When I was diagnosed in 2008 with stage III NSCLC, I was in shock. My vision of LC was most likely not too far off from others; a little old man with gray hair sitting alone in the dark of a bar smoking a cigarette. I had the gray hair but not the rest. Following surgery of the same year, I was told I had at most two years to live...
LUNGevity has been a life force in more ways than one can write in a review. Trust though that of all the advocacy and non profits I've had the pleasure to know throughout my almost 60 years, they have no peer. Without a doubt throughout this organization, they are wired tight to support, guide, inform, and advocate for people of every walk of life afflicted. Amazing doesn't begin to describe the level of commitment, knowledge, and capability they bring to life every day making all of our lives a little more HOPEtastic in the process. Nothing short of extraordinary!
LUNGevity continues to set the standard for cancer advocacy organizations. Their level of professionalism and commitment to provide resources and patient support is unparalleled. I have had the extreme pleasure to work with them for the past two years during my cancer journey and no other organization comes close to the level of empathy, understanding, plus overall care and encouragement they provide on a continual basis.
Simply put, Amazing group of individuals working together towards a common cause and ultimately creating incredible results.
This is by far the most knowledgeable, helpful, supportive and educational Lung Cancer organization out there. LUNGevity is staffed by people who are 150% invested in doing their absolute best to serve the needs of Lung Cancer patients and caregivers. Their Regional and National HOPE Summits are well organized and feature specialists in all aspects of this disease. They have our backs and work hard to keep us up to speed on the latest advances as well as provide opportunities for us to reach out to others. Thank you LUNGevity for all you do. - Melissa Crouse - Living with lung cancer for 10 years (stage 4 now)
My name is Don Stranathan I am a stage 4 lung cancer survivor and my girlfriend Penny Blume was a small cell lung cancer survivor, she passed in January of 2014. Lungevity was outstanding in helping Penny and I look for new treatments and second opinions. My last promise to Penny before she passed was to continue to advocate for more research and awareness for lung cancer. Lungevity has helped me keep that promise.
I have been involved with Lungevity for over a year now. They have been awesome in providing emotional support along with treatment options. I have non-small cell and my girlfriend Penny has small cell extensive. Katie Brown with Lungevity has been extremely helpful in putting us in touch with people that could help Penny in her fight. We both attended the Hope Summit in May in Arlington, VA. and make contact with other survivors and gained valuable information on how to fight this disease. I am also am a Lifeline Support Partner and have been able to offer one on one support to other survivors that I have been put in touch with through Lungevity
In 2009, at 39 years old, I was diagnosed with stage 3B non small cell lung cancer. I underwent brutal treatments for 10 agonizing weeks. Because of the stigma and the small # of lung cancer survivors, I really had no one to talk to about what I was going through, except for my mom, who is also a lung cancer survivor. Without her (my rock) I don't know how I would've made it through. She was always there to support, encourage, and remind me that "tomorrow will be better". I was lucky... most don't have anyone to turn to who has been there, done that. I wanted to share and give to others who may not have been so lucky and were fighting "alone". When I found LUNGevity, I was truly amazed at what this organization is all about. It gave me a voice; a way to touch and be touched in a way that gives and spreads hope to others as well as myself. This organization is all about the survivors, their families and caregivers. It funds vital research and provides information, support, and hope to all who are in need. I have attended the LUNGevity Survivor's Hope Summit two years in row and both experiences were magical. From the moment I walked in, I felt welcomed, accepted, embraced, and loved. I have NEVER experienced anything like it in all my life. Just being with all of the survivors gives me a renewed feeling of strength, empowerment, and unconditional love. I have made friendships that will last a lifetime and have gained the knowledge and ability to touch others as I have been touched. In the days just before the 2013 Hope Summit, I was going through a lot of not so happy things. I remember thinking, "I survived cancer for this?!". I was crying the morning I got onto the plane, but the moment I connected with the first "brother and sister survivors", I was all smiles. I suddenly remembered what it was all about! LUNGevity has opened many doors for me to help not only myself but others who need what we all crave... Love, support, encouragement, and hope. Through LUNGevity, I have been accepted to review applications for funding for research through the Department of Defense, and have been directed to the patient navigation institute where I was awarded a full scholarship to train to be an oncology patient navigator, None of this would've been possible without the guidance that LUNGevity provides, There is NO better nonprofit organization out there!!!
