I am a 14 year lung cancer survivor and proud board member of Lung Cancer Alliance. When I was first diagnosed in 2004, Lung Cancer Alliance was my first phone call after a "google" search. From that first connection, till now, Lung Cancer Alliance has provided service, support and encouragement to me and thousands of other people touched by this terrible disease.
I have been involved with Lung Cancer Alliance for five years since I was diagnosed with lung cancer at the age of 44. I can not imagine my health journey without this nonprofit organization. The resources, employees and links have been instrumental in my care, support, awareness and advocacy. Lung Cancer Alliance is single handedly leading the fight for lung cancer patients and families to the media, government, research and medical community.
I became a phone buddy for the Lung Cancer Alliance to help others discover the gift of early detection. Having just crossed the threshold of 5 years survivorship, I am testament that detection at Stage 1 is life affirming. The staff at LCA works tirelessly to have our voices heard and bring needed attention to the devastation of lung cancer on the lives of millions annually. It is an awesome organization.
As a lung cancer survivor and a volunteer, I am very grateful for the advocacy that Lung Cancer Alliance provides to so many. The integrity and credibility of the organization is second to none. I am most appreciative of LCA’s effective work in the area of public policy and care for and assistance for the patients and families with lung cancer.
Lung Cancer Alliance works deligently to bring people together to promote real change. They are not about just throwing money at a problem, they are about changing policy to make a difference immediately.
When I lost my mother to lung cancer, I was angry; angry that there was nothing I could do to help her or save her. A couple of years after she passed, a friend of one of my sisters saw a sign or posting about LCA's event "Shine a Light on Lung Cancer." Well, since my sisters and I never really heard anybody speak of lung cancer, we thought we should go to check it out. Well, am I glad we did! We were approached by Diane Daniels Legg, a co-chair of the New England Chapter of LCA, also fighting her own battle with lung cancer. She was so heartwarming and kind, and she really took an interest in us because we were so young when we lost our mom. We continued to attend the "Shine A Light on Lung Cancer" vigils, and in January of 2011, my sister Kristina and I joined LCA in advocating on Capitol Hill. That was one of the most rewarding and enlightening experiences I've had, and I have LCA to thank for that. Ever since that first Vigil, my sisters and I were hooked on this organization. Everybody who attends is so passionate and there for the same thing, to END LUNG CANCER! I am so lucky to be able to be apart of LCA, and I only wish that we knew of them while my mom was sick. For some odd/crazy reason, I feel like she might still be alive had we known about them then.
The Lung Cancer Alliance helped me turn a negative (contracting lung cancer) into a positive (helping those on the same trail). Lung Cancer changed my life. The LCA gave me an opportunity to use that change to help others while at the same time helping myself.
The LCA is one of the precious few sources of support for those afflicted or impacted by the deadliest of all cancers where, shamefully, almost no progress has been made in survival rates for forty years. My late wife (incidentally a non-smoker and athlete, like many who lose their lives to lung cancer annually) bravely fought the disease for nearly six years. In her final years, she was a passionate volunteer for the LCA - their staff and fellow volunteers made such a difference to her - she cherished the companionship, empathy, and shared purpose until the end.
The Lung Cancer Alliance stands alone as THE ADVOCATE for all patients and family members who have been touched by lung cancer. Before I found the Lung Cancer Alliance I was here in Springfield, Missouri casting about on my own...there were no support groups, no ribbons to wear, no survivors to cheer me on....that's because the survival rate for lung cancer is so low (15 to 17%) and very few make it to the 5 year mark. When I connected with the LCA, I instantly found a group who understood what I was going through...they reached out to me in many ways and continue to do so. Through the LCA I have been able to tell my story aa a two-time survivor of lung cancer so perhaps others won't feel so isolated. I know also that the Lung Cancer Alliance, through their national outreach, will speak for us and continue to fight for a cure to this devastating disease.!
My mom passed away due to lung cancer in 2002. It will be 10 years this September. At the time of her diagnosis she had been a 21 year non smoker. My biggest frustration was the futility of my Mom's passing at such a young age when she was so vibrant and had so much more to give to the world. She was also completely healthy otherwise. In 2009 due to a recruiting e-mail at work I found out about Lung Cancer Alliance. I was immediately impressed with the passion and commitment of the organization and in time I became even more impressed with what this organization has accomplished. I am proud to be a part of it.
My father and three friends, all of whom were never smokers died of lung cancer. I also lost three former smoker friends to the disease. I am a never smoker and was lucky to be diagnosed with Stage 3A lung cancer. I am an eight year survivor!I I want to help make a difference and save lives. That is why I am volunteering with the Lung Cancer Alliance.
