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Lung Cancer Alliance

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Nonprofit Overview

Causes: Cancer, Civil Rights, Health, Human Services, Lung Diseases, Personal Social Services

Mission: Saving lives and advancing research by empowering those living with and at risk for lung cancer.

Results: Over the past year, more than 12,000 personal telephone calls and email requests were managed by our professional and caring staff, delivering customized support packets to improve outcomes. We also expanded a network of 1,500 medical facility contacts nationwide who share our educational support materials to the newly diagnosed and their loved ones so that they know they are not alone and we are here to help. We launched efforts to educate the millions at high risk about their life-saving options, encouraging conversations with their doctors about early detection. To date, more than 300 medical facilities have joined our coalition to make sure that screening is done right and well at centers of excellence across the U.S. We have trained thousands of advocates to educate elected and public health officials about the disease, securing almost $90 million to date in public health dollars for research and early detection. Because we do not accept public funding, and these dollars fund research directly, we are able to leverage your support at least 10-fold. We also launched the first nationwide awareness campaign addressing the stigma of lung cancer head-on. With more than 300 million impressions to date, the campaign continues to grow over social media channels. Learn more at: www.NoOneDeservesToDie.org. These combined efforts will help meet our vision of reducing lives lost to lung cancer by half by 2020. With your continued help and support, we will achieve this realistic and attainable goal.

Target demographics: The milions living with or at risk for lung cancer

Direct beneficiaries per year: At least 12,000

Geographic areas served: Nationwide

Programs: Community& Support Services Program: Providing free, one-on-one support, information, and referrals to patients, at risk individuals and their loved ones through telephone and online support services, delivering customized education packets to make informed decisions and improve outcomes. Education Program: Conducting national awareness campaigns, including No One Deserves to Die, National Shine A Light on Lung Cancer Vigil, Team Lung Love and Give A Scan to educate the public about the facts, dispel myths, and share calls to action to eliminate stigma, increase research funding and save lives. Health Policy Program: Advocating for multiple millions in public health dollars for lung cancer research and early detection through a nationwide grassroots network of volunteer chapters, advocates and targeted policy strategies.

Community Stories

58 Stories from Volunteers, Donors & Supporters

1 Philip9

Volunteer

Rating: 5

The LCA is the single organization I know that is always rolling up its sleeves, as it were, to pitch against lung cancer. The staff is tireless and focused, and anyone who has been involved with the LCA, as I have since my wife died four years ago, can already see the progress in awareness, screening, and reduced stigmatization of lung cancer victims. Needless to say, there is a long way to go until lung cancer is given the national attention it deserves, and the task seems like the labor of Sisyphus, but when the day arrives that it is, it will be the LCA that will finally push that rock to the top of the hill--and it won't roll back down.

Comments ( 1 )

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Lung Cancer Alliance 09/29/2014

Thank you for the kind words! We are doing everything in our power to fight lung cancer for all those touched by the disease. We appreciate your support.

1

Volunteer

Rating: 5

I lost my sister to lung cancer on Jan 4, 2013, four days after she was diagnosed. My world was turned upside down and I had friends and family asking who they should make donations to. I found Lung Cancer Alliance listed as one of the top ten cancer organizations. I had no idea how close to my heart they would become. They are champions of their cause and I am honored to be a part of it. Their team is made up of caring, compassionate, determined people who are trying to make changes that will help those with lung cancer and those at risk for lung cancer. I recently attended the LCA Summit in Washington, DC with my daughter and it was one of the best experiences of my life. Thank you all; the team at LCA, the surivors and those who have lost loved ones. I believe we made a difference and isn't that what we are here for?

Comments ( 1 )

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Lung Cancer Alliance 09/29/2014

Thank you! It was wonderful having you and your daughter at the Summit in DC. We truly did make a difference for our community. Keep up the fight!

