and has been C free for 1 1/2 years the longest he has gone! It was LC help that introduced us to cyberknife... Katie and Rick to me are angels here on earth!! Also because LC is on the bottom of the list as far as funding, we joined Lungevity to help with awareness. We have been walking the South Jersey Heather Saler walk for 5 years now. We ourselves have raised over $20,000.00 over those 5 years. We are making a difference but we need VOLUNTEERS!!! Maryanne & Joel
Review from Guidestar
My husband was diagnosed with lung cancer over five years ago. He has since passed away. LUNGevity was there for me as a wonderfully helpful support.
Review from Guidestar
I was diagnosed with Stage IIIB lung cancer in December of 2004... Soon after, I found Lungevity and felt an immediate bond as their mission matched the goals I wanted to begin to accomplish during my healing. Since 2006, I have had the awesome privelege of supporting Lungevity's mission. Their focus on grants for research is certainly proving true that "lives are being saved". I am so proud of this organization and am excited to see what the future holds for the growth of such an amazing organization. Keep up the great work Lungevity!!!
Review from Guidestar
My step-dad was diagnosed last summer with Stage 4, non-operable lung cancer. He started treatment immediately and was going through Radiation and Chemotherapy at the same time. When I discovered this, I needed to find a way that I could "help" in his fight to win. I did a lot of research and came across LUNGevity Foundation. I feel so blessed to be a part of such a wonderful organization and in doing my part to help obtain money in order to aid research. I am VERY happy to announce that in March they indicated that my dad is cancer-free. I am still SO committed to this cause and will do whatever I can to spread the awareness and eventually discover a cure.
Review from Guidestar