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Lung Cancer Alliance

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Nonprofit Overview

Causes: Cancer, Civil Rights, Health, Human Services, Lung Diseases, Personal Social Services

Mission: Saving lives and advancing research by empowering those living with and at risk for lung cancer.

Results: Over the past year, more than 12,000 personal telephone calls and email requests were managed by our professional and caring staff, delivering customized support packets to improve outcomes. We also expanded a network of 1,500 medical facility contacts nationwide who share our educational support materials to the newly diagnosed and their loved ones so that they know they are not alone and we are here to help. We launched efforts to educate the millions at high risk about their life-saving options, encouraging conversations with their doctors about early detection. To date, more than 300 medical facilities have joined our coalition to make sure that screening is done right and well at centers of excellence across the U.S. We have trained thousands of advocates to educate elected and public health officials about the disease, securing almost $90 million to date in public health dollars for research and early detection. Because we do not accept public funding, and these dollars fund research directly, we are able to leverage your support at least 10-fold. We also launched the first nationwide awareness campaign addressing the stigma of lung cancer head-on. With more than 300 million impressions to date, the campaign continues to grow over social media channels. Learn more at: www.NoOneDeservesToDie.org. These combined efforts will help meet our vision of reducing lives lost to lung cancer by half by 2020. With your continued help and support, we will achieve this realistic and attainable goal.

Target demographics: The milions living with or at risk for lung cancer

Direct beneficiaries per year: At least 12,000

Geographic areas served: Nationwide

Programs: Community& Support Services Program: Providing free, one-on-one support, information, and referrals to patients, at risk individuals and their loved ones through telephone and online support services, delivering customized education packets to make informed decisions and improve outcomes. Education Program: Conducting national awareness campaigns, including No One Deserves to Die, National Shine A Light on Lung Cancer Vigil, Team Lung Love and Give A Scan to educate the public about the facts, dispel myths, and share calls to action to eliminate stigma, increase research funding and save lives. Health Policy Program: Advocating for multiple millions in public health dollars for lung cancer research and early detection through a nationwide grassroots network of volunteer chapters, advocates and targeted policy strategies.

Community Stories

58 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

I love working with Lung Cancer Alliance! All of the staff make me feel like family! They do an excellent job supporting lung cancer survivors and caregivers.

Scooter4Gail

Volunteer

Rating: 5

I've had the opportunity to work with the staff at the Lung Cancer Alliance since 2013 after losing my wife to this horrific disease in 2012. They are amazing in what they do everyday. Always working with patients in mind first and foremost, pushing to further awareness, helping to push for better research funding, taking the cause right to the lawmakers and helping me to help them advocate when necessary. Their events, like the walk in Philadelphia at the zoo are first class all the way and have brought many people in the community into the fold by hosting events like these. If you have lung cancer or know someone who does, this is the place you need to go. I wish we knew about them when my wife was diagnosed, it would have made a world of difference. Your contributions to this organization go right towards making a difference in the lung cancer community. They take their mission seriously and I know they will help increase the survival rate over time and work to find better treatments and cures. Trust me on this. After all we went through with doctors, hospitals and insurance companies fighting us in this battle, I wouldn't volunteer with an organization that was like the others. They fight WITH us. They fight FOR us. Kudos LCA and keep up the great work -- Scott

1 nicolelindgren

Volunteer

Rating: 5

I have worked with Lung Cancer alliance for 8 years. When my mother passed away from lung cancer we didn’t have any local resources to help. We reached out to them for help. They help us get Shine A Light on Lung Cancer vigil each November for Lung cancer awareness month. We have been holding it at the Salem Cancer Institute every year since. When wanting to do more, LCA helped us set up Lung Love Walk/Run Portland. We have held 3 runs so far to raise money and starting to prepare for next year. Without their help we wouldn’t had known where to start and never would have raised money for Lung cancer research for loved ones living with Lung cancer. They helped me through the grieving process of losing my mother. I’m a proud supporting of LCA and encourage anyone who has dealt with Lung cancer get involved.

Volunteer

Rating: 5

I learned of Lung Cancer Alliance in 2010 after my husband quickly died of lung cancer. The organization has never disappointed me. I have become involved in the Lung Love Run Walk Philadelphia for the past 5 years in addition to many other events. The organization is represented by a group of phenomenol individuals who continuously demonstrate their strong commitment. Lung Cancer Alliance has changed my life for the better at a time when I very much needed the support they provide. And over the past 7 years I have seen LCA positively impact the lives of those with a lung cancer diagnosis. LCA is undoubtedly a great nonprofit.