Volunteer

Rating: 5

I am a Stage 4 Lung Cancer survivor who has just celebrated the 6 year milestone. Although treatment is ongoing and there are always surprises and new progression, I have a good quality of life. It is important for me to utilize this time and add purpose and leave a legacy. Through LCA I volunteer as a Phone Buddy to help others.
I post in chat rooms to share experiences with those who may be just starting a clinical trial that I have been on for two years. I use my coaching skills to help others locally and online. LCA is supportive and involved. Their efforts to help us with our first Shine a LIght on Lung Cancer in November is valuable.
Their recognition of outstanding Support Groups raises the awareness of patient needs and their work on Capital Hill is critical to research funding that contribute to our survivorship.

Volunteer

Rating: 5

Being a survivor myself, I know how important it is to talk to people who have already traveled the road that many are traveling now. I love being a "Phone Buddy" and hope that I give some encouragement to those I talk too. I don't fool myself that everyone will have the same outcome I did (8 years survivor and cancer free) but if they can feel good about themselves and have a glimmer of hope that will make their lives better while fighting the fight of their life, that is what I want to do. Everyone fights battles of all kinds in their lives but if you can share yours with like minded people you actually get more reward out of doing it than the person you are talking too. I hope to continue with The Lung Cancer Alliance as long as I can.

Volunteer

Rating: 5

I am a Lung Cancer Survivor and have volunteered with LCA for about 7 or 8 yrs. I am a Phone Buddy and am very pleased with the role. I spend an hour or more with a patient, sometime more. It is a give and take conversation. I enjoy talking with patients and am so glad that I am able to help others. I want to personally thank LCA for making this program possible.

Volunteer

Rating: 1

I volunteered to be a phone buddy and spent over an hour in a telephone interview. As a three-time lung cancer survivor including surgery, chemo and CyberKnife radiation, I was assured I would be in demand
because there was only one other phone buddy who had had CyberKnife treatmentat that time.
Months went by without contact. I was called a second time for another interview and again never heard a word.
I am now a fourth-time survivor (survovor to me meaning at least one clean PET scan between treatments.
Why the assurance and time investment if I'm not going to be used ?
Phil
wuzzfuzz11743@verizon.net

Volunteer

Rating: 5

I attended a conference last year with Lung Cancer Alliance and found it to be one of the best organized, most cost effective organization I have seen. The conference stayed on topic, accomplished its mission and created a wonderful and productive experience for all who attended. The organization raises funds for what it needs and has a great deal of transparency. I have known quite a few non-profits and this one ranks very, very high on my list. The leadership, both lay and professional, is excellent!

Phyllis11

Volunteer

Rating: 5

I am a 10 year lung cancer survivor. Only 15% of us survive 5 years or more. When my best friend fell off her patio and was x-rayed at the emergency room, she was diagnosed with Stage 4 lung cancer. Six months later I had an occasional cough after having had a bad cold. After much nagging from my husband to go to the doctor (I accused him of overreacting because of my friend), I want to the doctor. I was diagnosed with Stage 3A lung cancer. We were both never smokers.


I was lucky. I was able to have surgery (the gold standard of care), my friend was not. She died 2 years after her diagnosis after the cancer had spread to her brain and lumbar.

When people learn I am a lung cancer survivor, they ask if I smoked. That question implies that a person who smokes deserves to die. No one deserves to die. The Lung Cancer Alliance actively works to erase the stigma of lung cancer, provide patient support services, and advocate for public health dollars for research.

The Lung Cancer Alliance is a major force in advocating for the Recalcitrant Cancer Act which charges NCI to develop a coordinated, comprehensive plan to provide research for cancers which have a low survival rate and specifically targets lung cancer.

I am a volunteer with the Lung Cancer Alliance to advocate for its goals.

Previous Stories

Volunteer

Rating: 5

The Lung Cancer Alliance has motivated me to help create public awareness about lung cancer. There is a lot of stigma associated with the disease. LCA has given me the tools to help reverse it. I have gained the confidence to appear on radio and television and write letters to the editor. Little by little, I think I am making a difference.

