My introduction to LCA came through my mentor, Hilary. She was (is!) guiding me in starting a lung cancer screening program in my hospital. From the beginning, Hilary told me the success of her program wouldn't have happened without the support of LCA.
The more time I put into developing my program the more I have come to appreciate the varied resources of LCA. Every time I go to the website to find one thing, I find two more!
There are free resources for patients, both paper and online. So nice not to have to reinvent the wheel.
The annual conference was an amazing opportunity to learn and to network. I look forward to attending next year with even more questions.
Lung Cancer Alliance is an excellent organization that offers the most up to date information on lung cancer, current resources for patients and their families, and one may search for clinical trials. They are a true advocate in the political arena for those who are living the lung cancer diagnosis and for those who help screen and treat patients.
I was a Lung Health Navigator hired to start a lung program early 2017. I reached out to LCA last year for assistance. Angela Criswell, came to our organization and presented to the Oncology Collaborative team and was very instrumental in promoting Lung Cancer Screening and the importance behind their organization. With her help, we were able to start our program and have screened more than 400 patients in one year and identified 3 Stage I lung cancers exceeding the national average 1/320. Not to mention, they offer a lung screening conference for a way to learn and network with other organizations across the country. I attend 2/3 and could not have been as successful as we are today without the organizations support.
In Sept 2012 we were just starting our lung cancer screening program. Without the guidance and support of the Lung Cancer Alliance, we would not be where we are today....one of the largest lung cancer screening programs in the nation. The Lung Cancer Alliance has been a God-send to our program, our team, and our patients. They have helped us network with other facilities as well as local and national entities to bring an awareness of lung cancer to the forefront and best practices for detection and treatment. We are great at what we do, in part, due to the Lung Cancer Alliance. I cannot think of a nonprofit more deserving of recognition as we continue to save lives through early detection. They have my highest admiration and respect.
Located in the heart of Kentucky, KYOne Health is one of the largest lung cancer screening programs in the nation. While much is due to our attention to detail and compassion for the patient, we’ve also had to keep up with the many twists and turns of that government body responsible for the many complexities associated with CT lung screening.
Without the continuous and intense support of the Lung Cancer Alliance, not only would we not be scheduling as many as effectively and efficiently (over 1500 so far this year), I would venture to say we may not be screening at all. The Lung Cancer Alliance is, in my opinion, one of the greatest NFP’s with whom I have ever worked!
Lung Cancer Alliance was the first voice exclusively dedicated to lung cancer for patients AND providers. They collaboratively provide a voice of unity, compassion, inclusiveness, and encouragement in a disease unfairly stigmatized. They never leave anyone alone in the fight against lung cancer, whether they are a newly diagnosed patient or a provider fighting to improve medical care in the prevention, early detection and treatment of lung cancer.
As a lung cancer screening nurse navigator, Lung Cancer Alliance provided support throughout the difficult journey in the development of responsible screening programs and insurance reimbursement. The successes that I have had in screening would not have been possible without the support that I have received from the entire LCA team. If you are a provider whom wants to start up a program, you will be successful if you connect with LCA.
Thank you, Lung Cancer Alliance, for everything you have done for all of us (patients, non-medical caregivers, nurses, physicians, researchers, community grassroots organizers) in restoring hope in the fight to end lung cancer. No one can fight lung cancer alone. By uniting providers, patients, families, and nurses, LCA provide us with the strength and support to continue to fight through our most difficult challenges.
By advocating for patients with lung cancer to CMS, LCA was key in pushing forward coverage for low dose CT scan screening for lung cancer. They are a fantastic resource for providers, lung cancer screenign programs and patients a like providing an easy to navigate webpage and printed resources to help explain who is eligible for lung cancer screening, how to manage a newly discovered lung nodules, what options are available for lung cancer treatment and where a patient can find high quality treatment close to them. I an a thoracic surgeon and use Lung Cancer Alliance resources frequently, especially their patient information booklet.