Review from CharityNavigator
I am a 42 year old woman living with Stage IV lung cancer. The Lung Cancer Alliance is a strong and vital organization in the fight against this historically neglected disease. They keep their eye on the ball and fight for the dollar...they look to level the playing field for federal funding as compared to many other diseases and medical conditions that have benefitted from far greater funding even though dramatically less fatal. They provide very personalized, high quality patient support programs. And the staff of the organization are bright, committed, passionate individuals.
Review from CharityNavigator
I feel so fortunate to have found Lung Cancer Alliance. My Dad passed away after an 18-month battle with stage 4 non small cell lung cancer on May 29, 2009 at the age of 66. After witnessing my Dad's brave battle with this horrible disease and his devastating physical deterioration, I felt compelled to do something to continue his fight and make sure others didn't have to suffer as he did. In googling lung cancer organizations 5 months after my Dad passed away, I found that there weren't many organizations related to lung cancer. Around November 2009, I found Lung Cancer Alliance, the only national non-profit providing information, support, and advocacy for people living with lung cancer or at risk for the disease. I wish that I had known about Lung Cancer Alliance when my Dad was undergoing treatment. What an invaluable resource this would have been! When I found them in November 2009, I was told they were forming Team Lung Love for their inaugural run in Providence in May 2010. I'd never run a half-marathon before and like the Nike slogan, "Just do it"--I did. At that moment, I started a partnership with Lung Cancer Alliance that I know will continue throughout my life. Team Lung Love was one of the best experiences of my life in which I raised money and awareness for lung cancer. Team Lung Love has made me feel that anything is possible with hard work and a great team behind you. But that run was just the beginning. I could never have guessed all of the places that decision to run as part of Team Lung Love would bring me. I I continued to run as part of Team Lung Love. I was asked to be NYC Team Captain for Team Lung Philly and happily accepted, helping recruit members for the team. I also decided to organize a Shine A Light On Lung Cancer Vigil here in NYC as part of their annual Shine A Light program during Lung Cancer Awareness Month.
I also started speaking at local political and civic groups about lung cancer to educate people on the staggering facts about this underfunded disease that is the # 1 cancer killer in this country. Lung Cancer Alliance gave me the opportunity to make a difference. Through Lung Cancer Alliance, I found my voice as an advocate. Recently at the invitation of Lung Cancer Alliance, I had the opportunity to tell my Dad's story and advocate alongside fellow advocates on behalf of the Lung Cancer Mortality Reduction Act on Capitol Hill as part of their Capitol Forum. My work with their continued support continues at home to gain the support of my Congressman on this legislation.
Lung Cancer Alliance is an amazing organization that helps bring together people of varying backgrounds who share their connection to lung cancer whether through the loss of a friend or loved one or the fact that they are a survivor themselves. I have met an amazing group of people through this organization--people I am proud to call friends. I know everyone at Lung Cancer Alliance personally. They are friends on a mission working tirelessly to end the stigma associated with lung cancer. And so my journey with Lung Cancer Alliance continues. Next stop--running my next half-marathon as part of Team Lung Love Providence.
I discovered LCA when someone who was like a Mother to me was diagnosed with Stage 4 lung cancer. Lung Cancer Alliance was there to provide information and support. Though Merrillyn Stevens lost her battle with the disease only 10 months after her diagnosis, Lung Cancer Alliance carries on the fight for all. I have personally met and spoken with several members of their staff, and many of their advocates. This is a top-notch organization completely dedicated to reversing decades of stigma and supporting those currently struggling with lung cancer. I respect members of the staff so much for what they've accomplished in such a short amount of time with the limited resources they have. They are so knowledgeable and professional, and sooooo caring. With LCA on our side, I know that someday we will win the fight against this deadly disease.
Review from Guidestar
Words cannot describe how i feel about the LCA! I felt impowered the minute i met all who work for the LCA! Being an advocate, here in California, has not only been rewarding but has been making a difference.
My girlfriend Sheila died from lung cancer. We were friends for over 45 yrs! Watching her go through this devastating cancer was ,need i say, most difficult. I was blessed to go to CAPITOL HILL and help with the legislation process to get lung cancer noticed, to give information and tell our stories. I am mad as hell that we are he most underfunded,ignored and stigmatized cancer! Along with the LCA and here in SAN DIEGO with
BREATH OF HOPE, we all, the volunteers AND the survivors will fight to be on the same playing field. For us to have the goal of conquering this cancer, to rid this cancer from our human experience! LCA is amazing! They are strong and I am proud to belong to this loving,caring, group of people! Watch out!
