In Sept 2012 we were just starting our lung cancer screening program. Without the guidance and support of the Lung Cancer Alliance, we would not be where we are today....one of the largest lung cancer screening programs in the nation. The Lung Cancer Alliance has been a God-send to our program, our team, and our patients. They have helped us network with other facilities as well as local and national entities to bring an awareness of lung cancer to the forefront and best practices for detection and treatment. We are great at what we do, in part, due to the Lung Cancer Alliance. I cannot think of a nonprofit more deserving of recognition as we continue to save lives through early detection. They have my highest admiration and respect.
Located in the heart of Kentucky, KYOne Health is one of the largest lung cancer screening programs in the nation. While much is due to our attention to detail and compassion for the patient, we’ve also had to keep up with the many twists and turns of that government body responsible for the many complexities associated with CT lung screening.
Without the continuous and intense support of the Lung Cancer Alliance, not only would we not be scheduling as many as effectively and efficiently (over 1500 so far this year), I would venture to say we may not be screening at all. The Lung Cancer Alliance is, in my opinion, one of the greatest NFP’s with whom I have ever worked!
Lung Cancer Alliance is a tremendous organization for Lung Cancer patients as well as advocates and caretakers.
They work hard all year in providing superb resources for everyone affected by this disease.
They also do a tremendous job in working with Federal legislature in raising awareness as well as advocating for increased funding for research.
I have always found the staff to be knowledgeable, caring and very passionate about working with the Lung Cancer community.
I am a for year lung cancer survivor and I absolutely love working with Lung Cancer Alliance! I especially enjoy partnering with them on the hill to spread awareness and ask for needed funds for lung cancer research. I find their mission is the same as mine when fighting this dreadful disease.
My name is Stevie m I was diagnosed 4/15 lung cancer I went into this not knowing what cancer is, I was so scared I only heard about it,I never knew anyone who had it,as months went by and I was loosing faith in medicine and life, my wife took notice, and had to get help asap, she made 1 phone call to LCA, and spoke to Tara and she put my wife at ease, and within 30 min I received a phone call from Tara at lung cancer alliance, and my whole life turned around, I was alive and living again, everything she said came true, and she put me in touch with 2 amazing people who survived cancer, and they walked me the rest of the way, ps doctors said il be around for a long time 'thank god, and thanks lung cancer alliance
Every interaction I've ever had with the Lung Cancer Alliance has been an exceptional one. The staff is very knowledgeable, friendly, professional, and timely. They live up to their mission and do such important work. I cannot express how great an organization they are!
I have been involved with the Lung Cancer Alliance for over 8 years. I am a 16 year survivor of stage 3 non small cell cancer. I have found help with my own issues involving treatment and survivorship. Over the years. Have volunteered to be a phone buddy, moderator of the lung Cancer Alliance support site and just to carry the torch for this organization.
I am a 13 year lung cancer survivor who has been involved with the LCA for over 7 years. First I was given support by the many caring individuals that make up this organization. I have since giving back to other lung cancer survivors through this organization. I also have seen them push for legislative measures to support the research funding for this much maligned disease.
I have received emotional and social support from the Lung Cancer Alliance since 2004. Also, I have volunteered as a phone counselor, community educator, survivor speaker, and fundraiser for them since 2005. The Lung Cancer Alliance is the voice of lung cancer survivors-fighting stigma, advocating for early testing and changing public policy, etc. I can't say enough about how grateful I am that they exist and how vital they are to ongoing research, treatment, prevention, and advocacy for lung cancer patients and their families.
When I was diagnosed with Stage 2 non small cell lung cancer in 2004, I discovered the Lung Cancer Alliance. I was happy to find an advocacy organization that supported lung cancer survivors and their families, especially since the American Cancer Society was still stigmatizing those diagnosed with lung cancer and doing nothing to assist them. As each year passed, I realized that I had a life to live and have volunteered with the Lung Cancer Alliance to be a Phone Buddy, speaker at Shine A Light in Northern California, and Advocacy Chair in the first Lung Love Run/Walk In Berkeley CA. The Lung Cancer Alliance gets my vote every time because of their tireless efforts on a national level on behalf of survivors, their friends and families, and those at high risk. I'm an example of long-term survival due to early detection and applaud the Lung Cancer Alliance for its valiant work to save lives and increase the survival rate of this deadly disease.
Lung Cancer Alliance 10/01/2014
Thank you for all that you do! With your ongoing efforts and hard work, together we will fight lung cancer! Keep up the fight.
Our daughter was diagnosed with "stage 3a non-small-cell" lung cancer at the age of thirty five. A mother of three, she was faced with no hope for survival beyond an unlikely one or two years and that would be even with chemo treatments and close doctor care.