LCA has been of a great help to me and my organization as we continue to navigate the waters of Lung Cancer Screening. The rules and processes for participating in a Lung Cancer Screening program have been a bit of a challenge as they have changed dramatically since we first began our program in 2011. LCA has held meetings in Washington DC which have been of enormous help to me personally. Topical speakers and programs which benefit me and my program directly. I look forward to this annual conference. LCA is easily reachable by phone and or email and always respond quickly to questions. LCA has inside track to experts within the American College of Radiology and the insurance industry as well as others that provide much needed direction to those running programs. It has been a great decision to join forces with LCA
Lung Cancer Alliance (LCA) is a wonderful organization! I am a Thoracic Nurse Navigator, and feel fortunate to have this nationally recognized resource for my patients, families, and professionals.
I have never encountered such a passionate and dedicate group of advocates as I have experienced in my interactions with the staff and volunteers within the Lung Cancer Alliance. This group engages professionals and community members at so many levels and different angles to generate support for individuals at risk for lung cancer as well as those who have been diagnosed. I highly value my connection with LCA, and I will continue to extend my time and financial resources to support the work they do.
The Lung Cancer Alliance is an amazing organization that helps both lung cancer patients and institutions. As an LCA Screening Center of Excellence, the Maimonides Medical Center Lung Cancer Screening Program has received an enormous amount of guidance, expertise and support from this amazing organization. With their leadership, we were able to get insurance payments for life saving lung cancer screenings.
As an oncology nurse I find the Lung Cancer Alliance priceless. The information they share not only with the healthcare community, but the general population is so comprehensive and evidenced-based, that we can rely on them for our information. Since the USPTF approved lung cancer screening in 2015, the Lung Cancer Alliance has helped healthcare organizations to wade through the ruling and the payer issues, to get lung cancer screening out to the public in an efficient and timely manner. I find the Lung Cancer Alliance a valuable resource. Gean Brown MSN, RN, OCN
AS A LUNG CANCER SURVIVOR I AM VERY DEDICATED TO THIS AWESOME ORGANIZATION. I TOOK ADVANTAGE OF THE PHONE BUDDY PROGRAM AND I AM A VOLUNTEER IN THIS WORTHY PROGRAM. THE BREATH OF HOPE WALK IN SAN DIEGO, CA IS AN AWESOME EVENT SPONSORED BY LUNG CANCER ALLIANCE TO RAISE ADVOCACY FOR THIS POORLY REPRESENTED DISEASE. THIS ORGANIZATION IS BABLY NEEDED AND DOING SO MUCH TO HELP THE LUNG CANCER CAUSE. SINCERELY, DONNA ENGELBERT
An amazing organization working through grassroots campaigns to make legislative changes that will impact this field for generations to come.
As a senior physician and surgeon who has spent most of his adult life treating patients with lung cancer, I greatly appreciate the wonderful work done by Lung Cancer Alliance (LCA). Many advocacy groups are run by kind, caring individuals who are well-meaning but ineffective in fostering positive change in treatment of disease. This is most definitely NOT true of LCA. The organization is kind and compassionate, but also has a very clear understaning of lung cancer, why current management is insufficient and what needs to be done to safe lives and alleviate suffering. Armed with this knowledge, they effectively, forcefully and fearlessly plan, inform and advocate social, plitical and public health policy change to prevent the disease and foster early detection at a stage where curative treatment is available.
Our lung cancer support group found LCA on the web. We wanted to be part of something, to put our site on the map, so we did the "Shine the Light Vigil". Soon after, we were invited to Washington DC for their 4th Annual Conference. Little did we know that we would be part of a movement to promote "The Lung Cancer Mortality Reduction Act". LCA has given us hope that something will be done to increase awareness and decrease mortality rates for lung cancer. We are thankful for all of the people that work for LCA, for giving us the inspiration and knowledge we need to keep fighting for better treatment plans and funding for research, for early detection. Lung cancer should not be the leading cause of cancer deaths.
Review from Guidestar