The LCA is the single organization I know that is always rolling up its sleeves, as it were, to pitch against lung cancer. The staff is tireless and focused, and anyone who has been involved with the LCA, as I have since my wife died four years ago, can already see the progress in awareness, screening, and reduced stigmatization of lung cancer victims. Needless to say, there is a long way to go until lung cancer is given the national attention it deserves, and the task seems like the labor of Sisyphus, but when the day arrives that it is, it will be the LCA that will finally push that rock to the top of the hill--and it won't roll back down.
Lung Cancer Alliance 09/29/2014
Thank you for the kind words! We are doing everything in our power to fight lung cancer for all those touched by the disease. We appreciate your support.
I lost my sister to lung cancer on Jan 4, 2013, four days after she was diagnosed. My world was turned upside down and I had friends and family asking who they should make donations to. I found Lung Cancer Alliance listed as one of the top ten cancer organizations. I had no idea how close to my heart they would become. They are champions of their cause and I am honored to be a part of it. Their team is made up of caring, compassionate, determined people who are trying to make changes that will help those with lung cancer and those at risk for lung cancer. I recently attended the LCA Summit in Washington, DC with my daughter and it was one of the best experiences of my life. Thank you all; the team at LCA, the surivors and those who have lost loved ones. I believe we made a difference and isn't that what we are here for?
Lung Cancer Alliance 09/29/2014
Thank you! It was wonderful having you and your daughter at the Summit in DC. We truly did make a difference for our community. Keep up the fight!
I am a Stage 4 Lung Cancer survivor who has just celebrated the 6 year milestone. Although treatment is ongoing and there are always surprises and new progression, I have a good quality of life. It is important for me to utilize this time and add purpose and leave a legacy. Through LCA I volunteer as a Phone Buddy to help others.
I post in chat rooms to share experiences with those who may be just starting a clinical trial that I have been on for two years. I use my coaching skills to help others locally and online. LCA is supportive and involved. Their efforts to help us with our first Shine a LIght on Lung Cancer in November is valuable.
Their recognition of outstanding Support Groups raises the awareness of patient needs and their work on Capital Hill is critical to research funding that contribute to our survivorship.
Being a survivor myself, I know how important it is to talk to people who have already traveled the road that many are traveling now. I love being a "Phone Buddy" and hope that I give some encouragement to those I talk too. I don't fool myself that everyone will have the same outcome I did (8 years survivor and cancer free) but if they can feel good about themselves and have a glimmer of hope that will make their lives better while fighting the fight of their life, that is what I want to do. Everyone fights battles of all kinds in their lives but if you can share yours with like minded people you actually get more reward out of doing it than the person you are talking too. I hope to continue with The Lung Cancer Alliance as long as I can.
I am a Lung Cancer Survivor and have volunteered with LCA for about 7 or 8 yrs. I am a Phone Buddy and am very pleased with the role. I spend an hour or more with a patient, sometime more. It is a give and take conversation. I enjoy talking with patients and am so glad that I am able to help others. I want to personally thank LCA for making this program possible.
I volunteered to be a phone buddy and spent over an hour in a telephone interview. As a three-time lung cancer survivor including surgery, chemo and CyberKnife radiation, I was assured I would be in demand
because there was only one other phone buddy who had had CyberKnife treatmentat that time.
Months went by without contact. I was called a second time for another interview and again never heard a word.
I am now a fourth-time survivor (survovor to me meaning at least one clean PET scan between treatments.
Why the assurance and time investment if I'm not going to be used ?
I attended a conference last year with Lung Cancer Alliance and found it to be one of the best organized, most cost effective organization I have seen. The conference stayed on topic, accomplished its mission and created a wonderful and productive experience for all who attended. The organization raises funds for what it needs and has a great deal of transparency. I have known quite a few non-profits and this one ranks very, very high on my list. The leadership, both lay and professional, is excellent!
I am a 10 year lung cancer survivor. Only 15% of us survive 5 years or more. When my best friend fell off her patio and was x-rayed at the emergency room, she was diagnosed with Stage 4 lung cancer. Six months later I had an occasional cough after having had a bad cold. After much nagging from my husband to go to the doctor (I accused him of overreacting because of my friend), I want to the doctor. I was diagnosed with Stage 3A lung cancer. We were both never smokers.
I was lucky. I was able to have surgery (the gold standard of care), my friend was not. She died 2 years after her diagnosis after the cancer had spread to her brain and lumbar.
When people learn I am a lung cancer survivor, they ask if I smoked. That question implies that a person who smokes deserves to die. No one deserves to die. The Lung Cancer Alliance actively works to erase the stigma of lung cancer, provide patient support services, and advocate for public health dollars for research.
The Lung Cancer Alliance is a major force in advocating for the Recalcitrant Cancer Act which charges NCI to develop a coordinated, comprehensive plan to provide research for cancers which have a low survival rate and specifically targets lung cancer.
I am a volunteer with the Lung Cancer Alliance to advocate for its goals.
The Lung Cancer Alliance has motivated me to help create public awareness about lung cancer. There is a lot of stigma associated with the disease. LCA has given me the tools to help reverse it. I have gained the confidence to appear on radio and television and write letters to the editor. Little by little, I think I am making a difference.
As a 2 year Lung Cancer survior Lung Cancer Alliance has given me hope and motivated me to fight for awareness from the stigma that goes with having lung cancer. Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing support and advocacy for people living with or at risk for the disease. They have a great mission: ending injustice and saving lives through an alliance of advocacy, education and support. There vision is to reduce lung cancer mortality by at least 50% by 2020. I come from a family history of Lung Cancer and those words were music in my ears. I want my children and grandchildern to have a better chance and clear understanding of Lung Cancer and real change needs to come. With Lung Cancer Alliance I know in my heart they are at a tipping point and making a difference everyday.
I became a phone buddy for the Lung Cancer Alliance to help others discover the gift of early detection. Having just crossed the threshold of 5 years survivorship, I am testament that detection at Stage 1 is life affirming. The staff at LCA works tirelessly to have our voices heard and bring needed attention to the devastation of lung cancer on the lives of millions annually. It is an awesome organization.