Dee_8

Volunteer

Rating: 5

As a 2 year Lung Cancer survior Lung Cancer Alliance has given me hope and motivated me to fight for awareness from the stigma that goes with having lung cancer. Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing support and advocacy for people living with or at risk for the disease. They have a great mission: ending injustice and saving lives through an alliance of advocacy, education and support. There vision is to reduce lung cancer mortality by at least 50% by 2020. I come from a family history of Lung Cancer and those words were music in my ears. I want my children and grandchildern to have a better chance and clear understanding of Lung Cancer and real change needs to come. With Lung Cancer Alliance I know in my heart they are at a tipping point and making a difference everyday.

Melanie18

Volunteer

Rating: 5

I became a phone buddy for the Lung Cancer Alliance to help others discover the gift of early detection. Having just crossed the threshold of 5 years survivorship, I am testament that detection at Stage 1 is life affirming. The staff at LCA works tirelessly to have our voices heard and bring needed attention to the devastation of lung cancer on the lives of millions annually. It is an awesome organization.

Michael121

Volunteer

Rating: 5

As a lung cancer survivor and a volunteer, I am very grateful for the advocacy that Lung Cancer Alliance provides to so many. The integrity and credibility of the organization is second to none. I am most appreciative of LCA’s effective work in the area of public policy and care for and assistance for the patients and families with lung cancer.

Melissa94

Volunteer

Rating: 5

Lung Cancer Alliance works deligently to bring people together to promote real change. They are not about just throwing money at a problem, they are about changing policy to make a difference immediately.

Shannon30

Volunteer

Rating: 5

When I lost my mother to lung cancer, I was angry; angry that there was nothing I could do to help her or save her. A couple of years after she passed, a friend of one of my sisters saw a sign or posting about LCA's event "Shine a Light on Lung Cancer." Well, since my sisters and I never really heard anybody speak of lung cancer, we thought we should go to check it out. Well, am I glad we did! We were approached by Diane Daniels Legg, a co-chair of the New England Chapter of LCA, also fighting her own battle with lung cancer. She was so heartwarming and kind, and she really took an interest in us because we were so young when we lost our mom. We continued to attend the "Shine A Light on Lung Cancer" vigils, and in January of 2011, my sister Kristina and I joined LCA in advocating on Capitol Hill. That was one of the most rewarding and enlightening experiences I've had, and I have LCA to thank for that. Ever since that first Vigil, my sisters and I were hooked on this organization. Everybody who attends is so passionate and there for the same thing, to END LUNG CANCER! I am so lucky to be able to be apart of LCA, and I only wish that we knew of them while my mom was sick. For some odd/crazy reason, I feel like she might still be alive had we known about them then.

1 Richard T.

Volunteer

Rating: 5

The Lung Cancer Alliance helped me turn a negative (contracting lung cancer) into a positive (helping those on the same trail). Lung Cancer changed my life. The LCA gave me an opportunity to use that change to help others while at the same time helping myself.

Volunteer

Rating: 5

The LCA is one of the precious few sources of support for those afflicted or impacted by the deadliest of all cancers where, shamefully, almost no progress has been made in survival rates for forty years. My late wife (incidentally a non-smoker and athlete, like many who lose their lives to lung cancer annually) bravely fought the disease for nearly six years. In her final years, she was a passionate volunteer for the LCA - their staff and fellow volunteers made such a difference to her - she cherished the companionship, empathy, and shared purpose until the end.

Dylan C.

Volunteer

Rating: 5

The Lung Cancer Alliance stands alone as THE ADVOCATE for all patients and family members who have been touched by lung cancer. Before I found the Lung Cancer Alliance I was here in Springfield, Missouri casting about on my own...there were no support groups, no ribbons to wear, no survivors to cheer me on....that's because the survival rate for lung cancer is so low (15 to 17%) and very few make it to the 5 year mark. When I connected with the LCA, I instantly found a group who understood what I was going through...they reached out to me in many ways and continue to do so. Through the LCA I have been able to tell my story aa a two-time survivor of lung cancer so perhaps others won't feel so isolated. I know also that the Lung Cancer Alliance, through their national outreach, will speak for us and continue to fight for a cure to this devastating disease.!