Introduce a brilliant young surgeon who wanted to try to save her life by performing a very difficult, very risky surgery that would involve removing 2/3 of her right lung and whatever else that might already have been touch by the cancer. She considered the quality of life but knew she did not want to leave her kids motherless and wanted to see them grow as any loving, devoted mother would. She opted to risk the surgery and the brilliant young surgeon pulled it off flawlessly.
Get this!!! That particular surgery was seven years ago!!! Although our daughter is still on chemo pills, she has seen two of her kids start college with the third in high school. She continues to be very active, going to sporting events of the kids and other activities such as shopping, pursuing a hobby and living each day to the fullest to the best of her ability.
Early on we became aware of Lung Cancer Alliance and have been to "Shine a Light" events where our daughter spoke and her sisters are advocates and speak also. One sister (and nephew) have been to Washington advocating with LCA. We've had the opportunity to help place flags on our town's Court House Square, which our local LCA chapter arranged. We intend to do this again in November. Shine a light events help to increase awareness about Lung Cancer and the terrible number of people afflicted by it and affected it. These events enable those affected by lung cancer to come together and share their stories, meet others affected and support one another.
I hail Lung Cancer Alliance for their relentless efforts to bring about awareness relevant to lung cancer and for their tremendous work in getting our elected officials involved in getting federal funding for lung cancer research, which is making great strides. Before LCA's push there was very little being done for the advancement in research for this disease (incidentally, lung cancer kills more victims each year than the next four leading killing cancers combined). We have learned so much by reading LCA materials and getting involved and are grateful for their commitment.
Every day we our thankful that our daughter is still with us and also thank LCA for their great work for this cause. We, as the victim's parents, consider ourselves "Clients" rather than "General Members of the Public" because LCA has helped us so much by being there for us.
In 2000 and 2003, though a NON SMOKER my entire life, I was stricken with lung cancer. My surgeon Dr. Christina Williamson had heard about Lung Cancer Alliance when they were in one room in Seattle, Washington trying to increase awareness about the number one cancer killer. They helped me immediately and made me feel I was not alone. Since then, LCA has moved to Washington, DC and done remarkable things for victims of lung cancer as well as families. I am so proud of what they are doing coast to coast and outside of the USA. They handle the disease by contributing to research, reaching out, advocating and leading the way. They are the best. Gail Matthews
When my daughter died from lung cancer, then I got it I was so devastated I didn't know where to turn Someone recommended Lung Cancer Alliance, and they have been wonderful! I have been to Capitol to fight for additional funding for research, and will continue to do so. The information, and support they give is nothing short of excellent!
When my daughter died from lung cancer, then I was diganoised with lung cancer, I needed information! I turned to Lung Cancer Alliance. They not only sent me lots of information, but put me in touch with a telephone buddy, who called me and gave me much encouragement. I very much appreciated the help, information, and caring I got from them. I now am a telephone buddy, and I want to give back to all those who helped me through the diffucult times I had facing this unpleasent disease.
As a newly diagnosed lung cancer patient, I was overwhelmed with information. And since I was diagnosed with stage IV NSCLC, what I was reading was dismal and discouraging. Connecting with others that are surviving and joining in the fight to end the stigmas that lung cancer is only a smokers disease have helped me become hopeful about my future and survival.
When I lost my husband and his brother to lung cancer,I was devastated. I needed to process my feelings and learn more about this horrible disease. Both of these men stopped smoking 20 or more years before they were diagnosed;however,it was the lung cancer alliance that provided me with the facts that you never hear in the media.People look down on lung cancer patients because they smoked, regardless of the circumstances,but LCA through their diligence gets the facts out and takes the shame away. I mourn these precious souls everyday;but I am grateful to the LCA for being there for me and allowing me to hold my head up high and know that they are doing more than any other organization has ever done to see that research is done and everyone has a chance to know the truth about this dreaded disease.
When my mom was diagnosed with non-small cell lung cancer, I searched the web to find any information about it that I could. My resources were limited. After approaching Lunc Cancer Allinace for information, they sent me packets and booklets and books to read. To me it was comforting to know there were daughters, sons, husbands, wifes, sisters and brothers like me...facing what I was facing. The informatio they sent me was not good news. The average life span of a patient fighting non-small cell lung cancer is 13 months. My mom lived 13 months after diagnosis. Lung cancer must be put in the forfront of the mind. My mom never smoked and because of the stigmatism associated with lung cancer, her as well as countless other lives are lost. And just because someone smoked doesn't mean they deserve a death sentance. The funds to aid in survival need to increase and patients need to be given a fair fight! Heather Delaney
The Lung Cancer Alliance keeps me informed and connected to the problems, issues, and solutions related to lung cancer. It is an invaluable resource to me, a lung cancer survivor (since 1999.) The proactive measures taken by the LCA provide me with an advocate, an advocate that speaks for me to the medical community, the legislative community, the media community. I could not do all this by myself. The LCA is a voice for the isolated cancer victim and gives that victim a little hope knowing that someone out there cares and is fighting for a cure! Thanks to the LCA!!