Volunteer

Rating: 5

LCA has been a pleasure to work with from the beginning. Their motivational skills and true dedication to the cause is an inspiration. Look forward to volunteering in years to come!

Volunteer

Rating: 5

I have been working with the Lung Cancer Alliance for a few years as a patient advocate. They have given me the opportunity to participate in spreading awareness and supporting research. It is especially satisfying to join other advocates to visit our representatives on Capitol Hill and discuss the need for increased funding for lung cancer issues. The staff at LCA has always been extremely knowledgeable and supportive as we try and navigate the system and provide information to other patients and to our elected officials. The web site is an invaluable resource and has helped me learn more so that I can speak effectively about the most important issues. Throughout this work, I have met the most wonderful people, both within LCA and among the advocate population. I look forward to continuing working with them.

Kristy R.1

Volunteer

Rating: 5

I lost my Mom in 2013 to small cell lung cancer. I wanted to do something honor her memory but I couldn't find any fundraisers to support in the Houston area. After attending a Shine a Light with my dear friend Janie who had also lost her Mom to lung cancer, I contacted Lung cancer Alliance and inquired about starting a walk in Houston. I was thrilled to learn that something was in the works but they needed volunteers to make it happen! We soon met other local advocates who were passionate about the cause and together with Lung cancer Alliance in Nov. 2014 our dream became a reality! We are having our FOURTH Lung Love Walk this Saturday and look forward to many more! LCA is a wonderful organization who truly cares about their mission and I am happy to be a part of their volunteer committee! We love working with Lanni and Maggie :)

Volunteer

Rating: 5

Words could not possibly explain how much I appreciate all the work Lung Cancer Alliance (LCA) has done since day 1 that I got involved with our FIRST Lung Love Walk Houston in 2014. It was great to know that there WAS a non-profit organization with passionate people about bringing lung cancer awareness as I was. I have been very happy being able to work with LCA for the past years.
The people there, such as Lanni & Maggie among many others have been incredible in all aspects. When dealing with them from planning to final event items, it has been a pleasure and it’s shown how much they care about LCA to be sure things run smooth from beginning to end.
THANK YOU LCA for making an idea become a realty to bring a lung cancer walk to Houston, now it has been just that, a reality year after year.

DeenaRoger C.

Volunteer

Rating: 5

In 2014 I attended my first National Lung Cancer Summit sponsored by Lung Cancer Alliance. My life changed! The compassionate, dedicated LCA staff provided me with the support, the knowledge and the confidence to stand up and advocate for lung cancer patients. I have never looked back. I do my research. I know with confidence Lung Cancer Alliance responsively uses their resources to IMPROVE outcomes for the leading cause of cancer death; an underfunded, stigmatized and insidious disease. Lung Cancer Alliance's unwavering commitment to everyone impacted by lung cancer IS making a difference, and I am grateful and extremely proud to be a small part of this critical effort. I am a very lucky 2X lung cancer patient who is EXTREMELY lucky to have Lung Cancer Alliance working for ME!

Previous Stories

Volunteer

Rating: 5

I became a lung cancer activist because I cannot comprehend the lack of research funding for the leading cause of cancer death. We HAVE to change this! In 2014 I attended my first Lung Cancer Alliance Summit to do just that by meeting with our Congressional representatives to lobby for equitable research funding. The LCA Summit changed my life and I know this exceptional organization is endlessly working to change the lives of thousands of lung cancer patients just like me. All LCA staff members, starting at the very top, are 100% committed to their critical mission to improve outcomes for lung cancer patients. They are successful because LCA is comprised of compassionate and extremely motivated employees, and volunteers, who share a relentless, passionate drive to empower lung cancer patients and save lives!

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Volunteer

Rating: 5

In 2010 when my sister, Mary Anne Rios, a non-smoker was diagnosed with NSCLC lung cancer, I was devastated. At 53, she was in the prime of her life. For the next 3 1/2 years she valiantly fought lung cancer but ultimately lost her battle in January 2014. My sister wanted to help raise lung cancer awareness and discovered Lung Cancer Alliance online. Lung Cancer Alliance provided her with support and resources but more importantly I found people I could talk to about my sister's lung cancer journey and my role as a caregiver. The staff at Lung Cancer Alliance are a wonderful group willing to listen and lend support. As a result of the support I received from Lung Cancer Alliance (LCA), I continue to support LCA programs and host fundraisers each year to help raise funds and spread awareness of this terrible disease that kills more women than the top three gynecological cancers combined. No one deserves lung cancer.

Volunteer

Rating: 5

Great organization to volunteer for and donate to! I lost my mom to lung cancer in 2015, just 4 weeks from diagnosis. I wanted to turn my grief into something positive, so I attended the organization's advocacy day on Capitol Hill in 2016. I can't wait to attend again in just a few weeks. Lung cancer patients and their families deserve a fighting chance upon diagnosis, not a death sentence.