Tiffany9

Volunteer

Rating: 5

My mom passed away due to lung cancer in 2002. It will be 10 years this September. At the time of her diagnosis she had been a 21 year non smoker. My biggest frustration was the futility of my Mom's passing at such a young age when she was so vibrant and had so much more to give to the world. She was also completely healthy otherwise. In 2009 due to a recruiting e-mail at work I found out about Lung Cancer Alliance. I was immediately impressed with the passion and commitment of the organization and in time I became even more impressed with what this organization has accomplished. I am proud to be a part of it.

Volunteer

Rating: 5

My father and three friends, all of whom were never smokers died of lung cancer. I also lost three former smoker friends to the disease. I am a never smoker and was lucky to be diagnosed with Stage 3A lung cancer. I am an eight year survivor!I I want to help make a difference and save lives. That is why I am volunteering with the Lung Cancer Alliance.

Review from CharityNavigator

Volunteer

Rating: 5

I am a 42 year old woman living with Stage IV lung cancer. The Lung Cancer Alliance is a strong and vital organization in the fight against this historically neglected disease. They keep their eye on the ball and fight for the dollar...they look to level the playing field for federal funding as compared to many other diseases and medical conditions that have benefitted from far greater funding even though dramatically less fatal. They provide very personalized, high quality patient support programs. And the staff of the organization are bright, committed, passionate individuals.

Review from CharityNavigator

Volunteer

Rating: 5

I feel so fortunate to have found Lung Cancer Alliance. My Dad passed away after an 18-month battle with stage 4 non small cell lung cancer on May 29, 2009 at the age of 66. After witnessing my Dad's brave battle with this horrible disease and his devastating physical deterioration, I felt compelled to do something to continue his fight and make sure others didn't have to suffer as he did. In googling lung cancer organizations 5 months after my Dad passed away, I found that there weren't many organizations related to lung cancer. Around November 2009, I found Lung Cancer Alliance, the only national non-profit providing information, support, and advocacy for people living with lung cancer or at risk for the disease. I wish that I had known about Lung Cancer Alliance when my Dad was undergoing treatment. What an invaluable resource this would have been! When I found them in November 2009, I was told they were forming Team Lung Love for their inaugural run in Providence in May 2010. I'd never run a half-marathon before and like the Nike slogan, "Just do it"--I did. At that moment, I started a partnership with Lung Cancer Alliance that I know will continue throughout my life. Team Lung Love was one of the best experiences of my life in which I raised money and awareness for lung cancer. Team Lung Love has made me feel that anything is possible with hard work and a great team behind you. But that run was just the beginning. I could never have guessed all of the places that decision to run as part of Team Lung Love would bring me. I I continued to run as part of Team Lung Love. I was asked to be NYC Team Captain for Team Lung Philly and happily accepted, helping recruit members for the team. I also decided to organize a Shine A Light On Lung Cancer Vigil here in NYC as part of their annual Shine A Light program during Lung Cancer Awareness Month.
I also started speaking at local political and civic groups about lung cancer to educate people on the staggering facts about this underfunded disease that is the # 1 cancer killer in this country. Lung Cancer Alliance gave me the opportunity to make a difference. Through Lung Cancer Alliance, I found my voice as an advocate. Recently at the invitation of Lung Cancer Alliance, I had the opportunity to tell my Dad's story and advocate alongside fellow advocates on behalf of the Lung Cancer Mortality Reduction Act on Capitol Hill as part of their Capitol Forum. My work with their continued support continues at home to gain the support of my Congressman on this legislation.
Lung Cancer Alliance is an amazing organization that helps bring together people of varying backgrounds who share their connection to lung cancer whether through the loss of a friend or loved one or the fact that they are a survivor themselves. I have met an amazing group of people through this organization--people I am proud to call friends. I know everyone at Lung Cancer Alliance personally. They are friends on a mission working tirelessly to end the stigma associated with lung cancer. And so my journey with Lung Cancer Alliance continues. Next stop--running my next half-marathon as part of Team Lung Love Providence.