I was diagnosed stage four in 2009. I came through some very harsh treatments and made it. I have been cancer free for almost four years. During the first part of treatment and beyond, it was frustrating to have no support in our little town. I went through all the usual emotional issues and felt alone. I bumped into Lungevity by accident in a magazine ad. I looked it up online and found a great resource for support. I made many online friends who knew what I was going through and gladly accepted me. I have been to two of the Hope Summit gatherings in Wash. DC. I have learned so much from this wonderful group and feel like part of a big national family and beyond. I am aware of their tremendous fundraising efforts and all they do to help research. They work so hard and they know so many of us on a personal level too. They have made a huge impact during my recovery and continue on our behalf as patients, caregivers, survivors and families.
Lungevity extends a warm welcome to everyone who is touched in some way by lung cancer.It is an organisation that is determined to fight the scourge of lung cancer on many different levels,investing $millions supporting lung cancer projects right down to supporting individual survivors,families and carers.Their interests extend beyond North America,reaching out worldwide,even to such places as Bonnie Scotland,which is where I live,almost five years ago,I was diagnosed with lung cancer,it was through searching the internet for some information on lung cancer,I discovered LUNGevity, reading through their website engaged me enough to want to become a member.I was accepted into a new family friends who are made up of survivors,carers and family members.It has been my priviledge to visit the USA on two occassions and meet with,many LUNGevity members and staff I had only contact with prior online.It is my intention to make future visits to the USA,to maintain and strengthen my links with LUNGevity.
I was dxd with lung cancer in Oct 2008,a death sentence I believed,my mind was in turmoil,thought of losing my wife and daughter forever was just so difficult to bear.Family and friends helped me tremendously from the start and through my chemo and surgery.On the successful course of treatments,I still was in need of the emotional support that my family and friends provided previous,but my cancer situation was wearing a bit thin on their patience with me,as one of my friends put it "Eric you have had all your treatments,the cancer is now gone for good,now forget it and get on with your life".My cancer issues were upsetting them,and I couldnt really blame them for wanting the subject dropped. Surfing the net one day,looking for some good news stories regarding lung cancer,I stumbled onto a site called LUNGevity,I had found something very special,a new family of friends just waiting for me to join them to share friendship,their knowledge and experiences with lung cancer,to make me realise I would never be alone again having to deal with my problems with lung cancer.I can testify that LUNGevity has been and is my saving grace.
Review from Guidestar
A first class organizatin. Great staff, great resources, and there for you whenever you need them. Thanks for everything you do LUNGevity!
I went to the dfw walk and it was really well put together and there were like 25 survivors and it was so moving to my family. They really care about what they are doing.
The event every year is something my whole family looks forward to. LUNGevity gives them a way to honor our loved one and raise funds for research at the same time. Thank you LUNGevity. We are working to CURE LUNG CANCER!
I met LUNGevity when I was first diagnosed with lung cancer. I was diagnosed at 24 years old so I felt pretty alone, but LUNGevity changed that. I was instantly connected with people who knew exactly what I was going through, and it was wonderful to not feel alone anymore! Not only are the staff personable, respectful, and caring, but they all have been impacted by lung cancer in some way. Every single person affiliated with LUNGevity knows how hurtful lung cancer is, and we all want to stop it. LUNGevity Foundation is the best charity I have ever come across, because they are dedicated to not only finding a cure for this disease but also to emotionally help those impacted whether patient, family member, or friend. I would not be where I am without LUNGevity.