Kortnee E.

Volunteer

Rating: 5

I love volunteering with them for the Houston Lung Walk. They take the time to answer any questions, love getting our ideas, and are always very personal with us.

Volunteer

Rating: 5

As a lung cancer survivor I was fortunate enough to be invited to attend a Survivor meeting last September. When I arrived I was met by a group of extremely dedicated and caring staff members. Each attendee was made to feel as if they had known each other for years thereby allowing for a free exchange of information regarding individual stories. The Alliance is extremely proactive and is constantly pushing for a wider population of individual to be screened earlier for lung cancer. As a result of the positive atmosphere I was immersed in, before I even left the meeting I volunteered to be a Phone Buddy for the Alliance so that I can assist the newly diagnosed overcome any fear that they may have. BEST meeting that I ever attended!

Volunteer

Rating: 5

I am a twelve year lung cancer survivor. I have been a phone buddy and helped get petitions signed for Lung Cancer Awareness Month both in Tennessee and in Florida.

The people at the Lung Cancer Alliance are dedicated to helping. They are professional, friendly and knowledgeable. I am grateful for the support they gave me following my lung surgery and recovery.

Harriet Bensman

Kristy1579

Volunteer

Rating: 5

I have worked with Lung Cancer Alliance since 2013 .
They brought the first Lung Love Walk to Houston, Tx. I lost my Mom in 2013 to Lung cancer, and helping put this walk together has helped me so much. I am so greatful to everyone at Lung Cancer Alliance, they are making a difference and are amazing to work with. I plan to volunteer with this wonderful organization for years to come!

Volunteer

Rating: 5

I have been involved with the LCA since I attended the 2014 Survivor Summit. It was one of the most rewarding experiences I have had as a survivor. Since I am one of the 17% who did survive, I have felt a need to give back and support other survivors and help educate others about this terrible disease. The LCA gave me useful information to speak about and the experience visiting Capitol Hill and meeting with representatives was invaluable. I also have met a group of wonderful advocates and their dedication and passion have inspired me to do more. I hope to continue working with them and the LCA in the future.

jazzboland

Volunteer

Rating: 5

I have been involved with the Lung Cancer Alliance for over 8 years. I am a 16 year survivor of stage 3 non small cell cancer. I have found help with my own issues involving treatment and survivorship. Over the years. Have volunteered to be a phone buddy, moderator of the lung Cancer Alliance support site and just to carry the torch for this organization.

Previous Stories

Client Served

Rating: 5

I am a 13 year lung cancer survivor who has been involved with the LCA for over 7 years. First I was given support by the many caring individuals that make up this organization. I have since giving back to other lung cancer survivors through this organization. I also have seen them push for legislative measures to support the research funding for this much maligned disease.

Volunteer

Rating: 5

Lung Cancer Alliance was offering support and resources for all affected by lung cancer, as well as advocating for change on Capitol Hill long before any other organization was. They offer free support to all who need it, educate the public, and have successfully written legislation to forward progress toward screening and pathway to funding and a cure. Kudos to an organization with both integrity and heart.

1

Volunteer

Rating: 5

After my mom passed away of lung cancer and my friend's mom also passed four months after, she found a Shine the Light vigil put on by the LCA which we attended. After that, we wanted to be more involved and decided to start a Shine the Light vigil in our part of town. Later on we wanted to know of walks that were put on by the LCA in Houston and we found none. It was then that we decided to start one and put the vigil on hold. Since then, we contacted Lanni with LCA and after speaking to her she came to Houston and met with us and a few other volunteers. Our journey started! with the collaboration, we are proud to have the FIRST Lung Love Walk in Houston on November 8, 2014 and we have raised more than half of what our original goal was! We have the volunteers all willing to help and put this walk together but it could not have been possible without the guidance of LCA, for this I am thankful that we have found not just someone to walk us through the process, but an organization that offers support, awareness, and such to volunteers, caregivers and more importantly to survivors. We want to be part of an organization that wants to END THE STIGMA and make people aware that lung cancer is the deadliest cancer and YET the least funded. I speak for many who have worked to put this walk in saying that I am thankful for LCA. Thanks again!

3

Volunteer

Rating: 5

I became acquainted with LCA in 2010, several months after my husband passed away quickly from stage 4 lung cancer. I sincerely wish that the hospital staff would have known of LCA and shared their resources with me. In the past 4 years I have been part of one amazing experience after another as part of the LCA family, advocating for public awareness and supporting others going through this horrific journey.