Review from Guidestar
When my husband received the shocking diagnosis of lung cancer (he didn't have any easily identifiable risk factors at the time), we turned to the well-know cancer/lung organizations to volunteer for Lung Cancer Awareness Month. Their response? Nothing, really. They only focus on smoking (my husband was a lifelong adamant non-smoker). The one organization which did respond immediately - Lung Cancer Alliance. LCA not only helped us organize a rally in a matter of days, but they continued to provide direction, training and support to further our advocacy withiin the state. Eventually I became volunteer C-Chair for LCA-CA. In all my experiences with LCA, I have seen their determined persistence and unrelenting efforts in the face of overwhelming stigma and apathy toward the disease. They produce an immense amount of work with an unprecedented low number of paid staff. This was made abundently clear to me when I would note the times on their return calls/emails during the late night or very early mornings. I have seen an immense change in the level of public discussion and a new interest in the disease (rather than simply the issue of smoking) on the part of established organizations over the six years since my husband's diagnosis. This is due directly to the efforts of Lung Cancer Alliance. I whole heartedly recommend this organization. With a significant increase in resources and support, we CAN achieve the LCA goal of NO MORE LUNG CANCER!
I have been a lung cancer survivor for over 11 years. I became active with LCA shortly after my recovery and have remained an active advocate for this organization. During my journey with lung cancer I could find little information on lung cancer, treatment options, and support groups. I joined LCA because it was the only organization that was dedicated to supporting, education, and advocating for lung cancer patients and those at risk for the disease. This organization gave me the skills to advocate and lobby for lung cance patients here in Maine. Through their support I have been successful in getting a bill that I wrote passed to help raise awareness. I have also been very successful in meeting with our Govenor in declaring Lung Cancer Awareness Month. I have been successufl in holding public forums with the Governor and the legislative body. This is the only organization that has been active on a National level to change health care policy through legislative action. They see the challenges that need to be overcome and meet them head on. it is through their support and education that has helped me effect change in the State of maine
There are some fantastic lung cancer advocacy groups out there but this is the only one devoted to changing national policy and re-directing our tax dollars towards lung cancer research. Lung cancer kills more people than any other cancer (and twice as many women as breast cancer) but is the least funded of all of the major cancers. The Lung Cancer Alliance doesn't discriminate based on type of lung cancer, smoking history or anything else. They help people with lung cancer, period. They also have an excellent patient support program which includes a peer matching system and a fantastic online support group at www.inspire.com. I can't think of enough good things to say about this amazing organization.
Lung Cancer Alliance offers top notch and comprehensive patient support programs as well as works tirelessly for all of us affected by the disease by fighting to secure the funding from the federal government necessary to make an impact on its devastation. This is particuarly critical since so many other types of cancer are more highly prioritized by the public even though lung cancer is more deadly than any other.
I was diagnosed with Lung Cancer in Oct, 2006. As devastating as that news was, our family began researching all we could immediately. We became connected with the Relay For Life project through the American Cancer Society. This year, I was challenged to "Fight Back" at the Relay. I chose to learn as much as I could about the myths and stigma of lung cancer. Since I have never smoked, it was shocking that I experienced much of this prejudice during my diagnosis and treatment. Nurses, doctors and other health care professionals assumed I smoked. In doing all the research, I came across the Lung Cancer Alliance. They welcomed me and embraced me. They sent me an incredible amount of material, including a t shirt which read, "I never smoked and I have lung cancer", which I wore proudly at the Relay event in May. The information and educational material that they share is phenomenal. My experience with the organization has been rewarding and enlightening. I am so pleased that I found them and only hope I can give back.
I am a lucky 6 year lung cancer survivor. I was diagnosed at stage 3A. I had surgery followed by chemotherapy and radiation treatment. As a result of the radiation, two of my coronary arteries became weakened and would not allow the plaque to come through. I had dual by-pass surgery 9 months ago as a consequence. I lost my father, uncle and two friends to lung cancer. We were all never smokers. I also lost two friends who had given up smoking decades ago. When I saw a newsletter in my surgeon's office published by the Lung Cancer Alliance, I knew I had to become its advocate to help erase the stigma, elevate awareness, and change public health policy. I am now working with the Lung Cancer Alliance as a "full time" volunteer to accomplish our goals. I feel very committed and am thankful to the Lung Cancer Alliance for the support, guidance and energy that has been provided to help realize our efforts.